The Liminal and the Parallax: Living and Dying at the End of Life.
- Publisher:
- SAGE Publications
- Publication Type:
- Journal Article
- Citation:
- Qualitative Health Research, 2017, 27, (5), pp. 623-633
- Issue Date:
- 2017-04
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1049732315618938.pdf | 99.31 kB | Adobe PDF |
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Full metadata record
Field | Value | Language |
---|---|---|
dc.contributor.author | MacArtney, JI | |
dc.contributor.author | Broom, A | |
dc.contributor.author | Kirby, E | |
dc.contributor.author |
Good, P https://orcid.org/0000-0002-8198-0375 |
|
dc.contributor.author | Wootton, J | |
dc.date.accessioned | 2022-09-12T02:28:42Z | |
dc.date.available | 2022-09-12T02:28:42Z | |
dc.date.issued | 2017-04 | |
dc.identifier.citation | Qualitative Health Research, 2017, 27, (5), pp. 623-633 | |
dc.identifier.issn | 1049-7323 | |
dc.identifier.issn | 1552-7557 | |
dc.identifier.uri | http://hdl.handle.net/10453/161735 | |
dc.description.abstract | Transitions to palliative care can involve a shift in philosophy from life-prolonging to life-enhancing care. People living with a life-limiting illness will often receive palliative care through specialist outpatient clinics, while also being cared for by another medical specialty. Experiences of this point of care have been described as being liminal in character, that is, somewhere between living and dying. Drawing on experiences of illness and care taken from semistructured interviews with 30 palliative care outpatients in Australia, we found that this phase was frequently understood as concurrently living and dying. We suggest that this is a "parallax experience" involving narratives of a coherent linear self that is able to understand both realities, in a way that acknowledges the benefits of being multiple. These findings have significant implications for the ways in which palliative care is understood and how the self and subjectivity might be conceptualized at the end of life. | |
dc.format | Print-Electronic | |
dc.language | eng | |
dc.publisher | SAGE Publications | |
dc.relation.ispartof | Qualitative Health Research | |
dc.relation.isbasedon | 10.1177/1049732315618938 | |
dc.rights | info:eu-repo/semantics/closedAccess | |
dc.subject | 11 Medical and Health Sciences, 16 Studies in Human Society, 17 Psychology and Cognitive Sciences | |
dc.subject.classification | Nursing | |
dc.subject.mesh | Adult | |
dc.subject.mesh | Aged | |
dc.subject.mesh | Aged, 80 and over | |
dc.subject.mesh | Attitude to Death | |
dc.subject.mesh | Australia | |
dc.subject.mesh | Female | |
dc.subject.mesh | Humans | |
dc.subject.mesh | Male | |
dc.subject.mesh | Middle Aged | |
dc.subject.mesh | Palliative Care | |
dc.subject.mesh | Patients | |
dc.subject.mesh | Qualitative Research | |
dc.subject.mesh | Terminal Care | |
dc.subject.mesh | Adult | |
dc.subject.mesh | Aged | |
dc.subject.mesh | Aged, 80 and over | |
dc.subject.mesh | Attitude to Death | |
dc.subject.mesh | Australia | |
dc.subject.mesh | Female | |
dc.subject.mesh | Humans | |
dc.subject.mesh | Male | |
dc.subject.mesh | Middle Aged | |
dc.subject.mesh | Palliative Care | |
dc.subject.mesh | Patients | |
dc.subject.mesh | Qualitative Research | |
dc.subject.mesh | Terminal Care | |
dc.subject.mesh | Humans | |
dc.subject.mesh | Palliative Care | |
dc.subject.mesh | Terminal Care | |
dc.subject.mesh | Attitude to Death | |
dc.subject.mesh | Qualitative Research | |
dc.subject.mesh | Adult | |
dc.subject.mesh | Aged | |
dc.subject.mesh | Aged, 80 and over | |
dc.subject.mesh | Middle Aged | |
dc.subject.mesh | Patients | |
dc.subject.mesh | Australia | |
dc.subject.mesh | Female | |
dc.subject.mesh | Male | |
dc.title | The Liminal and the Parallax: Living and Dying at the End of Life. | |
dc.type | Journal Article | |
utslib.citation.volume | 27 | |
utslib.location.activity | United States | |
utslib.for | 11 Medical and Health Sciences | |
utslib.for | 16 Studies in Human Society | |
utslib.for | 17 Psychology and Cognitive Sciences | |
pubs.organisational-group | /University of Technology Sydney | |
pubs.organisational-group | /University of Technology Sydney/Faculty of Health | |
pubs.organisational-group | /University of Technology Sydney/Faculty of Health/IMPACCT | |
utslib.copyright.status | closed_access | * |
pubs.consider-herdc | false | |
dc.date.updated | 2022-09-12T02:28:40Z | |
pubs.issue | 5 | |
pubs.publication-status | Published | |
pubs.volume | 27 | |
utslib.citation.issue | 5 |
Abstract:
Transitions to palliative care can involve a shift in philosophy from life-prolonging to life-enhancing care. People living with a life-limiting illness will often receive palliative care through specialist outpatient clinics, while also being cared for by another medical specialty. Experiences of this point of care have been described as being liminal in character, that is, somewhere between living and dying. Drawing on experiences of illness and care taken from semistructured interviews with 30 palliative care outpatients in Australia, we found that this phase was frequently understood as concurrently living and dying. We suggest that this is a "parallax experience" involving narratives of a coherent linear self that is able to understand both realities, in a way that acknowledges the benefits of being multiple. These findings have significant implications for the ways in which palliative care is understood and how the self and subjectivity might be conceptualized at the end of life.
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