"This is What Lies Ahead". Perspectives of Oxygen-Naïve COPD Patients on Long-Term Oxygen Use. A Qualitative Study.

Mooren, K; Atsma, EM; Duinker, E; Kerstjens, HAM; Currow, D; Engels, Y

"This is What Lies Ahead". Perspectives of Oxygen-Naïve COPD Patients on Long-Term Oxygen Use. A Qualitative Study.

Mooren, K Atsma, EM Duinker, E Kerstjens, HAM Currow, D

Engels, Y

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Publisher:: Taylor & Francis
Publication Type:: Journal Article
Citation:: Int J Chron Obstruct Pulmon Dis, 2023, 18, pp. 181-188
Issue Date:: 2023

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Field	Value	Language
dc.contributor.author	Mooren, K
dc.contributor.author	Atsma, EM
dc.contributor.author	Duinker, E
dc.contributor.author	Kerstjens, HAM
dc.contributor.author	Currow, D https://orcid.org/0000-0003-1988-1250
dc.contributor.author	Engels, Y
dc.date.accessioned	2023-09-05T06:21:28Z
dc.date.available	2023-02-02
dc.date.available	2023-09-05T06:21:28Z
dc.date.issued	2023
dc.identifier.citation	Int J Chron Obstruct Pulmon Dis, 2023, 18, pp. 181-188
dc.identifier.issn	1176-9106
dc.identifier.issn	1178-2005
dc.identifier.uri	http://hdl.handle.net/10453/171921
dc.description.abstract	PURPOSE: Oxygen is commonly prescribed to patients with severe COPD. However, little is known about the perspectives COPD patients, who do not yet use oxygen, have on this treatment. PATIENTS AND METHODS: A total of 14 oxygen-naïve patients with COPD Gold stages 3-4 and a high symptom burden participated in semi-structured interviews, in which their beliefs and expectations regarding oxygen therapy were explored. We used conventional content analysis to process our qualitative data. RESULTS: Four main themes were identified: seeking information, expected impact on quality of life, expected social impact and stigma, and last phase of life. CONCLUSION: The message that home oxygen should be started, was regarded as bad news by most participants. The rationale behind the therapy and the way it is delivered were unknown to most participants. Some participants anticipated smoking-related stigma and social isolation. Misconceptions such as tank explosions, becoming housebound, full dependency on oxygen and an imminent death were common amongst interviewees. Clinicians should be aware of these fears and assumptions when communicating with patients on this subject.
dc.format	Electronic-eCollection
dc.language	eng
dc.publisher	Taylor & Francis
dc.relation.ispartof	Int J Chron Obstruct Pulmon Dis
dc.relation.isbasedon	10.2147/COPD.S391095
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1102 Cardiorespiratory Medicine and Haematology
dc.subject.classification	Respiratory System
dc.subject.classification	3201 Cardiovascular medicine and haematology
dc.subject.mesh	Humans
dc.subject.mesh	Oxygen
dc.subject.mesh	Quality of Life
dc.subject.mesh	Pulmonary Disease, Chronic Obstructive
dc.subject.mesh	Oxygen Inhalation Therapy
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Humans
dc.subject.mesh	Pulmonary Disease, Chronic Obstructive
dc.subject.mesh	Oxygen
dc.subject.mesh	Oxygen Inhalation Therapy
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Quality of Life
dc.subject.mesh	Humans
dc.subject.mesh	Oxygen
dc.subject.mesh	Quality of Life
dc.subject.mesh	Pulmonary Disease, Chronic Obstructive
dc.subject.mesh	Oxygen Inhalation Therapy
dc.subject.mesh	Qualitative Research
dc.title	"This is What Lies Ahead". Perspectives of Oxygen-Naïve COPD Patients on Long-Term Oxygen Use. A Qualitative Study.
dc.type	Journal Article
utslib.citation.volume	18
utslib.location.activity	New Zealand
utslib.for	1102 Cardiorespiratory Medicine and Haematology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	open_access	*
dc.date.updated	2023-09-05T06:21:26Z
pubs.publication-status	Published online
pubs.volume	18

Abstract:

PURPOSE: Oxygen is commonly prescribed to patients with severe COPD. However, little is known about the perspectives COPD patients, who do not yet use oxygen, have on this treatment. PATIENTS AND METHODS: A total of 14 oxygen-naïve patients with COPD Gold stages 3-4 and a high symptom burden participated in semi-structured interviews, in which their beliefs and expectations regarding oxygen therapy were explored. We used conventional content analysis to process our qualitative data. RESULTS: Four main themes were identified: seeking information, expected impact on quality of life, expected social impact and stigma, and last phase of life. CONCLUSION: The message that home oxygen should be started, was regarded as bad news by most participants. The rationale behind the therapy and the way it is delivered were unknown to most participants. Some participants anticipated smoking-related stigma and social isolation. Misconceptions such as tank explosions, becoming housebound, full dependency on oxygen and an imminent death were common amongst interviewees. Clinicians should be aware of these fears and assumptions when communicating with patients on this subject.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/171921