Experiences of childhood stroke and aphasia during adolescence: An analysis of YouTube videos.

Lo, D; Waite, M; Rose, TA

Experiences of childhood stroke and aphasia during adolescence: An analysis of YouTube videos.

Lo, D Waite, M Rose, TA

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Publisher:: Taylor & Francis
Publication Type:: Journal Article
Citation:: Int J Speech Lang Pathol, 2023, 25, (3), pp. 403-412
Issue Date:: 2023-06

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Field	Value	Language
dc.contributor.author	Lo, D
dc.contributor.author	Waite, M
dc.contributor.author	Rose, TA
dc.date.accessioned	2024-02-05T00:48:50Z
dc.date.available	2024-02-05T00:48:50Z
dc.date.issued	2023-06
dc.identifier.citation	Int J Speech Lang Pathol, 2023, 25, (3), pp. 403-412
dc.identifier.issn	1754-9507
dc.identifier.issn	1754-9515
dc.identifier.uri	http://hdl.handle.net/10453/175288
dc.description.abstract	PURPOSE: This study aimed to gain insight into the experiences in adolescence of people with aphasia following childhood stroke. Adolescence is a unique period of developmental changes, yet little is known about the impacts of childhood stroke and aphasia during this critical period. With YouTube emerging as an information sharing platform for adolescents, the perspectives shared by YouTubers who have experienced aphasia during adolescence can provide insight into lived experiences. METHOD: Eleven videos were identified on YouTube via keyword searches. Included videos contained YouTubers' reports of childhood stroke and impacts of aphasia and/or stroke related language difficulties during adolescence (13-17 years). Videos were transcribed verbatim and analysed with reflexive thematic analysis. RESULT: Five themes were generated from analysis. These themes revealed the various impairments adolescents experienced after their unexpected stroke, including language difficulties such as word finding, reading, and writing difficulties. The YouTubers shared sources that aided their recovery, aspirations for the future, and their desire to raise awareness of stroke and aphasia in adolescents. CONCLUSION: The perspectives identified can inform person-centred and tailored care for adolescents with aphasia after childhood stroke. Further, the need for increased public education about stroke and aphasia specifically during adolescence has been highlighted.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Taylor & Francis
dc.relation.ispartof	Int J Speech Lang Pathol
dc.relation.isbasedon	10.1080/17549507.2023.2182743
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences, 1702 Cognitive Sciences, 2004 Linguistics
dc.subject.classification	Speech-Language Pathology & Audiology
dc.subject.classification	4201 Allied health and rehabilitation science
dc.subject.classification	4704 Linguistics
dc.subject.mesh	Adolescent
dc.subject.mesh	Humans
dc.subject.mesh	Social Media
dc.subject.mesh	Aphasia
dc.subject.mesh	Stroke
dc.subject.mesh	Reading
dc.subject.mesh	Humans
dc.subject.mesh	Aphasia
dc.subject.mesh	Reading
dc.subject.mesh	Adolescent
dc.subject.mesh	Stroke
dc.subject.mesh	Social Media
dc.subject.mesh	Adolescent
dc.subject.mesh	Humans
dc.subject.mesh	Social Media
dc.subject.mesh	Aphasia
dc.subject.mesh	Stroke
dc.subject.mesh	Reading
dc.title	Experiences of childhood stroke and aphasia during adolescence: An analysis of YouTube videos.
dc.type	Journal Article
utslib.citation.volume	25
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1702 Cognitive Sciences
utslib.for	2004 Linguistics
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
utslib.copyright.status	closed_access	*
dc.date.updated	2024-02-05T00:48:49Z
pubs.issue	3
pubs.publication-status	Published
pubs.volume	25
utslib.citation.issue	3

Abstract:

PURPOSE: This study aimed to gain insight into the experiences in adolescence of people with aphasia following childhood stroke. Adolescence is a unique period of developmental changes, yet little is known about the impacts of childhood stroke and aphasia during this critical period. With YouTube emerging as an information sharing platform for adolescents, the perspectives shared by YouTubers who have experienced aphasia during adolescence can provide insight into lived experiences. METHOD: Eleven videos were identified on YouTube via keyword searches. Included videos contained YouTubers' reports of childhood stroke and impacts of aphasia and/or stroke related language difficulties during adolescence (13-17 years). Videos were transcribed verbatim and analysed with reflexive thematic analysis. RESULT: Five themes were generated from analysis. These themes revealed the various impairments adolescents experienced after their unexpected stroke, including language difficulties such as word finding, reading, and writing difficulties. The YouTubers shared sources that aided their recovery, aspirations for the future, and their desire to raise awareness of stroke and aphasia in adolescents. CONCLUSION: The perspectives identified can inform person-centred and tailored care for adolescents with aphasia after childhood stroke. Further, the need for increased public education about stroke and aphasia specifically during adolescence has been highlighted.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/175288