Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD.

Luckett, T; Roberts, MM; Smith, T; Swami, V; Cho, J-G; Wheatley, JR

Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD.

Luckett, T

Roberts, MM Smith, T Swami, V Cho, J-G Wheatley, JR

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Publisher:: NATURE PUBLISHING GROUP
Publication Type:: Journal Article
Citation:: NPJ primary care respiratory medicine, 2020, 30, (1)
Issue Date:: 2020-04-08

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Field	Value	Language
dc.contributor.author	Luckett, T https://orcid.org/0000-0001-6121-5409
dc.contributor.author	Roberts, MM
dc.contributor.author	Smith, T
dc.contributor.author	Swami, V
dc.contributor.author	Cho, J-G
dc.contributor.author	Wheatley, JR
dc.date.accessioned	2020-08-31T05:56:12Z
dc.date.available	2020-03-12
dc.date.available	2020-08-31T05:56:12Z
dc.date.issued	2020-04-08
dc.identifier.citation	NPJ primary care respiratory medicine, 2020, 30, (1)
dc.identifier.issn	2055-1010
dc.identifier.issn	2055-1010
dc.identifier.uri	http://hdl.handle.net/10453/142445
dc.description.abstract	This study aimed to inform understanding of how to optimise patient-perceived benefits from a breathlessness service designed for patients with moderate to very severe chronic obstructive pulmonary disease (COPD). The Westmead Breathlessness Service (WBS) trains patients to self-manage over an 8-week programme, with multidisciplinary input and home visits. A qualitative approach was taken, using semi-structured telephone interviews. Each transcript was globally rated as suggesting 'significant', 'some' or 'no' impact from WBS, and thematic analysis used an integrative approach. Forty-one consecutive participants were interviewed to reach 'information power'. Eighteen (44%) participants reported 'significant' impact, 17 (41%) 'some' impact, and two (5%) 'no' impact. Improvements to breathlessness were usually in the affective and impact dimensions but, more uncommonly, also sensory-perceptual. Participants who benefited in self-esteem, confidence and motivation attributed this to one-to-one multidisciplinary coaching and home visits. Further research should test whether including/excluding more intensive programme elements based on individual need might improve cost-effectiveness.
dc.format	Electronic
dc.language	eng
dc.publisher	NATURE PUBLISHING GROUP
dc.relation.ispartof	NPJ primary care respiratory medicine
dc.relation.isbasedon	10.1038/s41533-020-0172-4
dc.rights	info:eu-repo/semantics/openAccess
dc.rights	info:eu-repo/semantics/openAccess
dc.title	Patient perspectives on how to optimise benefits from a breathlessness service for people with COPD.
dc.type	Journal Article
utslib.citation.volume	30
utslib.location.activity	England
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.date.updated	2020-08-31T05:56:09Z
pubs.issue	1
pubs.publication-status	Published
pubs.volume	30
utslib.citation.issue	1

Abstract:

This study aimed to inform understanding of how to optimise patient-perceived benefits from a breathlessness service designed for patients with moderate to very severe chronic obstructive pulmonary disease (COPD). The Westmead Breathlessness Service (WBS) trains patients to self-manage over an 8-week programme, with multidisciplinary input and home visits. A qualitative approach was taken, using semi-structured telephone interviews. Each transcript was globally rated as suggesting 'significant', 'some' or 'no' impact from WBS, and thematic analysis used an integrative approach. Forty-one consecutive participants were interviewed to reach 'information power'. Eighteen (44%) participants reported 'significant' impact, 17 (41%) 'some' impact, and two (5%) 'no' impact. Improvements to breathlessness were usually in the affective and impact dimensions but, more uncommonly, also sensory-perceptual. Participants who benefited in self-esteem, confidence and motivation attributed this to one-to-one multidisciplinary coaching and home visits. Further research should test whether including/excluding more intensive programme elements based on individual need might improve cost-effectiveness.

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http://hdl.handle.net/10453/142445