Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia.

Newson, AJ; Dive, L; Cini, J; Hurley, E; Farrar, MA

Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia.

Newson, AJ Dive, L

Cini, J Hurley, E Farrar, MA

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Publisher:: ROYAL AUSTRALIAN COLLEGE GENERAL PRACTITIONERS
Publication Type:: Journal Article
Citation:: Aust J Gen Pract, 2022, 51, (3), pp. 131-135
Issue Date:: 2022-03

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Field	Value	Language
dc.contributor.author	Newson, AJ
dc.contributor.author	Dive, L https://orcid.org/0000-0001-6655-5138
dc.contributor.author	Cini, J
dc.contributor.author	Hurley, E
dc.contributor.author	Farrar, MA
dc.date.accessioned	2022-11-02T02:32:44Z
dc.date.available	2022-11-02T02:32:44Z
dc.date.issued	2022-03
dc.identifier.citation	Aust J Gen Pract, 2022, 51, (3), pp. 131-135
dc.identifier.issn	2208-794X
dc.identifier.issn	2208-7958
dc.identifier.uri	http://hdl.handle.net/10453/163134
dc.description.abstract	BACKGROUND: New methods of detecting and treating spinal muscular atrophy (SMA) are now available, and the Australian SMA landscape is rapidly changing. These various interventions can be increasingly complex to navigate for both healthcare professionals and at-risk families. OBJECTIVE: The aim of this article is to describe how recent developments in SMA testing and treatment give rise to ethical considerations. DISCUSSION: Ethical issues in SMA detection and treatment arise for both individual interventions and how they integrate. A patient-centred approach can help general practitioners to navigate these issues.
dc.format	Print
dc.language	eng
dc.publisher	ROYAL AUSTRALIAN COLLEGE GENERAL PRACTITIONERS
dc.relation.ispartof	Aust J Gen Pract
dc.relation.isbasedon	10.31128/AJGP-06-21-6028
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject.mesh	Australia
dc.subject.mesh	Health Personnel
dc.subject.mesh	Humans
dc.subject.mesh	Muscular Atrophy, Spinal
dc.subject.mesh	Humans
dc.subject.mesh	Muscular Atrophy, Spinal
dc.subject.mesh	Health Personnel
dc.subject.mesh	Australia
dc.title	Ethical aspects of the changing landscape for spinal muscular atrophy management in Australia.
dc.type	Journal Article
utslib.citation.volume	51
utslib.location.activity	Australia
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Genetic Counselling
utslib.copyright.status	closed_access	*
dc.date.updated	2022-11-02T02:32:43Z
pubs.issue	3
pubs.publication-status	Published
pubs.volume	51
utslib.citation.issue	3

Abstract:

BACKGROUND: New methods of detecting and treating spinal muscular atrophy (SMA) are now available, and the Australian SMA landscape is rapidly changing. These various interventions can be increasingly complex to navigate for both healthcare professionals and at-risk families. OBJECTIVE: The aim of this article is to describe how recent developments in SMA testing and treatment give rise to ethical considerations. DISCUSSION: Ethical issues in SMA detection and treatment arise for both individual interventions and how they integrate. A patient-centred approach can help general practitioners to navigate these issues.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/163134