SHARED EXPERIENCES OF MANAGING HEART FAILURE AND MULTIMORBIDITY: A QUALITATIVE ANALYSIS

Nelson, K; Benjasirisan, C; Lim, A; DeGroot, L; Badawi, S; Himmelfarb, CD; Davidson, P; Koirala, B

SHARED EXPERIENCES OF MANAGING HEART FAILURE AND MULTIMORBIDITY: A QUALITATIVE ANALYSIS

Nelson, K Benjasirisan, C Lim, A DeGroot, L Badawi, S Himmelfarb, CD Davidson, P

Koirala, B

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Publisher:: Oxford University Press (OUP)
Publication Type:: Journal Article
Citation:: Innovation in Aging, 2023, 7, (Suppl 1), pp. 898-898
Issue Date:: 2023-12-21

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Field	Value	Language
dc.contributor.author	Nelson, K
dc.contributor.author	Benjasirisan, C
dc.contributor.author	Lim, A
dc.contributor.author	DeGroot, L
dc.contributor.author	Badawi, S
dc.contributor.author	Himmelfarb, CD
dc.contributor.author	Davidson, P https://orcid.org/0000-0003-2050-1534
dc.contributor.author	Koirala, B
dc.date.accessioned	2024-01-15T05:52:09Z
dc.date.available	2024-01-15T05:52:09Z
dc.date.issued	2023-12-21
dc.identifier.citation	Innovation in Aging, 2023, 7, (Suppl 1), pp. 898-898
dc.identifier.issn	2399-5300
dc.identifier.issn	2399-5300
dc.identifier.uri	http://hdl.handle.net/10453/174481
dc.description.abstract	<jats:title>Abstract</jats:title> <jats:p>Heart failure affects more than 6 million people nationally; most are older adults who have multimorbidity. Navigating symptom management and self-care maintenance can be challenging given heart failure’s non-linear trajectory. Therefore, identifying shared priorities is important for guiding steps to enhance care provision. Our study aimed to elicit experiences and perspectives regarding heart failure and multimorbidity management among patients, caregivers, and healthcare workers via semi-structured interviews. We used purposive and convenience sampling to recruit patients 50 years and older living with heart failure and comorbidities, family caregivers, and interdisciplinary healthcare workers from an academic medical center in the Mid-Atlantic region of the U.S. Participants were asked about disease trajectory, recognizing/treating symptoms, and service utilization. We used inductive thematic analysis and presented key findings at virtual co-design events, whereby participants ranked priorities to determine next steps. Forty-six interviews were conducted: 24 patients (mean ± SD: 70.1 ± 9.16 years; 46% female), 7 family caregivers (63.6 ± 14.18 years; 57% female), and 15 healthcare workers (35.6 ± 10.04 years; 80% female). Four themes were emphasized across groups: 1) clear communication, 2) health education for patients and caregivers, 3) care coordination and follow-up post-discharge, and 4) provision of mental and emotional support. Patients, caregivers, and healthcare workers uniquely contribute to heart failure and multimorbidity management. All groups share priorities surrounding clear communication, health education and comprehensive support. These factors can be significant barriers or facilitators in terms of optimizing patients’ symptoms and quality of life.</jats:p>
dc.language	en
dc.publisher	Oxford University Press (OUP)
dc.relation.ispartof	Innovation in Aging
dc.relation.isbasedon	10.1093/geroni/igad104.2888
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject.classification	3202 Clinical sciences
dc.title	SHARED EXPERIENCES OF MANAGING HEART FAILURE AND MULTIMORBIDITY: A QUALITATIVE ANALYSIS
dc.type	Journal Article
utslib.citation.volume	7
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	closed_access	*
dc.date.updated	2024-01-15T05:52:08Z
pubs.issue	Suppl 1
pubs.publication-status	Published
pubs.volume	7
utslib.citation.issue	Suppl 1

Abstract:

Abstract Heart failure affects more than 6 million people nationally; most are older adults who have multimorbidity. Navigating symptom management and self-care maintenance can be challenging given heart failure’s non-linear trajectory. Therefore, identifying shared priorities is important for guiding steps to enhance care provision. Our study aimed to elicit experiences and perspectives regarding heart failure and multimorbidity management among patients, caregivers, and healthcare workers via semi-structured interviews. We used purposive and convenience sampling to recruit patients 50 years and older living with heart failure and comorbidities, family caregivers, and interdisciplinary healthcare workers from an academic medical center in the Mid-Atlantic region of the U.S. Participants were asked about disease trajectory, recognizing/treating symptoms, and service utilization. We used inductive thematic analysis and presented key findings at virtual co-design events, whereby participants ranked priorities to determine next steps. Forty-six interviews were conducted: 24 patients (mean ± SD: 70.1 ± 9.16 years; 46% female), 7 family caregivers (63.6 ± 14.18 years; 57% female), and 15 healthcare workers (35.6 ± 10.04 years; 80% female). Four themes were emphasized across groups: 1) clear communication, 2) health education for patients and caregivers, 3) care coordination and follow-up post-discharge, and 4) provision of mental and emotional support. Patients, caregivers, and healthcare workers uniquely contribute to heart failure and multimorbidity management. All groups share priorities surrounding clear communication, health education and comprehensive support. These factors can be significant barriers or facilitators in terms of optimizing patients’ symptoms and quality of life.

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http://hdl.handle.net/10453/174481