A Qualitative Exploration of Stroke Survivors' Experiences of Using a Stroke Helpline.

Chaudhry, MT; McCambridge, AB; Rivera, EII; William, S; Stubbs, P; Verhagen, A; Ferguson, C

A Qualitative Exploration of Stroke Survivors' Experiences of Using a Stroke Helpline.

Chaudhry, MT McCambridge, AB Rivera, EII William, S Stubbs, P

Verhagen, A

Ferguson, C

Permalink

Publisher:: Wiley
Publication Type:: Journal Article
Citation:: Health Expect, 2024, 27, (4), pp. e14141
Issue Date:: 2024-08

Open Access

Copyright Clearance Process

Recently Added
In Progress
Open Access

This item is open access.

Adobe PDF

Download Published versionAdobe PDF (605.24 kB)

View on publisher's site

View statistics

Full metadata record

Field	Value	Language
dc.contributor.author	Chaudhry, MT
dc.contributor.author	McCambridge, AB
dc.contributor.author	Rivera, EII
dc.contributor.author	William, S
dc.contributor.author	Stubbs, P https://orcid.org/0000-0003-4555-8019
dc.contributor.author	Verhagen, A https://orcid.org/0000-0002-6195-0128
dc.contributor.author	Ferguson, C
dc.date.accessioned	2024-08-06T01:44:29Z
dc.date.available	2024-06-26
dc.date.available	2024-08-06T01:44:29Z
dc.date.issued	2024-08
dc.identifier.citation	Health Expect, 2024, 27, (4), pp. e14141
dc.identifier.issn	1369-6513
dc.identifier.issn	1369-7625
dc.identifier.uri	http://hdl.handle.net/10453/180055
dc.description.abstract	BACKGROUND: StrokeLine is a stroke-specific helpline used by stroke survivors and their families in Australia to access professional support. There has been little research exploring stroke survivors' experiences of using helplines and their perceived impact on their stroke recovery. AIM: The aim of this study is to explore the reasons prompting stroke survivors to call StrokeLine and their experiences and to describe the perceived impact of calling StrokeLine on their recovery. METHODS: An exploratory descriptive qualitative study was undertaken using thematic analysis of data collected through semi-structured interviews of stroke survivors between December 2020 and May 2022. Participants were recruited using purposive sampling. Interviews were conducted via audio-recorded Zoom conference calling and transcribed verbatim for thematic analysis. RESULTS: A total of eight callers (four men and women women) participated, with the time since stroke ranging from 3.5 months to 5 years. Four major themes were identified, including 17 sub-themes. Key themes included (1) factors prompting use of StrokeLine; (2) experience of using StrokeLine; (3) perceived impact of using StrokeLine; and (4) conceptualising StrokeLine service provision. CONCLUSIONS: Participants perceived their experience of contacting StrokeLine as having a positive impact on their stroke recovery, leaving them feeling empowered and motivated to self-manage their condition. PATIENT OR PUBLIC CONTRIBUTION: Stroke survivors with lived experience influenced the conceptualisation of this study through conversations with consumers and the Stroke Foundation. Eight stroke survivors were involved as participants in the research study.
dc.format	Print
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	Health Expect
dc.relation.isbasedon	10.1111/hex.14141
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1110 Nursing, 1117 Public Health and Health Services, 1701 Psychology
dc.subject.classification	Public Health
dc.subject.classification	4203 Health services and systems
dc.subject.classification	4206 Public health
dc.subject.mesh	Humans
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Survivors
dc.subject.mesh	Middle Aged
dc.subject.mesh	Aged
dc.subject.mesh	Stroke
dc.subject.mesh	Hotlines
dc.subject.mesh	Australia
dc.subject.mesh	Interviews as Topic
dc.subject.mesh	Aged, 80 and over
dc.subject.mesh	Adult
dc.subject.mesh	Humans
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Hotlines
dc.subject.mesh	Adult
dc.subject.mesh	Aged
dc.subject.mesh	Aged, 80 and over
dc.subject.mesh	Middle Aged
dc.subject.mesh	Survivors
dc.subject.mesh	Australia
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Interviews as Topic
dc.subject.mesh	Stroke
dc.subject.mesh	Humans
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Survivors
dc.subject.mesh	Middle Aged
dc.subject.mesh	Aged
dc.subject.mesh	Stroke
dc.subject.mesh	Hotlines
dc.subject.mesh	Australia
dc.subject.mesh	Interviews as Topic
dc.subject.mesh	Aged, 80 and over
dc.subject.mesh	Adult
dc.title	A Qualitative Exploration of Stroke Survivors' Experiences of Using a Stroke Helpline.
dc.type	Journal Article
utslib.citation.volume	27
utslib.location.activity	England
utslib.for	1110 Nursing
utslib.for	1117 Public Health and Health Services
utslib.for	1701 Psychology
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Physiotherapy
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution 4.0 International License (CC BY 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by/4.0/
dc.date.updated	2024-08-06T01:44:25Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	27
utslib.citation.issue	4

Abstract:

BACKGROUND: StrokeLine is a stroke-specific helpline used by stroke survivors and their families in Australia to access professional support. There has been little research exploring stroke survivors' experiences of using helplines and their perceived impact on their stroke recovery. AIM: The aim of this study is to explore the reasons prompting stroke survivors to call StrokeLine and their experiences and to describe the perceived impact of calling StrokeLine on their recovery. METHODS: An exploratory descriptive qualitative study was undertaken using thematic analysis of data collected through semi-structured interviews of stroke survivors between December 2020 and May 2022. Participants were recruited using purposive sampling. Interviews were conducted via audio-recorded Zoom conference calling and transcribed verbatim for thematic analysis. RESULTS: A total of eight callers (four men and women women) participated, with the time since stroke ranging from 3.5 months to 5 years. Four major themes were identified, including 17 sub-themes. Key themes included (1) factors prompting use of StrokeLine; (2) experience of using StrokeLine; (3) perceived impact of using StrokeLine; and (4) conceptualising StrokeLine service provision. CONCLUSIONS: Participants perceived their experience of contacting StrokeLine as having a positive impact on their stroke recovery, leaving them feeling empowered and motivated to self-manage their condition. PATIENT OR PUBLIC CONTRIBUTION: Stroke survivors with lived experience influenced the conceptualisation of this study through conversations with consumers and the Stroke Foundation. Eight stroke survivors were involved as participants in the research study.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/180055