Showing results 3 to 22 of 29
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| Issue Date | Title | Author(s) |
| 2021 | Cancer Patient Experience of Uncertainty While Waiting for Genome Sequencing Results. | Bartley, N; Napier, CE; Butt, Z; Schlub, TE; Best, MC; Biesecker, BB; Ballinger, ML; Butow, P |
| 2022-03 | Cancer patient knowledge about and behavioral intentions after germline genome sequencing. | Napier, CE; Davies, G; Butow, PN; Schlub, TE; Best, MC; Bartley, N; Juraskova, I; Meiser, B; Tucker, KM; Biesecker, BB; Thomas, DM; Ballinger, ML; Members of the PiGeOn Project, |
| 2017-09 | Defining personal utility in genomics: A Delphi study. | Kohler, JN; Turbitt, E; Lewis, KL; Wilfond, BS; Jamal, L; Peay, HL; Biesecker, LG; Biesecker, BB |
| 2021-05-13 | Dyadic concordance and associations of beliefs with intentions to learn carrier results from genomic sequencing | Huelsnitz, CO; Turbitt, E; Taber, JM; Lewis, KL; Biesecker, LG; Biesecker, BB; Klein, WMP |
| 2022-02 | Effectively communicating comprehensive tumor genomic profiling results: Mitigating uncertainty for advanced cancer patients. | Bartley, N; Best, MC; Biesecker, BB; Fisher, A; Goldstein, D; Meiser, B; Thomas, DM; Ballinger, ML; Butow, P |
| 2021-05 | Engagement and return of results preferences among a primarily African American genomic sequencing research cohort. | Lewis, KL; Turbitt, E; Chan, PA; Epps, S; Biesecker, BB; Erby, LAH; Fasaye, G-A; Biesecker, LG |
| 2021-07 | Enrolling Children in Clinical Trials for Genetic Neurodevelopmental Conditions: Ethics, Parental Decisions, and Children's Identities. | Turbitt, E; Newson, AJ; Biesecker, BB; Wilfond, BS |
| 2018-09-06 | Evaluation of Recipients of Positive and Negative Secondary Findings Evaluations in a Hybrid CLIA-Research Sequencing Pilot | Sapp, JC; Johnston, JJ; Driscoll, K; Heidlebaugh, AR; Miren Sagardia, A; Dogbe, DN; Umstead, KL; Turbitt, E; Alevizos, I; Baron, J; Bönnemann, C; Brooks, B; Donkervoort, S; Jee, YH; Linehan, WM; McMahon, FJ; Moss, J; Mullikin, JC; Nielsen, D; Pelayo, E; Remaley, AT; Siegel, R; Su, H; Zarate, C; Barnabas, BB; Bouffard, GG; Brooks, SY; Coleman, H; Dekhtyar, L; Guan, X; Han, J; Ho, SL; Legaspi, R; Maduro, QL; Masiello, CA; McDowell, JC; Montemayor, C; Park, M; Riebow, NL; Schandler, K; Scharer, C; Schmidt, B; Sison, C; Stantripop, S; Thomas, JW; Thomas, PJ; Vemulapalli, M; Young, AC; Manolio, TA; Biesecker, BB; Biesecker, LG |
| 2018-02-01 | Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention | Haakonsen Smith, C; Turbitt, E; Muschelli, J; Leonard, L; Lewis, KL; Freedman, B; Muratori, M; Biesecker, BB |
| 2019-08-01 | Fragile X syndrome clinical trials: exploring parental decision-making | D'Amanda, CS; Peay, HL; Wheeler, AC; Turbitt, E; Biesecker, BB |
| 2019-06-01 | Genetic counseling, genetic testing, and risk perceptions for breast and colorectal cancer: Results from the 2015 National Health Interview Survey | Turbitt, E; Roberts, MC; Taber, JM; Waters, EA; McNeel, TS; Biesecker, BB; Klein, WMP |
| 2018-05-01 | Intentions to share exome sequencing results with family members: Exploring spousal beliefs and attitudes | Turbitt, E; Roberts, MC; Ferrer, RA; Taber, JM; Lewis, KL; Biesecker, LG; Biesecker, BB; Klein, WM |
| 2019-01-01 | Judgment and decision making in genome sequencing | Klein, WMP; Biesecker, BB; Turbitt, E |
| 2019-05-01 | Managing the need to tell: Triggers and strategic disclosure of thalassemia major in Singapore | Kumar, N; Turbitt, E; Biesecker, BB; Miller, IM; Cham, B; Smith, KC; Rimal, RN |
| 2023-10 | Motivations to learn genomic information are not exceptional: Lessons from behavioral science. | Taber, JM; Peters, E; Klein, WMP; Cameron, LD; Turbitt, E; Biesecker, BB |
| 2021-08 | Parent clinical trial priorities for fragile X syndrome: a best-worst scaling. | Turbitt, E; D'Amanda, C; Hyman, S; Weber, JD; Bridges, JFP; Peay, HL; Biesecker, BB |
| 2020-12 | Parental decision making about clinical trial enrollment: A survey of parents of children with Fragile X syndrome. | Turbitt, E; Klein, WMP; Rogers, K; D'Amanda, CS; Biesecker, BB |
| 2020-05 | Perceptions of uncertainties about carrier results identified by exome sequencing in a randomized controlled trial. | Umstead, KL; Han, PKJ; Lewis, KL; Miller, IM; Hepler, CL; Thompson, LJ; Wolfsberg, TG; Nguyen, A-D; Fredriksen, MT; Gibney, G; Turbitt, E; Biesecker, LG; Biesecker, BB |
| 2017-06 | Personal utility in genomic testing: a systematic literature review. | Kohler, JN; Turbitt, E; Biesecker, BB |
| 2021-04-19 | Preferences for and acceptability of receiving pharmacogenomic results by mail: A focus group study with a primarily African-American cohort. | Chan, PA; Lewis, KL; Biesecker, BB; Erby, LH; Fasaye, G-A; Epps, S; Biesecker, LG; Turbitt, E |
