Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder.

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dc.contributor.author Ewing, JE
dc.contributor.author King, MT
dc.contributor.author Smith, NF
dc.date.accessioned 2010-05-28T09:50:00Z
dc.date.issued 2009-03
dc.identifier.citation Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 2009, 18 (2), pp. 231 - 244
dc.identifier.issn 0962-9343
dc.identifier.other C1 en_US
dc.identifier.uri http://hdl.handle.net/10453/9489
dc.description.abstract PURPOSE: To validate two health-related quality of life (HRQOL) measures, the PedsQL Generic Core and Cancer Module adolescent forms (13-18 years), after modification for 16-25-year-old adolescents and young adults (AYA) with cancer or a blood disorder. METHODS: AYA patients and nominated proxies were recruited from three Sydney hospitals. Modified forms were administered by telephone or in clinics/wards. Analyses included correlations, factor analysis, and analysis of variance of known-groups (defined by the Memorial Symptom Assessment Scale). RESULTS: Eighty-eight patients and 79 proxies completed questionnaires. Factor structures consistent with those of the unmodified forms confirmed construct validity. Cronbach's alpha ranged 0.81-0.98. Inter-scale correlations were as hypothesized, confirming discriminant validity. Statistically significant differences between groups with mild, moderate, and severe symptoms (P < 0.05) confirmed clinical validity. CONCLUSION: These modified forms provide reliable and valid measures of HRQOL in AYA with cancer or a blood disorder, suitable for clinical trials, research, and practice.
dc.format Print-Electronic
dc.language eng
dc.relation.isbasedon 10.1007/s11136-008-9424-4
dc.title Validation of modified forms of the PedsQL generic core scales and cancer module scales for adolescents and young adults (AYA) with cancer or a blood disorder.
dc.type Journal Article
dc.parent Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
dc.journal.volume 2
dc.journal.volume 18
dc.journal.number 2 en_US
dc.publocation Dordrecht, The Netherlands en_US
dc.identifier.startpage 231 en_US
dc.identifier.endpage 244 en_US
dc.cauo.name BUS.Faculty of Business en_US
dc.conference Verified OK en_US
dc.for 1117 Public Health and Health Services
dc.personcode 014425
dc.personcode 020118
dc.personcode 921144
dc.percentage 100 en_US
dc.classification.name Public Health and Health Services en_US
dc.classification.type FOR-08 en_US
dc.edition en_US
dc.custom en_US
dc.date.activity en_US
dc.location.activity ISI:000263178700011 en_US
dc.description.keywords Humans
dc.description.keywords Hematologic Diseases
dc.description.keywords Questionnaires
dc.description.keywords Reproducibility of Results
dc.description.keywords Adolescent
dc.description.keywords Adult
dc.description.keywords Neoplasms
dc.description.keywords Young Adult
dc.description.keywords Psychometrics
dc.description.keywords Quality of Life
pubs.embargo.period Not known
pubs.organisational-group /University of Technology Sydney
pubs.organisational-group /University of Technology Sydney/Faculty of Business
pubs.organisational-group /University of Technology Sydney/Faculty of Science
pubs.organisational-group /University of Technology Sydney/Faculty of Science/School of Mathematical Sciences
utslib.copyright.status Closed Access
utslib.copyright.date 2015-04-15 12:17:09.805752+10
pubs.consider-herdc true
utslib.collection.history Closed (ID: 3)


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