Reflections on Participation at Home, As Self-Reported by Young People with Cerebral Palsy.

Quartermaine, JR; Rose, TA; Auld, ML; Johnston, LM

Reflections on Participation at Home, As Self-Reported by Young People with Cerebral Palsy.

Quartermaine, JR Rose, TA Auld, ML Johnston, LM

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Publisher:: TAYLOR & FRANCIS INC
Publication Type:: Journal Article
Citation:: Dev Neurorehabil, 2024, 27, (3-4), pp. 69-82
Issue Date:: 2024

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Field	Value	Language
dc.contributor.author	Quartermaine, JR
dc.contributor.author	Rose, TA
dc.contributor.author	Auld, ML
dc.contributor.author	Johnston, LM
dc.date.accessioned	2025-03-10T04:21:57Z
dc.date.available	2025-03-10T04:21:57Z
dc.date.issued	2024
dc.identifier.citation	Dev Neurorehabil, 2024, 27, (3-4), pp. 69-82
dc.identifier.issn	1751-8423
dc.identifier.issn	1751-8431
dc.identifier.uri	http://hdl.handle.net/10453/185623
dc.description.abstract	This study explored the home-based participation of young people with cerebral palsy (CP) and described factors that make participation easier or harder. Fifteen young people with CP aged 15 to 26 years provided written reflections, photographs, or videos about their home-based participation experiences. Data were analyzed using reflexive thematic analysis. Self-reported reflections were grouped inductively into 129 codes, then 20 subthemes and 5 themes which emphasized CP characteristics, thoughts, emotions, equipment, environment, supports, and inclusion as important factors influencing home-based participation. Young people with CP largely described the home environment as an inclusive place to participate.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	TAYLOR & FRANCIS INC
dc.relation.ispartof	Dev Neurorehabil
dc.relation.isbasedon	10.1080/17518423.2024.2347993
dc.rights	info:eu-repo/semantics/openAccess
dc.subject	1109 Neurosciences, 1114 Paediatrics and Reproductive Medicine, 1701 Psychology
dc.subject.classification	Rehabilitation
dc.subject.classification	3213 Paediatrics
dc.subject.classification	5201 Applied and developmental psychology
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Adolescent
dc.subject.mesh	Male
dc.subject.mesh	Female
dc.subject.mesh	Young Adult
dc.subject.mesh	Self Report
dc.subject.mesh	Adult
dc.subject.mesh	Social Participation
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Adolescent
dc.subject.mesh	Adult
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Young Adult
dc.subject.mesh	Self Report
dc.subject.mesh	Social Participation
dc.subject.mesh	Humans
dc.subject.mesh	Cerebral Palsy
dc.subject.mesh	Adolescent
dc.subject.mesh	Male
dc.subject.mesh	Female
dc.subject.mesh	Young Adult
dc.subject.mesh	Self Report
dc.subject.mesh	Adult
dc.subject.mesh	Social Participation
dc.title	Reflections on Participation at Home, As Self-Reported by Young People with Cerebral Palsy.
dc.type	Journal Article
utslib.citation.volume	27
utslib.location.activity	England
utslib.for	1109 Neurosciences
utslib.for	1114 Paediatrics and Reproductive Medicine
utslib.for	1701 Psychology
pubs.organisational-group	University of Technology Sydney
pubs.organisational-group	University of Technology Sydney/Faculty of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health
pubs.organisational-group	University of Technology Sydney/Faculty of Health/Graduate School of Health/GSH.Speech Pathology
pubs.organisational-group	University of Technology Sydney/UTS Groups
pubs.organisational-group	University of Technology Sydney/UTS Groups/Stroke Research Collaborative
utslib.copyright.status	open_access	*
dc.rights.license	This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License (CC BY-NC-ND 4.0). To view a copy of this license, visit https://creativecommons.org/licenses/by-nc-nd/4.0/
dc.date.updated	2025-03-10T04:21:55Z
pubs.issue	3-4
pubs.publication-status	Published
pubs.volume	27
utslib.citation.issue	3-4

Abstract:

This study explored the home-based participation of young people with cerebral palsy (CP) and described factors that make participation easier or harder. Fifteen young people with CP aged 15 to 26 years provided written reflections, photographs, or videos about their home-based participation experiences. Data were analyzed using reflexive thematic analysis. Self-reported reflections were grouped inductively into 129 codes, then 20 subthemes and 5 themes which emphasized CP characteristics, thoughts, emotions, equipment, environment, supports, and inclusion as important factors influencing home-based participation. Young people with CP largely described the home environment as an inclusive place to participate.

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http://hdl.handle.net/10453/185623