Showing results 6 to 25 of 38
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| Issue Date | Title | Author(s) |
| 2019-07-03 | The C9orf72 hexanucleotide repeat expansion presents a challenge for testing laboratories and genetic counseling | Crook, A; McEwen, A; Fifita, JA; Zhang, K; Kwok, JB; Halliday, G; Blair, IP; Rowe, DB |
| 2022 | COPESCD — An Online Community Supporting Families After Sudden Cardiac Death in the Young: A Protocol for a Pilot Study | Yeates, L; Gardner, K; Do, J; van den Heuvel, L; Leslie, F; Semsarian, C; McEwen, A; Adlard, L; Ingles, J |
| 2022-07 | Correction: Incorporating patient perspectives in the development of a core outcome set for reproductive genetic carrier screening: a sequential systematic review. | Richardson, E; McEwen, A; Newton-John, T; Crook, A; Jacobs, C |
| 2023-08 | Defining core outcomes of reproductive genetic carrier screening: A Delphi survey of Australian and New Zealand stakeholders. | Richardson, E; McEwen, A; Newton-John, T; Jacobs, C |
| 2019-11-08 | Ensuring Best Practice in Genomic Education and Evaluation: A Program Logic Approach | Nisselle, A; Martyn, M; Jordan, H; Kaunein, N; McEwen, A; Patel, C; Terrill, B; Bishop, M; Metcalfe, S; Gaff, C |
| 2021-04-06 | Ensuring best practice in genomics education and evaluation: reporting item standards for education and its evaluation in genomics (RISE2 Genomics). | Nisselle, A; Janinski, M; Martyn, M; McClaren, B; Kaunein, N; Reporting Item Standards for Education and its Evaluation in Genomics Expert Group,; Barlow-Stewart, K; Belcher, A; Bernat, JA; Best, S; Bishop, M; Carroll, JC; Cornel, M; Dissanayake, VHW; Dodds, A; Dunlop, K; Garg, G; Gear, R; Graves, D; Knight, K; Korf, B; Kumar, D; Laurino, M; Ma, A; Maguire, J; Mallett, A; McCarthy, M; McEwen, A; Mulder, N; Patel, C; Quinlan, C; Reed, K; Riggs, ER; Sinnerbrink, I; Slavotinek, A; Suppiah, V; Terrill, B; Tobias, ES; Tonkin, E; Trumble, S; Wessels, T-M; Metcalfe, S; Jordan, H; Gaff, C |
| 2023-07 | Free Online Decision Tools to Support Parents Making Decisions About Their Children's Chronic Health Condition: An Environmental Scan. | Wilkin, T; Stott, A; Lin, JL; Pate, J; McEwen, A; Verhagen, A; Turbitt, E |
| 2022-03 | Genetic and genomic learning needs of oncologists and oncology nurses in the era of precision medicine: a scoping review. | Rahman, B; McEwen, A; Phillips, JL; Tucker, K; Goldstein, D; Jacobs, C |
| 2022-10 | Genetic counseling and diagnostic genetic testing for familial amyotrophic lateral sclerosis and/or frontotemporal dementia: A qualitative study of client experiences. | Crook, A; Jacobs, C; Newton-John, T; McEwen, A |
| 2021-03-01 | Genetic counseling and testing practices for late-onset neurodegenerative disease: a systematic review | Crook, A; Jacobs, C; Newton-John, T; O’Shea, R; McEwen, A |
| 2022-04 | Genetic counselling and testing for neurodegenerative disorders using a proposed standard of practice for ALS/MND: diagnostic testing comes first. | Crook, A; McEwen, A |
| 2018-08-01 | Genetic Counsellors and Private Practice: Professional Turbulence and Common Values | Collis, S; Gaff, C; Wake, S; McEwen, A |
| 2022-11-07 | Genetic Counsellors play a key role in supporting ethically responsible expanded universal carrier screening. | Dive, L; Freeman, L; McEwen, A |
| 2019 | Imagining and designing the future of genetic counselling with the new generation of genetic counsellors | McEwen, A; Kligyte, G; McLean, J; Jacobs, C |
| 2023-09 | (In)visibility of LGBTQIA+ people and relationships in healthcare: A scoping review. | Mitchell, LA; Jacobs, C; McEwen, A |
| 2022-07 | Incorporating patient perspectives in the development of a core outcome set for reproductive genetic carrier screening: a sequential systematic review. | Richardson, E; McEwen, A; Newton-John, T; Crook, A; Jacobs, C |
| 2022-01-01 | My Research Results: a program to facilitate return of clinically actionable genomic research findings. | Willis, AM; Terrill, B; Pearce, A; McEwen, A; Ballinger, ML; Young, M-A |
| 2022-08-12 | Outcomes of Importance to Patients in Reproductive Genetic Carrier Screening: A Qualitative Study to Inform a Core Outcome Set. | Richardson, E; McEwen, A; Newton-John, T; Crook, A; Jacobs, C |
| 2023-12-18 | Parents' preferences for receiving and discussing prognostic genetic information regarding their children's neurodevelopmental condition: A qualitative study. | Turbitt, E; Bourne, M; McEwen, A; Amor, DJ |
| 2021-10 | Patient and Relative Experiences and Decision-making About Genetic Testing and Counseling for Familial ALS and FTD: A Systematic Scoping Review. | Crook, A; Jacobs, C; Newton-John, T; Richardson, E; McEwen, A |
