Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention

Haakonsen Smith, C; Turbitt, E; Muschelli, J; Leonard, L; Lewis, KL; Freedman, B; Muratori, M; Biesecker, BB

Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention

Haakonsen Smith, C Turbitt, E

Muschelli, J Leonard, L Lewis, KL Freedman, B Muratori, M Biesecker, BB

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Publication Type:: Journal Article
Citation:: Journal of Genetic Counseling, 2018, 27 (1), pp. 252 - 262
Issue Date:: 2018-02-01

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Field	Value	Language
dc.contributor.author	Haakonsen Smith, C	en_US
dc.contributor.author	Turbitt, E https://orcid.org/0000-0002-6650-9702	en_US
dc.contributor.author	Muschelli, J	en_US
dc.contributor.author	Leonard, L	en_US
dc.contributor.author	Lewis, KL	en_US
dc.contributor.author	Freedman, B	en_US
dc.contributor.author	Muratori, M	en_US
dc.contributor.author	Biesecker, BB	en_US
dc.date.available	2017-08-09	en_US
dc.date.issued	2018-02-01	en_US
dc.identifier.citation	Journal of Genetic Counseling, 2018, 27 (1), pp. 252 - 262	en_US
dc.identifier.issn	1059-7700	en_US
dc.identifier.uri	http://hdl.handle.net/10453/129816
dc.description.abstract	© 2017, National Society of Genetic Counselors, Inc. Caregivers of children with autism spectrum disorder (ASD) may find it difficult to feel a sense of control and to cope with the overall physical and emotional demands of caring for their child. While caregivers are able to successfully cope with a high level of stress, there are limits to their resources and abilities to cope over time. Genetic counselors working with affected families may be able to help parents more effectively manage stress related to the disorder. Few short-term interventions have been reported in genetic counseling yet implementation of evidence-based examples may be achievable. This study aimed to assess the feasibility of a coping effectiveness training (CET) intervention designed to enhance coping self-efficacy (CSE) among caregivers of children with ASD, with the eventual goal of translating this intervention into genetic counseling practice. A randomized treatment-control design was used to investigate the feasibility of an intervention using CET among caregivers of children with ASD. The primary outcome was the feasibility of the intervention; the secondary outcome was improvements in CSE in the intervention group as compared to the control group. Caregivers were recruited and randomized into the treatment (n=15) or control (n=13) groups. Of these, 22 completed the study (retention: 78.6%). The intervention was highly feasible; most caregivers found the CET helpful, practical, useful, and relatively easy to attend. The treatment group demonstrated significantly increased CSE from pre-intervention to post-intervention (p=0.02). Between group differences were not significant when comparing the pre-post changes. We provide preliminary evidence that CET may be beneficial to caregivers of children with ASD. The results of this feasibility study support development of a phase II study of this intervention in a larger cohort, aimed to be implemented into a genetic counseling setting.	en_US
dc.relation.ispartof	Journal of Genetic Counseling	en_US
dc.relation.isbasedon	10.1007/s10897-017-0144-1	en_US
dc.subject.classification	Genetics & Heredity	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Cohort Studies	en_US
dc.subject.mesh	Feasibility Studies	en_US
dc.subject.mesh	Adaptation, Psychological	en_US
dc.subject.mesh	Self Efficacy	en_US
dc.subject.mesh	Parents	en_US
dc.subject.mesh	Genetic Counseling	en_US
dc.subject.mesh	Social Support	en_US
dc.subject.mesh	Adult	en_US
dc.subject.mesh	Child	en_US
dc.subject.mesh	Child, Preschool	en_US
dc.subject.mesh	Caregivers	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.subject.mesh	Autism Spectrum Disorder	en_US
dc.title	Feasibility of Coping Effectiveness Training for Caregivers of Children with Autism Spectrum Disorder: a Genetic Counseling Intervention	en_US
dc.type	Journal Article
utslib.citation.volume	1	en_US
utslib.citation.volume	27	en_US
utslib.for	1103 Clinical Sciences	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Graduate School of Health
utslib.copyright.status	closed_access
pubs.issue	1	en_US
pubs.publication-status	Published	en_US
pubs.volume	27	en_US

Abstract:

© 2017, National Society of Genetic Counselors, Inc. Caregivers of children with autism spectrum disorder (ASD) may find it difficult to feel a sense of control and to cope with the overall physical and emotional demands of caring for their child. While caregivers are able to successfully cope with a high level of stress, there are limits to their resources and abilities to cope over time. Genetic counselors working with affected families may be able to help parents more effectively manage stress related to the disorder. Few short-term interventions have been reported in genetic counseling yet implementation of evidence-based examples may be achievable. This study aimed to assess the feasibility of a coping effectiveness training (CET) intervention designed to enhance coping self-efficacy (CSE) among caregivers of children with ASD, with the eventual goal of translating this intervention into genetic counseling practice. A randomized treatment-control design was used to investigate the feasibility of an intervention using CET among caregivers of children with ASD. The primary outcome was the feasibility of the intervention; the secondary outcome was improvements in CSE in the intervention group as compared to the control group. Caregivers were recruited and randomized into the treatment (n=15) or control (n=13) groups. Of these, 22 completed the study (retention: 78.6%). The intervention was highly feasible; most caregivers found the CET helpful, practical, useful, and relatively easy to attend. The treatment group demonstrated significantly increased CSE from pre-intervention to post-intervention (p=0.02). Between group differences were not significant when comparing the pre-post changes. We provide preliminary evidence that CET may be beneficial to caregivers of children with ASD. The results of this feasibility study support development of a phase II study of this intervention in a larger cohort, aimed to be implemented into a genetic counseling setting.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/129816