Narratives of the heart: telling the story of children with a cardiac condition through a bead program

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dc.contributor.author Redshaw, S
dc.contributor.author Wilson, V
dc.contributor.author Scarfe, G
dc.contributor.author Dengler, KA
dc.date.accessioned 2012-02-10T06:09:46Z
dc.date.issued 2011-01
dc.identifier.citation Journal Of Clinical Nursing, 2011, 20 (19-20), pp. 2802 - 2811
dc.identifier.issn 0962-1067
dc.identifier.other C1 en_US
dc.identifier.uri http://hdl.handle.net/10453/17127
dc.description.abstract Aims. To present and discuss the significance of a bead program in assisting families to put together the story of a childâs journey through cardiac intervention. The main focus of the article is the importance to families of developing a narrative in making sense of the experience of discovering their child has a cardiac condition and how this is enhanced by the bead program. Background. The Heart Beads Program involved giving families beads related to procedures and processes the children undergo while they are in hospital. Research on narratives related to illness suggests that forming a narrative that incorporates the health condition facilitates the ability to talk about these experiences and helps to make sense of and deal with the stressors related to such traumatic life events. Design. A qualitative methodology was used to evaluate the program employing semi-structured interviews and content analysis following a grounded theory approach. Methods. Interviews were undertaken with 11 families to highlight their experiences of being involved in the Heart Beads Program. Themes were identified from the interviews and critical discussion was used to structure and connect the themes. Results. The major theme that emerged from the analysis of the interviews was the importance of the beads in enabling the telling of the childâs story. Five subthemes were identified in this theme: symbolism, encouraging/uplifting, acknowledgement, connection with others and imagining the future. The themes are outlined and expressed through specific comments from interviews. Conclusions. The Heart Beads are seen as presenting a significant way for children and families to comprehend their time in hospital as part of the childâs life story. Relevance to clinical practice. The program can offer the opportunity for health care professionals to relate to the child and familyâs story and to engage with that story in a person centred way.
dc.publisher Blackwell Publishing Ltd
dc.relation.isbasedon 10.1111/j.1365-2702.2011.03780.x
dc.title Narratives of the heart: telling the story of children with a cardiac condition through a bead program
dc.type Journal Article
dc.parent Journal Of Clinical Nursing
dc.journal.volume 19-20
dc.journal.volume 20
dc.journal.number 19-20 en_US
dc.publocation Oxford, UK en_US
dc.identifier.startpage 2802 en_US
dc.identifier.endpage 2811 en_US
dc.cauo.name FOH.Faculty of Health en_US
dc.conference Verified OK en_US
dc.for 1110 Nursing
dc.personcode 998491
dc.personcode 106369
dc.percentage 100 en_US
dc.classification.name Nursing en_US
dc.classification.type FOR-08 en_US
dc.edition en_US
dc.custom en_US
dc.date.activity en_US
dc.location.activity en_US
dc.description.keywords beads program, children, chronic illness, grounded theory, narrative, storytelling en_US
pubs.embargo.period Not known
pubs.organisational-group /University of Technology Sydney
pubs.organisational-group /University of Technology Sydney/Faculty of Health
pubs.organisational-group /University of Technology Sydney/Strength - Health Services and Practice Research
utslib.copyright.status Closed Access
utslib.copyright.date 2015-04-15 12:17:09.805752+10
utslib.collection.history Closed (ID: 3)


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