Legal and ethical issues surrounding the use of older children's electronic personal health records

Publication Type:
Journal Article
Journal of Law and Medicine, 2018, 25 (4), pp. 1042 - 1055
Issue Date:
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© 2018 Thomson Head Office. This article explores the legal and ethical issues surrounding the production, storage, retrieval and use of electronic personal health records of children aged 14 years and over. Specifically, we explore: (1) the capacity, consent and competence issues; (2) privacy and confidentiality concerns; (3) the tension between a child's right to autonomy and his or her parent's or guardian's rights and responsibilities; and (4) outline implications of this for the implementation of Australia's My Health Record system, particularly for children with communication disability who are high users of health systems and have high health information exchange needs.
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