Globalisation and the Ethics of Transnational Biobank Networks

Dive, L; Mason, P; Light, E; Kerridge, I; Lipworth, W

Globalisation and the Ethics of Transnational Biobank Networks

Dive, L

Mason, P Light, E Kerridge, I Lipworth, W

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Publisher:: Springer Nature
Publication Type:: Journal Article
Citation:: Asian Bioethics Review, 2017, 9, (4), pp. 301-310
Issue Date:: 2017-12-01

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Field	Value	Language
dc.contributor.author	Dive, L https://orcid.org/0000-0001-6655-5138
dc.contributor.author	Mason, P
dc.contributor.author	Light, E
dc.contributor.author	Kerridge, I
dc.contributor.author	Lipworth, W
dc.date.accessioned	2024-12-17T01:29:47Z
dc.date.available	2024-12-17T01:29:47Z
dc.date.issued	2017-12-01
dc.identifier.citation	Asian Bioethics Review, 2017, 9, (4), pp. 301-310
dc.identifier.issn	1793-8759
dc.identifier.issn	1793-9453
dc.identifier.uri	http://hdl.handle.net/10453/182638
dc.description.abstract	Biobanks are increasingly being linked together into global networks in order to maximise their capacity to identify causes of and treatments for disease. While there is great optimism about the potential of these biobank networks to contribute to personalised and data-driven medicine, there are also ethical concerns about, among other things, risks to personal privacy and exploitation of vulnerable populations. Concepts drawn from theories of globalisation can assist with the characterisation of the ethical implications of biobank networking across borders, which can, in turn, inform more ethically sophisticated responses. Using the China Kadoorie Biobank as a case study, we show how distinguishing between the subnational, transnational, supranational and extranational spheres of operation and influence can help researchers, institutions and regulators to understand and manage the ethical issues raised by the globalisation of biobanking.
dc.language	en
dc.publisher	Springer Nature
dc.relation.ispartof	Asian Bioethics Review
dc.relation.isbasedon	10.1007/s41649-017-0034-8
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	2201 Applied Ethics
dc.subject.classification	3202 Clinical sciences
dc.subject.classification	4206 Public health
dc.subject.classification	5001 Applied ethics
dc.title	Globalisation and the Ethics of Transnational Biobank Networks
dc.type	Journal Article
utslib.citation.volume	9
utslib.for	2201 Applied Ethics
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Genetic Counselling
utslib.copyright.status	closed_access	*
dc.date.updated	2024-12-17T01:29:46Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	9
utslib.citation.issue	4

Abstract:

Biobanks are increasingly being linked together into global networks in order to maximise their capacity to identify causes of and treatments for disease. While there is great optimism about the potential of these biobank networks to contribute to personalised and data-driven medicine, there are also ethical concerns about, among other things, risks to personal privacy and exploitation of vulnerable populations. Concepts drawn from theories of globalisation can assist with the characterisation of the ethical implications of biobank networking across borders, which can, in turn, inform more ethically sophisticated responses. Using the China Kadoorie Biobank as a case study, we show how distinguishing between the subnational, transnational, supranational and extranational spheres of operation and influence can help researchers, institutions and regulators to understand and manage the ethical issues raised by the globalisation of biobanking.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/182638