Public trust and global biobank networks.

Dive, L; Critchley, C; Otlowski, M; Mason, P; Wiersma, M; Light, E; Stewart, C; Kerridge, I; Lipworth, W

Public trust and global biobank networks.

Dive, L

Critchley, C Otlowski, M Mason, P Wiersma, M Light, E Stewart, C Kerridge, I Lipworth, W

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Publisher:: BMC
Publication Type:: Journal Article
Citation:: BMC Med Ethics, 2020, 21, (1), pp. 73
Issue Date:: 2020-08-15

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Field	Value	Language
dc.contributor.author	Dive, L https://orcid.org/0000-0001-6655-5138
dc.contributor.author	Critchley, C
dc.contributor.author	Otlowski, M
dc.contributor.author	Mason, P
dc.contributor.author	Wiersma, M
dc.contributor.author	Light, E
dc.contributor.author	Stewart, C
dc.contributor.author	Kerridge, I
dc.contributor.author	Lipworth, W
dc.date.accessioned	2022-05-16T02:36:58Z
dc.date.available	2020-08-05
dc.date.available	2022-05-16T02:36:58Z
dc.date.issued	2020-08-15
dc.identifier.citation	BMC Med Ethics, 2020, 21, (1), pp. 73
dc.identifier.issn	1472-6939
dc.identifier.issn	1472-6939
dc.identifier.uri	http://hdl.handle.net/10453/157407
dc.description.abstract	BACKGROUND: Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust. METHODS: We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust. RESULTS: Our results indicate a generally high level of trust in biobanks and in medical research more broadly. Key factors that can reduce perceived trustworthiness of biobanks are commercialisation and involvement in global networking. CONCLUSIONS: We conclude that robust ethical oversight and governance standards can both promote trust in global biobanking and ensure that this trust is warranted.
dc.format	Electronic
dc.language	eng
dc.publisher	BMC
dc.relation.ispartof	BMC Med Ethics
dc.relation.isbasedon	10.1186/s12910-020-00515-0
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	2201 Applied Ethics
dc.subject.classification	Applied Ethics
dc.subject.mesh	Australia
dc.subject.mesh	Biological Specimen Banks
dc.subject.mesh	Biomedical Research
dc.subject.mesh	Humans
dc.subject.mesh	Public Opinion
dc.subject.mesh	Trust
dc.subject.mesh	Humans
dc.subject.mesh	Trust
dc.subject.mesh	Biomedical Research
dc.subject.mesh	Public Opinion
dc.subject.mesh	Biological Specimen Banks
dc.subject.mesh	Australia
dc.title	Public trust and global biobank networks.
dc.type	Journal Article
utslib.citation.volume	21
utslib.location.activity	England
utslib.for	2201 Applied Ethics
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Genetic Counselling
utslib.copyright.status	open_access	*
dc.date.updated	2022-05-16T02:36:55Z
pubs.issue	1
pubs.publication-status	Published online
pubs.volume	21
utslib.citation.issue	1

Abstract:

BACKGROUND: Biobanks provide an important foundation for genomic and personalised medicine. In order to enhance their scientific power and scope, they are increasingly becoming part of national or international networks. Public trust is essential in fostering public engagement, encouraging donation to, and facilitating public funding for biobanks. Globalisation and networking of biobanking may challenge this trust. METHODS: We report the results of an Australian study examining public attitudes to the networking and globalisation of biobanks. The study used quantitative and qualitative methods in conjunction with bioethical analysis in order to determine factors that may contribute to, and threaten, trust. RESULTS: Our results indicate a generally high level of trust in biobanks and in medical research more broadly. Key factors that can reduce perceived trustworthiness of biobanks are commercialisation and involvement in global networking. CONCLUSIONS: We conclude that robust ethical oversight and governance standards can both promote trust in global biobanking and ensure that this trust is warranted.

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http://hdl.handle.net/10453/157407