Reimagining disability: the screening of donor gametes and embryos in IVF

Karpin, I; Mykitiuk, R

Reimagining disability: the screening of donor gametes and embryos in IVF

Karpin, I

Mykitiuk, R

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Publisher:: Oxford University Press (OUP)
Publication Type:: Journal Article
Citation:: Journal of Law and the Biosciences, 2021, pp. lsaa067
Issue Date:: 2021-01-01

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Field	Value	Language
dc.contributor.author	Karpin, I https://orcid.org/0000-0001-9326-3421
dc.contributor.author	Mykitiuk, R
dc.date.accessioned	2021-06-17T05:56:11Z
dc.date.available	2021-06-17T05:56:11Z
dc.date.issued	2021-01-01
dc.identifier.citation	Journal of Law and the Biosciences, 2021, pp. lsaa067
dc.identifier.issn	2053-9711
dc.identifier.issn	2053-9711
dc.identifier.uri	http://hdl.handle.net/10453/149594
dc.description.abstract	In this article, we examine how disability is figured in the imaginaries that are given shape by the reproductive projects and parental desires facilitated by the bio-medical techniques and practices of assisted reproductive technologies (ARTs) that involve selection and screening for disability. We investigate how some users of ARTs understand and deploy these imaginaries in ways that are both concordant with and resistant to the understanding of disability embedded within the broader sociotechnical and social imaginaries. It is through users’ deliberations, choices, responses, and expectations that we come to understand how these imaginaries are perpetuated and resisted, and how maintaining them is also dependent upon the individual actions and actors who have internalized them. Our examination is grounded in a close analysis of a small selection of interviews drawn from data gathered during a 4-year project funded by the Australian Research Council exploring the Australian experience of cross border reproductive treatment, looking particularly at surrogacy, and gamete and embryo donation. Our interviewees were individuals or couples who used gamete or embryo donation, coupled at times with surrogacy in attempting to have a child. Participants discussed their views on testing, screening, and future disability.</jats:p>
dc.language	en
dc.publisher	Oxford University Press (OUP)
dc.relation	http://purl.org/au-research/grants/arc/DP150101057
dc.relation.ispartof	Journal of Law and the Biosciences
dc.relation.isbasedon	10.1093/jlb/lsaa067
dc.rights	©TheAuthor(s)2020.PublishedbyOxfordUniversityPressonbehalfofDukeUniversitySchoolofLaw,HarvardLaw School, Oxford University Press, and Stanford Law School.This is an Open Access article distributed underthe terms of the Creative Commons Attribution NonCommercial-NoDerivs licence ( ), which permits non-commercial reproduction and distribution of the work, in anymedium, provided the original work is not altered or transformed in any way, and that the work is properly cited.
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1801 Law, 2201 Applied Ethics
dc.title	Reimagining disability: the screening of donor gametes and embryos in IVF
dc.type	Journal Article
utslib.for	1801 Law
utslib.for	2201 Applied Ethics
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Law
pubs.organisational-group	/University of Technology Sydney/e-Press
pubs.organisational-group	/University of Technology Sydney/Strength - HJ - Health Justice
utslib.copyright.status	open_access	*
pubs.consider-herdc	true
dc.date.updated	2021-06-17T05:56:09Z
pubs.publication-status	Published online

Abstract:

In this article, we examine how disability is figured in the imaginaries that are given shape by the reproductive projects and parental desires facilitated by the bio-medical techniques and practices of assisted reproductive technologies (ARTs) that involve selection and screening for disability. We investigate how some users of ARTs understand and deploy these imaginaries in ways that are both concordant with and resistant to the understanding of disability embedded within the broader sociotechnical and social imaginaries. It is through users’ deliberations, choices, responses, and expectations that we come to understand how these imaginaries are perpetuated and resisted, and how maintaining them is also dependent upon the individual actions and actors who have internalized them. Our examination is grounded in a close analysis of a small selection of interviews drawn from data gathered during a 4-year project funded by the Australian Research Council exploring the Australian experience of cross border reproductive treatment, looking particularly at surrogacy, and gamete and embryo donation. Our interviewees were individuals or couples who used gamete or embryo donation, coupled at times with surrogacy in attempting to have a child. Participants discussed their views on testing, screening, and future disability.

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http://hdl.handle.net/10453/149594