Patient perspectives of quality of life in chronic limb-threatening ischemia: a qualitative study.

Shan, LL; Telianidis, S; Westcott, MJ; Debono, D; Davies, AH; Choong, PF

Patient perspectives of quality of life in chronic limb-threatening ischemia: a qualitative study.

Shan, LL Telianidis, S Westcott, MJ Debono, D

Davies, AH Choong, PF

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Publisher:: WILEY
Publication Type:: Journal Article
Citation:: ANZ J Surg, 2023
Issue Date:: 2023-11-27

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Field	Value	Language
dc.contributor.author	Shan, LL
dc.contributor.author	Telianidis, S
dc.contributor.author	Westcott, MJ
dc.contributor.author	Debono, D https://orcid.org/0000-0003-2095-156X
dc.contributor.author	Davies, AH
dc.contributor.author	Choong, PF
dc.date.accessioned	2024-02-05T00:17:46Z
dc.date.available	2023-11-14
dc.date.available	2024-02-05T00:17:46Z
dc.date.issued	2023-11-27
dc.identifier.citation	ANZ J Surg, 2023
dc.identifier.issn	1445-1433
dc.identifier.issn	1445-2197
dc.identifier.uri	http://hdl.handle.net/10453/175281
dc.description.abstract	BACKGROUND: Quality of life (QOL) is an outcome that matters to patients with chronic limb-threatening ischemia (CLTI). However, we identified the lack of and need for a CLTI-specific QOL instrument. Our group is developing this instrument which requires a deep understanding of patient perspectives of QOL in CLTI. METHODS: Qualitative inquiry with patient and public involvement was performed in accordance with the Standards for Reporting Qualitative Research. Reflexive thematic analysis of semi-structured interviews was conducted within a constructivist-interpretivist research paradigm. Data were organized and managed in NVivo. Techniques to enhance trustworthiness included maintaining an audit trail, member checking, mentoring, and peer-debriefing. Patient and the public were consulted for feedback on codes, themes, and thematic maps. RESULTS: Thirteen participants (median age: 74 years, range: 43-90 years) with a variety of patient demographics were interviewed. Four themes were developed on QOL in CLTI: (i) 'independence as key to life satisfaction', (ii) 'change in identity when continuity is needed', (iii) 'coping with intractable disease', and (iv) 'not wanting to be alone'. Member checking with patient and public involvement confirmed the relevance and centrality of these themes to the lived experiences of patients with CLTI. CONCLUSIONS: The thematic outputs contribute important insights into what QOL truly means to patients with CLTI and what matters for their QOL. The content validity of the new CLTI-specific QOL instrument is improved by giving patients voice. This study highlights the value of qualitative inquiry and patient and public involvement in vascular surgical research.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	WILEY
dc.relation.ispartof	ANZ J Surg
dc.relation.isbasedon	10.1111/ans.18791
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences
dc.subject.classification	Surgery
dc.subject.classification	3202 Clinical sciences
dc.subject.classification	3203 Dentistry
dc.title	Patient perspectives of quality of life in chronic limb-threatening ischemia: a qualitative study.
dc.type	Journal Article
utslib.location.activity	Australia
utslib.for	1103 Clinical Sciences
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Public Health
utslib.copyright.status	closed_access	*
dc.date.updated	2024-02-05T00:17:44Z
pubs.publication-status	Published online

Abstract:

BACKGROUND: Quality of life (QOL) is an outcome that matters to patients with chronic limb-threatening ischemia (CLTI). However, we identified the lack of and need for a CLTI-specific QOL instrument. Our group is developing this instrument which requires a deep understanding of patient perspectives of QOL in CLTI. METHODS: Qualitative inquiry with patient and public involvement was performed in accordance with the Standards for Reporting Qualitative Research. Reflexive thematic analysis of semi-structured interviews was conducted within a constructivist-interpretivist research paradigm. Data were organized and managed in NVivo. Techniques to enhance trustworthiness included maintaining an audit trail, member checking, mentoring, and peer-debriefing. Patient and the public were consulted for feedback on codes, themes, and thematic maps. RESULTS: Thirteen participants (median age: 74 years, range: 43-90 years) with a variety of patient demographics were interviewed. Four themes were developed on QOL in CLTI: (i) 'independence as key to life satisfaction', (ii) 'change in identity when continuity is needed', (iii) 'coping with intractable disease', and (iv) 'not wanting to be alone'. Member checking with patient and public involvement confirmed the relevance and centrality of these themes to the lived experiences of patients with CLTI. CONCLUSIONS: The thematic outputs contribute important insights into what QOL truly means to patients with CLTI and what matters for their QOL. The content validity of the new CLTI-specific QOL instrument is improved by giving patients voice. This study highlights the value of qualitative inquiry and patient and public involvement in vascular surgical research.

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http://hdl.handle.net/10453/175281