Amplifying patient voices amid pandemic: Perspectives on tracheostomy care, communication, and connection.

Pandian, V; Hopkins, BS; Yang, CJ; Ward, E; Sperry, ED; Khalil, O; Gregson, P; Bonakdar, L; Messer, J; Messer, S; Chessels, G; Bosworth, B; Randall, DM; Freeman-Sanderson, A; McGrath, BA; Brenner, MJ

Amplifying patient voices amid pandemic: Perspectives on tracheostomy care, communication, and connection.

Pandian, V Hopkins, BS Yang, CJ Ward, E Sperry, ED Khalil, O Gregson, P Bonakdar, L Messer, J Messer, S Chessels, G Bosworth, B Randall, DM Freeman-Sanderson, A

McGrath, BA Brenner, MJ

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Publisher:: WB Saunders
Publication Type:: Journal Article
Citation:: American Journal of Otolaryngology: Head and Neck Medicine and Surgery, 2022, 43, (5), pp. 1-16
Issue Date:: 2022-06-07

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Field	Value	Language
dc.contributor.author	Pandian, V
dc.contributor.author	Hopkins, BS
dc.contributor.author	Yang, CJ
dc.contributor.author	Ward, E
dc.contributor.author	Sperry, ED
dc.contributor.author	Khalil, O
dc.contributor.author	Gregson, P
dc.contributor.author	Bonakdar, L
dc.contributor.author	Messer, J
dc.contributor.author	Messer, S
dc.contributor.author	Chessels, G
dc.contributor.author	Bosworth, B
dc.contributor.author	Randall, DM
dc.contributor.author	Freeman-Sanderson, A https://orcid.org/0000-0003-2161-6421
dc.contributor.author	McGrath, BA
dc.contributor.author	Brenner, MJ
dc.date.accessioned	2022-09-27T03:11:08Z
dc.date.available	2022-05-30
dc.date.available	2022-09-27T03:11:08Z
dc.date.issued	2022-06-07
dc.identifier.citation	American Journal of Otolaryngology: Head and Neck Medicine and Surgery, 2022, 43, (5), pp. 1-16
dc.identifier.issn	0196-0709
dc.identifier.issn	1532-818X
dc.identifier.uri	http://hdl.handle.net/10453/162115
dc.description.abstract	OBJECTIVE: To investigate perspectives of patients, family members, caregivers (PFC), and healthcare professionals (HCP) on tracheostomy care during the COVID-19 pandemic. METHODS: The cross-sectional survey investigating barriers and facilitators to tracheostomy care was collaboratively developed by patients, family members, nurses, speech-language pathologists, respiratory care practitioners, physicians, and surgeons. The survey was distributed to the Global Tracheostomy Collaborative's learning community, and responses were analyzed. RESULTS: Survey respondents (n = 191) from 17 countries included individuals with a tracheostomy (85 [45 %]), families/caregivers (43 [22 %]), and diverse HCP (63 [33.0 %]). Overall, 94 % of respondents reported concern that patients with tracheostomy were at increased risk of critical illness from SARS-CoV-2 infection and COVID-19; 93 % reported fear or anxiety. With respect to prioritization of care, 38 % of PFC versus 16 % of HCP reported concern that patients with tracheostomies might not be valued or prioritized (p = 0.002). Respondents also differed in fear of contracting COVID-19 (69 % PFC vs. 49 % HCP group, p = 0.009); concern for hospitalization (55.5 % PFC vs. 27 % HCP, p < 0.001); access to medical personnel (34 % PFC vs. 14 % HCP, p = 0.005); and concern about canceled appointments (62 % PFC vs. 41 % HCP, p = 0.01). Respondents from both groups reported severe stress and fatigue, sleep deprivation, lack of breaks, and lack of support (70 % PFC vs. 65 % HCP, p = 0.54). Virtual telecare seldom met perceived needs. CONCLUSION: PFC with a tracheostomy perceived most risks more acutely than HCP in this global sample. Broad stakeholder engagement is necessary to achieve creative, patient-driven solutions to maintain connection, communication, and access for patients with a tracheostomy.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	WB Saunders
dc.relation.ispartof	American Journal of Otolaryngology: Head and Neck Medicine and Surgery
dc.relation.isbasedon	10.1016/j.amjoto.2022.103525
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences
dc.subject.classification	Otorhinolaryngology
dc.title	Amplifying patient voices amid pandemic: Perspectives on tracheostomy care, communication, and connection.
dc.type	Journal Article
utslib.citation.volume	43
utslib.location.activity	United States
utslib.for	1103 Clinical Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2022-09-27T03:10:59Z
pubs.issue	5
pubs.publication-status	Published
pubs.volume	43
utslib.citation.issue	5

Abstract:

OBJECTIVE: To investigate perspectives of patients, family members, caregivers (PFC), and healthcare professionals (HCP) on tracheostomy care during the COVID-19 pandemic. METHODS: The cross-sectional survey investigating barriers and facilitators to tracheostomy care was collaboratively developed by patients, family members, nurses, speech-language pathologists, respiratory care practitioners, physicians, and surgeons. The survey was distributed to the Global Tracheostomy Collaborative's learning community, and responses were analyzed. RESULTS: Survey respondents (n = 191) from 17 countries included individuals with a tracheostomy (85 [45 %]), families/caregivers (43 [22 %]), and diverse HCP (63 [33.0 %]). Overall, 94 % of respondents reported concern that patients with tracheostomy were at increased risk of critical illness from SARS-CoV-2 infection and COVID-19; 93 % reported fear or anxiety. With respect to prioritization of care, 38 % of PFC versus 16 % of HCP reported concern that patients with tracheostomies might not be valued or prioritized (p = 0.002). Respondents also differed in fear of contracting COVID-19 (69 % PFC vs. 49 % HCP group, p = 0.009); concern for hospitalization (55.5 % PFC vs. 27 % HCP, p < 0.001); access to medical personnel (34 % PFC vs. 14 % HCP, p = 0.005); and concern about canceled appointments (62 % PFC vs. 41 % HCP, p = 0.01). Respondents from both groups reported severe stress and fatigue, sleep deprivation, lack of breaks, and lack of support (70 % PFC vs. 65 % HCP, p = 0.54). Virtual telecare seldom met perceived needs. CONCLUSION: PFC with a tracheostomy perceived most risks more acutely than HCP in this global sample. Broad stakeholder engagement is necessary to achieve creative, patient-driven solutions to maintain connection, communication, and access for patients with a tracheostomy.

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http://hdl.handle.net/10453/162115