Factors impacting positive and negative participation of young people with cerebral palsy: a Delphi study of consumers and health professionals.

Quartermaine, JR; Rose, TA; Auld, ML; Johnston, LM

Factors impacting positive and negative participation of young people with cerebral palsy: a Delphi study of consumers and health professionals.

Quartermaine, JR Rose, TA Auld, ML Johnston, LM

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Publisher:: TAYLOR & FRANCIS LTD
Publication Type:: Journal Article
Citation:: Disabil Rehabil, 2024, 46, (7), pp. 1-9
Issue Date:: 2024

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Field	Value	Language
dc.contributor.author	Quartermaine, JR
dc.contributor.author	Rose, TA
dc.contributor.author	Auld, ML
dc.contributor.author	Johnston, LM
dc.date.accessioned	2025-03-07T03:59:17Z
dc.date.available	2025-03-07T03:59:17Z
dc.date.issued	2024
dc.identifier.citation	Disabil Rehabil, 2024, 46, (7), pp. 1-9
dc.identifier.issn	0963-8288
dc.identifier.issn	1464-5165
dc.identifier.uri	http://hdl.handle.net/10453/185575
dc.description.abstract	Purpose: To identify specific factors influencing the participation experiences of young people with cerebral palsy (CP) aged 15 to 26 years.Materials and methods: A three-round Delphi survey study design was used. Consumers (young people with CP and caregivers) and health professionals were asked to generate and then rate items influencing positive and negative participation experiences. Qualitative content analysis and descriptive statistics were used to classify items across the family of Participation-Related Constructs (fPRC) framework.Results: Sixty-eight participants completed Round I (25 consumers, 43 health professionals). Round II resulted in a consensus for all but two items, with Round III not required. The fPRC construct with the most items rated as extremely important for positive participation experiences was Environment-Availability, and for negative participation, experiences were Environment-Acceptability for both adolescents and young adults.Conclusions: A consensus was reached on the most important items influencing the positive and negative participation experiences of young people with CP. These items should be prioritised when developing support services and allocating funding to improve the participation experiences of young people with CP.Implications for RehabilitationThis study is reporting consumer and professional consensus on the factors promoting positive and negative participation for young people with cerebral palsy.Ensuring availability of appropriate activities and services is extremely important for enabling positive participation experiences.Promoting acceptable attitudes of others is extremely important for alleviating negative participation experiences.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	TAYLOR & FRANCIS LTD
dc.relation.ispartof	Disabil Rehabil
dc.relation.isbasedon	10.1080/09638288.2023.2194062
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Rehabilitation
dc.subject.classification	32 Biomedical and clinical sciences
dc.subject.classification	42 Health sciences
dc.subject.classification	44 Human society
dc.subject.mesh	Adolescent
dc.subject.mesh	Young Adult
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Delphi Technique
dc.subject.mesh	Health Personnel
dc.subject.mesh	Caregivers
dc.subject.mesh	Consensus
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Consensus
dc.subject.mesh	Delphi Technique
dc.subject.mesh	Adolescent
dc.subject.mesh	Caregivers
dc.subject.mesh	Health Personnel
dc.subject.mesh	Young Adult
dc.subject.mesh	Adolescent
dc.subject.mesh	Young Adult
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Delphi Technique
dc.subject.mesh	Health Personnel
dc.subject.mesh	Caregivers
dc.subject.mesh	Consensus
dc.title	Factors impacting positive and negative participation of young people with cerebral palsy: a Delphi study of consumers and health professionals.
dc.type	Journal Article
utslib.citation.volume	46
utslib.location.activity	England
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Stroke Research Collaborative
utslib.copyright.status	open_access	*
pubs.consider-herdc	false
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.date.updated	2025-03-07T03:59:14Z
pubs.issue	7
pubs.publication-status	Published online
pubs.volume	46
utslib.citation.issue	7

Abstract:

Purpose: To identify specific factors influencing the participation experiences of young people with cerebral palsy (CP) aged 15 to 26 years.Materials and methods: A three-round Delphi survey study design was used. Consumers (young people with CP and caregivers) and health professionals were asked to generate and then rate items influencing positive and negative participation experiences. Qualitative content analysis and descriptive statistics were used to classify items across the family of Participation-Related Constructs (fPRC) framework.Results: Sixty-eight participants completed Round I (25 consumers, 43 health professionals). Round II resulted in a consensus for all but two items, with Round III not required. The fPRC construct with the most items rated as extremely important for positive participation experiences was Environment-Availability, and for negative participation, experiences were Environment-Acceptability for both adolescents and young adults.Conclusions: A consensus was reached on the most important items influencing the positive and negative participation experiences of young people with CP. These items should be prioritised when developing support services and allocating funding to improve the participation experiences of young people with CP.Implications for RehabilitationThis study is reporting consumer and professional consensus on the factors promoting positive and negative participation for young people with cerebral palsy.Ensuring availability of appropriate activities and services is extremely important for enabling positive participation experiences.Promoting acceptable attitudes of others is extremely important for alleviating negative participation experiences.

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http://hdl.handle.net/10453/185575