The healthcare experiences of women with cardiac disease in pregnancy and postpartum: A qualitative study.

Hutchens, J; Frawley, J; Sullivan, EA

The healthcare experiences of women with cardiac disease in pregnancy and postpartum: A qualitative study.

Hutchens, J Frawley, J

Sullivan, EA

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Publisher:: Wiley Open Access
Publication Type:: Journal Article
Citation:: Health Expectations, 2022, 25, (4), pp. 1872-1881
Issue Date:: 2022-08

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Field	Value	Language
dc.contributor.author	Hutchens, J
dc.contributor.author	Frawley, J https://orcid.org/0000-0001-6037-0140
dc.contributor.author	Sullivan, EA
dc.date.accessioned	2022-10-10T03:41:20Z
dc.date.available	2022-05-11
dc.date.available	2022-10-10T03:41:20Z
dc.date.issued	2022-08
dc.identifier.citation	Health Expectations, 2022, 25, (4), pp. 1872-1881
dc.identifier.issn	1369-6513
dc.identifier.issn	1369-7625
dc.identifier.uri	http://hdl.handle.net/10453/162428
dc.description.abstract	INTRODUCTION: Cardiac disease affects an estimated 1%-4% of all pregnancies and is a leading cause of maternal morbidity and mortality. There is a lack of data on the healthcare experiences of affected women to inform health service delivery and person-centred care. This study sought to explore and understand the healthcare experiences of women with cardiac disease in pregnancy and postpartum. METHODS: This qualitative study used semi-structured interviews with women who had cardiac disease in pregnancy or the first 12 months postpartum. Data were analysed using thematic analysis. RESULTS: Participants were 25 women with pre-existing or newly diagnosed acquired, genetic and congenital cardiac disease. Analysis of the interviews highlighted the discrepancy between care aspirations and experiences. The participants had a wide range of cardiac diseases and timing of diagnoses, but had similar healthcare experiences of being dismissed, not receiving the information they required, lack of continuity of care and clinical guidelines and of feeling out of place within a healthcare system that did not accommodate their combined needs as a mother and a cardiac patient. CONCLUSION: This study identified a lack of person-centred care and responsiveness of the healthcare system in providing fit-for-purpose healthcare for women with complex disease who are pregnant or new mothers. In particular, cardiac and maternity care providers have an opportunity to listen to women who are the experts on their emergent healthcare needs, contributing to development of the knowledge base on the healthcare experiences of having cardiac disease in pregnancy and postpartum. PATIENT OR PUBLIC CONTRIBUTION: Public and patient input into the value and design of the study was gained through NSW Heart Foundation forums, including the Heart Foundation's women's patient group.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley Open Access
dc.relation.ispartof	Health Expectations
dc.relation.isbasedon	10.1111/hex.13532
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1110 Nursing, 1117 Public Health and Health Services, 1701 Psychology
dc.subject.classification	Public Health
dc.subject.mesh	Delivery of Health Care
dc.subject.mesh	Female
dc.subject.mesh	Heart Diseases
dc.subject.mesh	Humans
dc.subject.mesh	Maternal Health Services
dc.subject.mesh	Postpartum Period
dc.subject.mesh	Pregnancy
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Delivery of Health Care
dc.subject.mesh	Female
dc.subject.mesh	Heart Diseases
dc.subject.mesh	Humans
dc.subject.mesh	Maternal Health Services
dc.subject.mesh	Postpartum Period
dc.subject.mesh	Pregnancy
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Humans
dc.subject.mesh	Heart Diseases
dc.subject.mesh	Postpartum Period
dc.subject.mesh	Pregnancy
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Maternal Health Services
dc.subject.mesh	Delivery of Health Care
dc.subject.mesh	Female
dc.title	The healthcare experiences of women with cardiac disease in pregnancy and postpartum: A qualitative study.
dc.type	Journal Article
utslib.citation.volume	25
utslib.location.activity	England
utslib.for	1110 Nursing
utslib.for	1117 Public Health and Health Services
utslib.for	1701 Psychology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Public Health
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.date.updated	2022-10-10T03:41:17Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	25
utslib.citation.issue	4

Abstract:

INTRODUCTION: Cardiac disease affects an estimated 1%-4% of all pregnancies and is a leading cause of maternal morbidity and mortality. There is a lack of data on the healthcare experiences of affected women to inform health service delivery and person-centred care. This study sought to explore and understand the healthcare experiences of women with cardiac disease in pregnancy and postpartum. METHODS: This qualitative study used semi-structured interviews with women who had cardiac disease in pregnancy or the first 12 months postpartum. Data were analysed using thematic analysis. RESULTS: Participants were 25 women with pre-existing or newly diagnosed acquired, genetic and congenital cardiac disease. Analysis of the interviews highlighted the discrepancy between care aspirations and experiences. The participants had a wide range of cardiac diseases and timing of diagnoses, but had similar healthcare experiences of being dismissed, not receiving the information they required, lack of continuity of care and clinical guidelines and of feeling out of place within a healthcare system that did not accommodate their combined needs as a mother and a cardiac patient. CONCLUSION: This study identified a lack of person-centred care and responsiveness of the healthcare system in providing fit-for-purpose healthcare for women with complex disease who are pregnant or new mothers. In particular, cardiac and maternity care providers have an opportunity to listen to women who are the experts on their emergent healthcare needs, contributing to development of the knowledge base on the healthcare experiences of having cardiac disease in pregnancy and postpartum. PATIENT OR PUBLIC CONTRIBUTION: Public and patient input into the value and design of the study was gained through NSW Heart Foundation forums, including the Heart Foundation's women's patient group.

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http://hdl.handle.net/10453/162428