Two Studies on Twitter Networks and Tweet Content in Relation to Amyotrophic Lateral Sclerosis (ALS): Conversation, Information, and 'Diary of a Daily Life'.

Hemsley, B; Palmer, S

Two Studies on Twitter Networks and Tweet Content in Relation to Amyotrophic Lateral Sclerosis (ALS): Conversation, Information, and 'Diary of a Daily Life'.

Hemsley, B

Palmer, S

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Publisher:: IOS PRESS
Publication Type:: Journal Article
Citation:: Stud Health Technol Inform, 2016, 227, pp. 41-47
Issue Date:: 2016

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Field	Value	Language
dc.contributor.author	Hemsley, B https://orcid.org/0000-0002-6255-3140
dc.contributor.author	Palmer, S
dc.contributor.editor	Georgiou, A
dc.contributor.editor	Schaper, LK
dc.contributor.editor	Whetton, S
dc.date.accessioned	2022-07-23T08:09:37Z
dc.date.available	2022-07-23T08:09:37Z
dc.date.issued	2016
dc.identifier.citation	Stud Health Technol Inform, 2016, 227, pp. 41-47
dc.identifier.isbn	9781614996651
dc.identifier.issn	0926-9630
dc.identifier.issn	1879-8365
dc.identifier.uri	http://hdl.handle.net/10453/159134
dc.description.abstract	To date, there is no research examining how adults with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND) and severe communication disability use Twitter, nor the use of Twitter in relation to ALS/MND beyond its use for fundraising and raising awareness. In this paper we (a) outline a rationale for the use of Twitter as a method of communication and information exchange for adults with ALS/MND, (b) detail multiple qualitative and quantitative methods used to analyse Twitter networks and tweet content in the our studies, and (c) present the results of two studies designed to provide insights on the use of Twitter by an adult with ALS/MND and by #ALS and #MND hashtag communities in Twitter. We will also discuss findings across the studies, implications for health service providers in Twitter, and directions for future Twitter research in relation to ALS/MND.
dc.format	Print
dc.language	eng
dc.publisher	IOS PRESS
dc.relation.ispartof	Stud Health Technol Inform
dc.relation.isbasedon	10.3233/978-1-61499-666-8-41
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	0807 Library and Information Studies, 1117 Public Health and Health Services
dc.subject.classification	Medical Informatics
dc.subject.mesh	Amyotrophic Lateral Sclerosis
dc.subject.mesh	Communication
dc.subject.mesh	Communication Disorders
dc.subject.mesh	Emotions
dc.subject.mesh	Humans
dc.subject.mesh	Information Dissemination
dc.subject.mesh	Middle Aged
dc.subject.mesh	Social Media
dc.subject.mesh	Humans
dc.subject.mesh	Amyotrophic Lateral Sclerosis
dc.subject.mesh	Communication Disorders
dc.subject.mesh	Communication
dc.subject.mesh	Information Dissemination
dc.subject.mesh	Emotions
dc.subject.mesh	Middle Aged
dc.subject.mesh	Social Media
dc.title	Two Studies on Twitter Networks and Tweet Content in Relation to Amyotrophic Lateral Sclerosis (ALS): Conversation, Information, and 'Diary of a Daily Life'.
dc.type	Journal Article
utslib.citation.volume	227
utslib.location.activity	Netherlands
utslib.for	0807 Library and Information Studies
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
utslib.copyright.status	closed_access	*
dc.date.updated	2022-07-23T08:09:36Z
pubs.publication-status	Published
pubs.volume	227

Abstract:

To date, there is no research examining how adults with Amyotrophic Lateral Sclerosis (ALS) or Motor Neurone Disease (MND) and severe communication disability use Twitter, nor the use of Twitter in relation to ALS/MND beyond its use for fundraising and raising awareness. In this paper we (a) outline a rationale for the use of Twitter as a method of communication and information exchange for adults with ALS/MND, (b) detail multiple qualitative and quantitative methods used to analyse Twitter networks and tweet content in the our studies, and (c) present the results of two studies designed to provide insights on the use of Twitter by an adult with ALS/MND and by #ALS and #MND hashtag communities in Twitter. We will also discuss findings across the studies, implications for health service providers in Twitter, and directions for future Twitter research in relation to ALS/MND.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/159134