Rheumatic heart disease in pregnancy: How can health services adapt to the needs of Indigenous women? A qualitative study

Belton, S; Kruske, S; Jackson Pulver, L; Sherwood, J; Tune, K; Carapetis, J; Vaughan, G; Peek, M; McLintock, C; Sullivan, E

Rheumatic heart disease in pregnancy: How can health services adapt to the needs of Indigenous women? A qualitative study

Belton, S Kruske, S

Jackson Pulver, L Sherwood, J Tune, K Carapetis, J Vaughan, G

Peek, M McLintock, C Sullivan, E

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Publication Type:: Journal Article
Citation:: Australian and New Zealand Journal of Obstetrics and Gynaecology, 2018, 58 (4), pp. 425 - 431
Issue Date:: 2018-08-01

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Field	Value	Language
dc.contributor.author	Belton, S	en_US
dc.contributor.author	Kruske, S https://orcid.org/0000-0002-2317-3954	en_US
dc.contributor.author	Jackson Pulver, L	en_US
dc.contributor.author	Sherwood, J	en_US
dc.contributor.author	Tune, K	en_US
dc.contributor.author	Carapetis, J	en_US
dc.contributor.author	Vaughan, G https://orcid.org/0000-0002-0132-9946	en_US
dc.contributor.author	Peek, M	en_US
dc.contributor.author	McLintock, C	en_US
dc.contributor.author	Sullivan, E https://orcid.org/0000-0002-8718-2753	en_US
dc.date.available	2017-10-09	en_US
dc.date.issued	2018-08-01	en_US
dc.identifier.citation	Australian and New Zealand Journal of Obstetrics and Gynaecology, 2018, 58 (4), pp. 425 - 431	en_US
dc.identifier.issn	0004-8666	en_US
dc.identifier.uri	http://hdl.handle.net/10453/129771
dc.description.abstract	© 2017 The Royal Australian and New Zealand College of Obstetricians and Gynaecologists Objectives: To study rheumatic heart disease health literacy and its impact on pregnancy, and to identify how health services could more effectively meet the needs of pregnant women with rheumatic heart disease. Materials and methods: Researchers observed and interviewed a small number of Aboriginal women and their families during pregnancy, childbirth and postpartum as they interacted with the health system. An Aboriginal Yarning method of relationship building over time, participant observations and interviews with Aboriginal women were used in the study. The settings were urban, island and remote communities across the Northern Territory. Women were followed interstate if they were transferred during pregnancy. The participants were pregnant women and their families. We relied on participants’ abilities to tell their own experiences so that researchers could interpret their understanding and perspective of rheumatic heart disease. Results: Aboriginal women and their families rarely had rheumatic heart disease explained appropriately by health staff and therefore lacked understanding of the severity of their illness and its implications for childbearing. Health directives in written and spoken English with assumed biomedical knowledge were confusing and of limited use when delivered without interpreters or culturally appropriate health supports. Conclusions: Despite previous studies documenting poor communication and culturally inadequate care, health systems did not meet the needs of pregnant Aboriginal women with rheumatic heart disease. Language-appropriate health education that promotes a shared understanding should be relevant to the gender, life-stage and social context of women with rheumatic heart disease.	en_US
dc.relation	http://purl.org/au-research/grants/nhmrc/1024206
dc.relation.ispartof	Australian and New Zealand Journal of Obstetrics and Gynaecology	en_US
dc.relation.isbasedon	10.1111/ajo.12744	en_US
dc.subject.classification	Obstetrics & Reproductive Medicine	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Rheumatic Heart Disease	en_US
dc.subject.mesh	Pregnancy Complications, Infectious	en_US
dc.subject.mesh	Pregnancy	en_US
dc.subject.mesh	Adult	en_US
dc.subject.mesh	Oceanic Ancestry Group	en_US
dc.subject.mesh	Maternal Health Services	en_US
dc.subject.mesh	Health Services, Indigenous	en_US
dc.subject.mesh	Health Services Needs and Demand	en_US
dc.subject.mesh	Northern Territory	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Interviews as Topic	en_US
dc.subject.mesh	Young Adult	en_US
dc.title	Rheumatic heart disease in pregnancy: How can health services adapt to the needs of Indigenous women? A qualitative study	en_US
dc.type	Journal Article
utslib.citation.volume	4	en_US
utslib.citation.volume	58	en_US
utslib.for	1117 Public Health and Health Services	en_US
utslib.for	1114 Paediatrics and Reproductive Medicine	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Public Health
pubs.organisational-group	/University of Technology Sydney/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Students
utslib.copyright.status	closed_access
pubs.issue	4	en_US
pubs.publication-status	Published	en_US
pubs.volume	58	en_US

Abstract:

© 2017 The Royal Australian and New Zealand College of Obstetricians and Gynaecologists Objectives: To study rheumatic heart disease health literacy and its impact on pregnancy, and to identify how health services could more effectively meet the needs of pregnant women with rheumatic heart disease. Materials and methods: Researchers observed and interviewed a small number of Aboriginal women and their families during pregnancy, childbirth and postpartum as they interacted with the health system. An Aboriginal Yarning method of relationship building over time, participant observations and interviews with Aboriginal women were used in the study. The settings were urban, island and remote communities across the Northern Territory. Women were followed interstate if they were transferred during pregnancy. The participants were pregnant women and their families. We relied on participants’ abilities to tell their own experiences so that researchers could interpret their understanding and perspective of rheumatic heart disease. Results: Aboriginal women and their families rarely had rheumatic heart disease explained appropriately by health staff and therefore lacked understanding of the severity of their illness and its implications for childbearing. Health directives in written and spoken English with assumed biomedical knowledge were confusing and of limited use when delivered without interpreters or culturally appropriate health supports. Conclusions: Despite previous studies documenting poor communication and culturally inadequate care, health systems did not meet the needs of pregnant Aboriginal women with rheumatic heart disease. Language-appropriate health education that promotes a shared understanding should be relevant to the gender, life-stage and social context of women with rheumatic heart disease.

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http://hdl.handle.net/10453/129771