Population-level, patient-reported outcomes: a case study regarding a public health intervention that involves patients with life-limiting illnesses.

Daveson, B; Blanchard, M; Clapham, S; Draper, K; Connolly, A; Currow, D

Population-level, patient-reported outcomes: a case study regarding a public health intervention that involves patients with life-limiting illnesses.

Daveson, B Blanchard, M Clapham, S Draper, K Connolly, A Currow, D

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Publisher:: Frontiers
Publication Type:: Journal Article
Citation:: Front Public Health, 2023, 11, pp. 1232881
Issue Date:: 2023

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Field	Value	Language
dc.contributor.author	Daveson, B
dc.contributor.author	Blanchard, M
dc.contributor.author	Clapham, S
dc.contributor.author	Draper, K
dc.contributor.author	Connolly, A
dc.contributor.author	Currow, D https://orcid.org/0000-0003-1988-1250
dc.date.accessioned	2023-09-21T04:24:28Z
dc.date.available	2023-07-18
dc.date.available	2023-09-21T04:24:28Z
dc.date.issued	2023
dc.identifier.citation	Front Public Health, 2023, 11, pp. 1232881
dc.identifier.issn	2296-2565
dc.identifier.issn	2296-2565
dc.identifier.uri	http://hdl.handle.net/10453/172231
dc.description.abstract	INTRODUCTION: Dying and death are public health concerns, but little is known about public health interventions that target populations living with life-limiting illnesses. This gap makes it difficult to identify best-practice public health interventions for this population and to achieve public health objectives. The study aimed to describe a public health intervention that intends to improve population-level outcomes using point-of-care and patient-reported outcomes. METHODS: A case study approach, informed by the Organization for Economic Co-operation and Development's (OECD) Best-Practice Public Health Framework, was used to describe coverage, effectiveness, and equity using mixed methods. Data from 2012 to 2022 were analyzed. RESULTS: Over the 10-year period, the number of deaths recorded in the programme (n = 16,358 to 32,421, +98.2%) as well as the percentage of the population that might benefit from palliative care increased (14.8% to 25.1%). The median age of those admitted for care (74 to 77 years) and the proportion of services participating in the programme located in outer regional and remote areas of Australia increased (2012: 59; 2022: 94; +5.4%). The access by patients that experience the greatest socioeconomic disadvantage decreased (2012: 18.2% n = 4,918; 2022: 15.9% n = 9,525). Improvements in relation to moderate distress related to pain were identified (2012: 63% n = 8,751, 2022: 69% n = 13,700), and one in five instances of severe distress related to pain did not improve (2012: 20% n = 781; 2022: 19% n = 635). CONCLUSION: Population-level, patient-reported outcome data are useful and necessary in addressing public health objectives in populations with life-limiting illnesses. Our application of the OECD's Best-Practice Public Health Framework has helped to identify and describe a national intervention that may be transferred to other settings to address health promotion objectives. This may help improve the targeting of treatments to improve pain and issues related to equity.
dc.format	Electronic-eCollection
dc.language	eng
dc.publisher	Frontiers
dc.relation.ispartof	Front Public Health
dc.relation.isbasedon	10.3389/fpubh.2023.1232881
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1117 Public Health and Health Services
dc.subject.classification	4203 Health services and systems
dc.subject.classification	4206 Public health
dc.subject.mesh	Humans
dc.subject.mesh	Aged
dc.subject.mesh	Public Health
dc.subject.mesh	Patients
dc.subject.mesh	Health Promotion
dc.subject.mesh	Pain
dc.subject.mesh	Patient Reported Outcome Measures
dc.subject.mesh	Humans
dc.subject.mesh	Pain
dc.subject.mesh	Public Health
dc.subject.mesh	Aged
dc.subject.mesh	Patients
dc.subject.mesh	Health Promotion
dc.subject.mesh	Patient Reported Outcome Measures
dc.title	Population-level, patient-reported outcomes: a case study regarding a public health intervention that involves patients with life-limiting illnesses.
dc.type	Journal Article
utslib.citation.volume	11
utslib.location.activity	Switzerland
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	open_access	*
dc.date.updated	2023-09-21T04:24:24Z
pubs.publication-status	Published online
pubs.volume	11

Abstract:

INTRODUCTION: Dying and death are public health concerns, but little is known about public health interventions that target populations living with life-limiting illnesses. This gap makes it difficult to identify best-practice public health interventions for this population and to achieve public health objectives. The study aimed to describe a public health intervention that intends to improve population-level outcomes using point-of-care and patient-reported outcomes. METHODS: A case study approach, informed by the Organization for Economic Co-operation and Development's (OECD) Best-Practice Public Health Framework, was used to describe coverage, effectiveness, and equity using mixed methods. Data from 2012 to 2022 were analyzed. RESULTS: Over the 10-year period, the number of deaths recorded in the programme (n = 16,358 to 32,421, +98.2%) as well as the percentage of the population that might benefit from palliative care increased (14.8% to 25.1%). The median age of those admitted for care (74 to 77 years) and the proportion of services participating in the programme located in outer regional and remote areas of Australia increased (2012: 59; 2022: 94; +5.4%). The access by patients that experience the greatest socioeconomic disadvantage decreased (2012: 18.2% n = 4,918; 2022: 15.9% n = 9,525). Improvements in relation to moderate distress related to pain were identified (2012: 63% n = 8,751, 2022: 69% n = 13,700), and one in five instances of severe distress related to pain did not improve (2012: 20% n = 781; 2022: 19% n = 635). CONCLUSION: Population-level, patient-reported outcome data are useful and necessary in addressing public health objectives in populations with life-limiting illnesses. Our application of the OECD's Best-Practice Public Health Framework has helped to identify and describe a national intervention that may be transferred to other settings to address health promotion objectives. This may help improve the targeting of treatments to improve pain and issues related to equity.

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http://hdl.handle.net/10453/172231