Prostate cancer survivorship essentials framework: guidelines for practitioners.

Dunn, J; Green, A; Ralph, N; Newton, RU; Kneebone, A; Frydenberg, M; Chambers, SK

Prostate cancer survivorship essentials framework: guidelines for practitioners.

Dunn, J Green, A

Ralph, N

Newton, RU Kneebone, A Frydenberg, M Chambers, SK

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Publisher:: Wiley
Publication Type:: Journal Article
Citation:: BJU International, 2021
Issue Date:: 2021

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Field	Value	Language
dc.contributor.author	Dunn, J
dc.contributor.author	Green, A https://orcid.org/0000-0002-7541-3665
dc.contributor.author	Ralph, N https://orcid.org/0000-0002-7404-9996
dc.contributor.author	Newton, RU
dc.contributor.author	Kneebone, A
dc.contributor.author	Frydenberg, M
dc.contributor.author	Chambers, SK
dc.date.accessioned	2021-12-13T01:53:42Z
dc.date.available	2021-12-13T01:53:42Z
dc.date.issued	2021
dc.identifier.citation	BJU International, 2021
dc.identifier.issn	1464-4096
dc.identifier.issn	1464-410X
dc.identifier.uri	http://hdl.handle.net/10453/152270
dc.description.abstract	OBJECTIVE:To develop contemporary and inclusive prostate cancer survivorship guidelines for the Australian setting. PARTICIPANTS AND METHODS:A four-round iterative policy Delphi was used, with a 47-member expert panel that included leaders from key Australian and New Zealand clinical and community groups and consumers from diverse backgrounds, including LGBTQIA people and those from regional, rural and urban settings. The first three rounds were undertaken using an online survey (94-96% response) followed by a fourth final face-to-face panel meeting. Descriptors for men's current prostate cancer survivorship experience were generated, along with survivorship elements that were assessed for importance and feasibility. From these, survivorship domains were generated for consideration. RESULTS:Six key descriptors for men's current prostate cancer survivorship experience that emerged were: dealing with side effects; challenging; medically focused; uncoordinated; unmet needs; and anxious. In all, 26 survivorship elements were identified within six domains: health promotion and advocacy; shared management; vigilance; personal agency; care coordination; and evidence-based survivorship interventions. Consensus was high for all domains as being essential. All elements were rated high on importance but consensus was mixed for feasibility. Seven priorities were derived for immediate action. CONCLUSION:The policy Delphi allowed a uniquely inclusive expert clinical and community group to develop prostate cancer survivorship domains that extend beyond traditional healthcare parameters. These domains provide guidance for policymakers, clinicians, community and consumers on what is essential for step change in prostate cancer survivorship outcomes.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	BJU International
dc.relation.isbasedon	10.1111/bju.15159
dc.rights	This is an open access article under the terms of the Creative Commons Attribution-NonCommercial License, which permits use,distribution and reproduction in any medium, provided the original work is properly cited and is not used for commercial purposes
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1103 Clinical Sciences
dc.subject.classification	Urology & Nephrology
dc.title	Prostate cancer survivorship essentials framework: guidelines for practitioners.
dc.type	Journal Article
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1103 Clinical Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Research Centres
utslib.copyright.status	open_access	*
pubs.consider-herdc	true
dc.date.updated	2021-12-13T01:53:41Z
pubs.publication-status	Published

Abstract:

OBJECTIVE:To develop contemporary and inclusive prostate cancer survivorship guidelines for the Australian setting. PARTICIPANTS AND METHODS:A four-round iterative policy Delphi was used, with a 47-member expert panel that included leaders from key Australian and New Zealand clinical and community groups and consumers from diverse backgrounds, including LGBTQIA people and those from regional, rural and urban settings. The first three rounds were undertaken using an online survey (94-96% response) followed by a fourth final face-to-face panel meeting. Descriptors for men's current prostate cancer survivorship experience were generated, along with survivorship elements that were assessed for importance and feasibility. From these, survivorship domains were generated for consideration. RESULTS:Six key descriptors for men's current prostate cancer survivorship experience that emerged were: dealing with side effects; challenging; medically focused; uncoordinated; unmet needs; and anxious. In all, 26 survivorship elements were identified within six domains: health promotion and advocacy; shared management; vigilance; personal agency; care coordination; and evidence-based survivorship interventions. Consensus was high for all domains as being essential. All elements were rated high on importance but consensus was mixed for feasibility. Seven priorities were derived for immediate action. CONCLUSION:The policy Delphi allowed a uniquely inclusive expert clinical and community group to develop prostate cancer survivorship domains that extend beyond traditional healthcare parameters. These domains provide guidance for policymakers, clinicians, community and consumers on what is essential for step change in prostate cancer survivorship outcomes.

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http://hdl.handle.net/10453/152270