Use of the My Health Record by people with communication disability in Australia: A review to inform the design and direction of future research.

Hemsley, B; Georgiou, A; Carter, R; Hill, S; Higgins, I; van Vliet, P; Balandin, S

Use of the My Health Record by people with communication disability in Australia: A review to inform the design and direction of future research.

Hemsley, B

Georgiou, A Carter, R Hill, S Higgins, I van Vliet, P Balandin, S

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Publisher:: SAGE PUBLICATIONS INC
Publication Type:: Journal Article
Citation:: Health Inf Manag, 2016, 45, (3), pp. 107-115
Issue Date:: 2016-12

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Field	Value	Language
dc.contributor.author	Hemsley, B https://orcid.org/0000-0002-6255-3140
dc.contributor.author	Georgiou, A
dc.contributor.author	Carter, R
dc.contributor.author	Hill, S
dc.contributor.author	Higgins, I
dc.contributor.author	van Vliet, P
dc.contributor.author	Balandin, S
dc.date.accessioned	2022-04-18T23:50:43Z
dc.date.available	2016-05-05
dc.date.available	2022-04-18T23:50:43Z
dc.date.issued	2016-12
dc.identifier.citation	Health Inf Manag, 2016, 45, (3), pp. 107-115
dc.identifier.issn	1322-4913
dc.identifier.issn	1833-3575
dc.identifier.uri	http://hdl.handle.net/10453/156366
dc.description.abstract	BACKGROUND: People with communication disability often struggle to convey their health information to multiple service providers and are at increased risk of adverse health outcomes related to the poor exchange of health information. OBJECTIVE: The purpose of this article was to (a) review the literature informing future research on the Australian personally controlled electronic health record, 'My Health Record' (MyHR), specifically to include people with communication disability and their family members or service providers, and (b) to propose a range of suitable methodologies that might be applied in research to inform training, policy and practice in relation to supporting people with communication disability and their representatives to engage in using MyHR. METHOD: The authors reviewed the literature and, with a cross-disciplinary perspective, considered ways to apply sociotechnical, health informatics, and inclusive methodologies to research on MyHR use by adults with communication disability. RESEARCH OUTCOMES: This article outlines a range of research methods suitable for investigating the use of MyHR by people who have communication disability associated with a range of acquired or lifelong health conditions, and their family members, and direct support workers. CONCLUSION: In planning the allocation of funds towards the health and well-being of adults with disabilities, both disability and health service providers must consider the supports needed for people with communication disability to use MyHR. There is an urgent need to focus research efforts on MyHR in populations with communication disability, who struggle to communicate their health information across multiple health and disability service providers. The design of studies and priorities for future research should be set in consultation with people with communication disability and their representatives.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	SAGE PUBLICATIONS INC
dc.relation.ispartof	Health Inf Manag
dc.relation.isbasedon	10.1177/1833358316652060
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	0806 Information Systems, 0807 Library and Information Studies, 1117 Public Health and Health Services
dc.subject.mesh	Australia
dc.subject.mesh	Communication Disorders
dc.subject.mesh	Disabled Persons
dc.subject.mesh	Electronic Health Records
dc.subject.mesh	Humans
dc.subject.mesh	Research Design
dc.subject.mesh	Humans
dc.subject.mesh	Communication Disorders
dc.subject.mesh	Research Design
dc.subject.mesh	Disabled Persons
dc.subject.mesh	Australia
dc.subject.mesh	Electronic Health Records
dc.title	Use of the My Health Record by people with communication disability in Australia: A review to inform the design and direction of future research.
dc.type	Journal Article
utslib.citation.volume	45
utslib.location.activity	Australia
utslib.for	0806 Information Systems
utslib.for	0807 Library and Information Studies
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
utslib.copyright.status	closed_access	*
dc.date.updated	2022-04-18T23:50:42Z
pubs.issue	3
pubs.publication-status	Published
pubs.volume	45
utslib.citation.issue	3

Abstract:

BACKGROUND: People with communication disability often struggle to convey their health information to multiple service providers and are at increased risk of adverse health outcomes related to the poor exchange of health information. OBJECTIVE: The purpose of this article was to (a) review the literature informing future research on the Australian personally controlled electronic health record, 'My Health Record' (MyHR), specifically to include people with communication disability and their family members or service providers, and (b) to propose a range of suitable methodologies that might be applied in research to inform training, policy and practice in relation to supporting people with communication disability and their representatives to engage in using MyHR. METHOD: The authors reviewed the literature and, with a cross-disciplinary perspective, considered ways to apply sociotechnical, health informatics, and inclusive methodologies to research on MyHR use by adults with communication disability. RESEARCH OUTCOMES: This article outlines a range of research methods suitable for investigating the use of MyHR by people who have communication disability associated with a range of acquired or lifelong health conditions, and their family members, and direct support workers. CONCLUSION: In planning the allocation of funds towards the health and well-being of adults with disabilities, both disability and health service providers must consider the supports needed for people with communication disability to use MyHR. There is an urgent need to focus research efforts on MyHR in populations with communication disability, who struggle to communicate their health information across multiple health and disability service providers. The design of studies and priorities for future research should be set in consultation with people with communication disability and their representatives.

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http://hdl.handle.net/10453/156366