Cost of Illness and Health-Related Quality of Life for Stuttering: Two Systematic Reviews.

Norman, A; Lowe, R; Onslow, M; O'Brian, S; Packman, A; Menzies, R; Schroeder, L

Cost of Illness and Health-Related Quality of Life for Stuttering: Two Systematic Reviews.

Norman, A Lowe, R

Onslow, M

O'Brian, S

Packman, A

Menzies, R

Schroeder, L

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Publisher:: American Speech Language Hearing Association
Publication Type:: Journal Article
Citation:: J Speech Lang Hear Res, 2023, 66, (11), pp. 4414-4431
Issue Date:: 2023-11-09

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Field	Value	Language
dc.contributor.author	Norman, A
dc.contributor.author	Lowe, R https://orcid.org/0000-0003-3826-5306
dc.contributor.author	Onslow, M https://orcid.org/0000-0003-2629-2390
dc.contributor.author	O'Brian, S https://orcid.org/0000-0002-0882-1909
dc.contributor.author	Packman, A https://orcid.org/0000-0001-7378-326X
dc.contributor.author	Menzies, R https://orcid.org/0000-0002-7589-960X
dc.contributor.author	Schroeder, L
dc.date.accessioned	2024-01-25T11:56:56Z
dc.date.available	2024-01-25T11:56:56Z
dc.date.issued	2023-11-09
dc.identifier.citation	J Speech Lang Hear Res, 2023, 66, (11), pp. 4414-4431
dc.identifier.issn	1092-4388
dc.identifier.issn	1558-9102
dc.identifier.uri	http://hdl.handle.net/10453/174959
dc.description.abstract	PURPOSE: For those who stutter, verbal communication is typically compromised in social situations. This may attract negative responses from listeners and stigmatization by society. These have the potential to impair health-related quality of life across a range of domains, including qualitative and quantitative impacts on speech output, mental health issues, and failure to attain educational and occupational potential. These systematic reviews were designed to explore this matter using traditional health economics perspectives of utility measures and cost of illness. METHOD: Studies were included if they involved children, adolescents, or adults with stuttering as a primary diagnosis. The quality of life search strategy identified 2,607 reports, of which three were included in the quality of life analysis. The cost of illness search strategy identified 3,778 reports, of which 39 were included in the cost of illness analysis. RESULTS: Two of the three studies included in the quality of life analysis had a high risk of bias. When measured using utility scores, quality of life for people who stutter was in the range of those reported for chronic health conditions such as diabetes mellitus, cardiovascular disease, and cancer. However, there is little such evidence of quality of life impairment during the preschool years. Studies included in the cost of illness analysis carried considerable risk of bias overall. CONCLUSIONS: For people who stutter, there are substantive direct and indirect costs of illness. These include impairment, challenges, and distress across many domains throughout life, including income, education, employment, and social functioning. Evidence of quality of life impairment using utility measures is extremely limited. If this situation is not remedied, the lifetime impairment, challenges, and distress experienced by those who stutter cannot be documented in a form that can be used to influence health policy and health care spending. SUPPLEMENTAL MATERIAL: https://doi.org/10.23641/asha.24168201.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	American Speech Language Hearing Association
dc.relation.ispartof	J Speech Lang Hear Res
dc.relation.isbasedon	10.1044/2023_JSLHR-23-00072
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1103 Clinical Sciences, 1702 Cognitive Sciences, 2004 Linguistics
dc.subject.classification	Speech-Language Pathology & Audiology
dc.subject.classification	4201 Allied health and rehabilitation science
dc.subject.classification	4704 Linguistics
dc.subject.classification	5204 Cognitive and computational psychology
dc.subject.mesh	Adult
dc.subject.mesh	Child
dc.subject.mesh	Humans
dc.subject.mesh	Child, Preschool
dc.subject.mesh	Adolescent
dc.subject.mesh	Quality of Life
dc.subject.mesh	Stuttering
dc.subject.mesh	Educational Status
dc.subject.mesh	Employment
dc.subject.mesh	Cost of Illness
dc.subject.mesh	Humans
dc.subject.mesh	Stuttering
dc.subject.mesh	Cost of Illness
dc.subject.mesh	Quality of Life
dc.subject.mesh	Adolescent
dc.subject.mesh	Adult
dc.subject.mesh	Child
dc.subject.mesh	Child, Preschool
dc.subject.mesh	Educational Status
dc.subject.mesh	Employment
dc.subject.mesh	Adult
dc.subject.mesh	Child
dc.subject.mesh	Humans
dc.subject.mesh	Child, Preschool
dc.subject.mesh	Adolescent
dc.subject.mesh	Quality of Life
dc.subject.mesh	Stuttering
dc.subject.mesh	Educational Status
dc.subject.mesh	Employment
dc.subject.mesh	Cost of Illness
dc.title	Cost of Illness and Health-Related Quality of Life for Stuttering: Two Systematic Reviews.
dc.type	Journal Article
utslib.citation.volume	66
utslib.location.activity	United States
utslib.for	1103 Clinical Sciences
utslib.for	1702 Cognitive Sciences
utslib.for	2004 Linguistics
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Strength - ASRC Australian Stuttering Research Centre
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Australian Stuttering Research Centre
utslib.copyright.status	open_access	*
dc.date.updated	2024-01-25T11:56:53Z
pubs.issue	11
pubs.publication-status	Published
pubs.volume	66
utslib.citation.issue	11

Abstract:

PURPOSE: For those who stutter, verbal communication is typically compromised in social situations. This may attract negative responses from listeners and stigmatization by society. These have the potential to impair health-related quality of life across a range of domains, including qualitative and quantitative impacts on speech output, mental health issues, and failure to attain educational and occupational potential. These systematic reviews were designed to explore this matter using traditional health economics perspectives of utility measures and cost of illness. METHOD: Studies were included if they involved children, adolescents, or adults with stuttering as a primary diagnosis. The quality of life search strategy identified 2,607 reports, of which three were included in the quality of life analysis. The cost of illness search strategy identified 3,778 reports, of which 39 were included in the cost of illness analysis. RESULTS: Two of the three studies included in the quality of life analysis had a high risk of bias. When measured using utility scores, quality of life for people who stutter was in the range of those reported for chronic health conditions such as diabetes mellitus, cardiovascular disease, and cancer. However, there is little such evidence of quality of life impairment during the preschool years. Studies included in the cost of illness analysis carried considerable risk of bias overall. CONCLUSIONS: For people who stutter, there are substantive direct and indirect costs of illness. These include impairment, challenges, and distress across many domains throughout life, including income, education, employment, and social functioning. Evidence of quality of life impairment using utility measures is extremely limited. If this situation is not remedied, the lifetime impairment, challenges, and distress experienced by those who stutter cannot be documented in a form that can be used to influence health policy and health care spending. SUPPLEMENTAL MATERIAL: https://doi.org/10.23641/asha.24168201.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/174959