COPESCD — An Online Community Supporting Families After Sudden Cardiac Death in the Young: A Protocol for a Pilot Study

Yeates, L; Gardner, K; Do, J; van den Heuvel, L; Leslie, F; Semsarian, C; McEwen, A; Adlard, L; Ingles, J

COPESCD — An Online Community Supporting Families After Sudden Cardiac Death in the Young: A Protocol for a Pilot Study

Yeates, L Gardner, K Do, J van den Heuvel, L Leslie, F Semsarian, C McEwen, A

Adlard, L Ingles, J

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Publisher:: Elsevier
Publication Type:: Journal Article
Citation:: Heart Lung and Circulation, 2022, 31, (S1), pp. 20-20
Issue Date:: 2022

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Field	Value	Language
dc.contributor.author	Yeates, L
dc.contributor.author	Gardner, K
dc.contributor.author	Do, J
dc.contributor.author	van den Heuvel, L
dc.contributor.author	Leslie, F
dc.contributor.author	Semsarian, C
dc.contributor.author	McEwen, A https://orcid.org/0000-0001-8705-1190
dc.contributor.author	Adlard, L
dc.contributor.author	Ingles, J
dc.date.accessioned	2023-04-19T20:35:09Z
dc.date.available	2023-04-19T20:35:09Z
dc.date.issued	2022
dc.identifier.citation	Heart Lung and Circulation, 2022, 31, (S1), pp. 20-20
dc.identifier.issn	1443-9506
dc.identifier.uri	http://hdl.handle.net/10453/169984
dc.description.abstract	Sudden cardiac death (SCD) is a devastating complication of genetic heart diseases. The psychological impact on surviving family members is significant and lifelong. Previous needs analyses found medical and psychological needs are of high importance but remain unmet in some cases. We used co-design focus groups with stakeholders (healthcare professionals and family members) to develop a support intervention: COPESCD - an online community supporting families after SCD in the young. The intervention contains two parts: (1) a website and (2) a series of four, online support sessions (covering: general information, uncertainty, grief and loss, and family coping).
dc.language	en
dc.publisher	Elsevier
dc.relation.ispartof	Heart Lung and Circulation
dc.relation.isbasedon	10.1016/j.hlc.2022.04.044
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1102 Cardiorespiratory Medicine and Haematology, 1117 Public Health and Health Services
dc.subject.classification	Cardiovascular System & Hematology
dc.title	COPESCD — An Online Community Supporting Families After Sudden Cardiac Death in the Young: A Protocol for a Pilot Study
dc.type	Journal Article
utslib.citation.volume	31
utslib.for	1102 Cardiorespiratory Medicine and Haematology
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Genetic Counselling
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2023-04-19T20:35:07Z
pubs.issue	S1
pubs.publication-status	Published
pubs.volume	31
utslib.citation.issue	S1

Abstract:

Sudden cardiac death (SCD) is a devastating complication of genetic heart diseases. The psychological impact on surviving family members is significant and lifelong. Previous needs analyses found medical and psychological needs are of high importance but remain unmet in some cases. We used co-design focus groups with stakeholders (healthcare professionals and family members) to develop a support intervention: COPESCD - an online community supporting families after SCD in the young. The intervention contains two parts: (1) a website and (2) a series of four, online support sessions (covering: general information, uncertainty, grief and loss, and family coping).

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/169984