Management of ‘disorders of sex development’/intersex variations in children: Results from a freedom of information exercise

Garland, F; Thomson, M; Travis, M; Warburton, J

Management of ‘disorders of sex development’/intersex variations in children: Results from a freedom of information exercise

Garland, F Thomson, M

Travis, M Warburton, J

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Publisher:: Sage
Publication Type:: Journal Article
Citation:: Medical Law International, 2021, 21, (2), pp. 116-146
Issue Date:: 2021-06-17

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Field	Value	Language
dc.contributor.author	Garland, F
dc.contributor.author	Thomson, M https://orcid.org/0000-0002-1570-2481
dc.contributor.author	Travis, M
dc.contributor.author	Warburton, J
dc.date.accessioned	2021-10-26T02:02:05Z
dc.date.available	2021-10-26T02:02:05Z
dc.date.issued	2021-06-17
dc.identifier.citation	Medical Law International, 2021, 21, (2), pp. 116-146
dc.identifier.issn	0968-5332
dc.identifier.issn	2047-9441
dc.identifier.uri	http://hdl.handle.net/10453/151213
dc.description.abstract	Non-therapeutic medical interventions on the bodies of children born with disorders of sex development (DSD)/intersex variations have been subject to increasing critical scrutiny. In response to recent criticism directed at the United Kingdom, and early moves to consider reform, we report on a freedom of information exercise that sought to evaluate whether National Health Service England is meeting international standards on optimal clinical management of DSD/intersex variations. The study explored what medical protocols are being followed to help inform potential reform, particularly with regard to non-therapeutic surgery. While the exercise revealed limited examples of promising practice, current protocols in the majority of Trusts appear unlikely to meet the complex needs of these children. We identify areas where significant improvement is needed, including data management, consistency in guideline use, composition of multidisciplinary teams and addressing disciplinary hierarchies within teams. These concerns sharpen criticisms of the lack of recognition of children’s rights in this context.
dc.language	en
dc.publisher	Sage
dc.relation.ispartof	Medical Law International
dc.relation.isbasedon	10.1177/09685332211003636
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1801 Law, 2201 Applied Ethics
dc.subject.classification	Law
dc.title	Management of ‘disorders of sex development’/intersex variations in children: Results from a freedom of information exercise
dc.type	Journal Article
utslib.citation.volume	21
utslib.for	1801 Law
utslib.for	2201 Applied Ethics
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Law
utslib.copyright.status	closed_access	*
pubs.consider-herdc	true
dc.date.updated	2021-10-26T02:02:04Z
pubs.issue	2
pubs.publication-status	Published
pubs.volume	21
utslib.citation.issue	2

Abstract:

Non-therapeutic medical interventions on the bodies of children born with disorders of sex development (DSD)/intersex variations have been subject to increasing critical scrutiny. In response to recent criticism directed at the United Kingdom, and early moves to consider reform, we report on a freedom of information exercise that sought to evaluate whether National Health Service England is meeting international standards on optimal clinical management of DSD/intersex variations. The study explored what medical protocols are being followed to help inform potential reform, particularly with regard to non-therapeutic surgery. While the exercise revealed limited examples of promising practice, current protocols in the majority of Trusts appear unlikely to meet the complex needs of these children. We identify areas where significant improvement is needed, including data management, consistency in guideline use, composition of multidisciplinary teams and addressing disciplinary hierarchies within teams. These concerns sharpen criticisms of the lack of recognition of children’s rights in this context.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/151213