Showing results 18 to 30 of 30
< previous
Issue Date | Title | Author(s) |
2021-08 | Parent clinical trial priorities for fragile X syndrome: a best-worst scaling. | Turbitt, E; D'Amanda, C; Hyman, S; Weber, JD; Bridges, JFP; Peay, HL; Biesecker, BB |
2020-12 | Parental decision making about clinical trial enrollment: A survey of parents of children with Fragile X syndrome. | Turbitt, E; Klein, WMP; Rogers, K; D'Amanda, CS; Biesecker, BB |
2020-05 | Perceptions of uncertainties about carrier results identified by exome sequencing in a randomized controlled trial. | Umstead, KL; Han, PKJ; Lewis, KL; Miller, IM; Hepler, CL; Thompson, LJ; Wolfsberg, TG; Nguyen, A-D; Fredriksen, MT; Gibney, G; Turbitt, E; Biesecker, LG; Biesecker, BB |
2017-06 | Personal utility in genomic testing: a systematic literature review. | Kohler, JN; Turbitt, E; Biesecker, BB |
2021-04-19 | Preferences for and acceptability of receiving pharmacogenomic results by mail: A focus group study with a primarily African-American cohort. | Chan, PA; Lewis, KL; Biesecker, BB; Erby, LH; Fasaye, G-A; Epps, S; Biesecker, LG; Turbitt, E |
2022-06 | Psychological outcomes in advanced cancer patients after receiving genomic tumor profiling results. | Vatter, S; Schlub, TE; Napier, CE; Best, MC; Bartley, N; Juraskova, I; Meiser, B; Ballinger, ML; Biesecker, BB; Goldstein, D; Thomas, DM; Butow, P; Members of the PiGeOn Project, |
2021-11-10 | Psychological predictors of advanced cancer patients' preferences for return of results from comprehensive tumor genomic profiling. | Meiser, B; Butow, P; Davies, G; Napier, CE; Schlub, TE; Bartley, N; Juraskova, I; Ballinger, ML; Thomas, DM; Tucker, K; Goldstein, D; Biesecker, BB; Best, MC; Members of the Psychosocial Issues in Genomics in Oncology (PiGeOn) Project, |
2018-05-01 | A randomized controlled study of a consent intervention for participating in an NIH genome sequencing study | Turbitt, E; Chrysostomou, PP; Peay, HL; Heidlebaugh, AR; Nelson, LM; Biesecker, BB |
2022-10 | Return of comprehensive tumour genomic profiling results to advanced cancer patients: a qualitative study. | Best, MC; Bartley, N; Napier, CE; Fisher, A; Ballinger, ML; Thomas, DM; Goldstein, D; Tucker, K; Biesecker, BB; Butow, P |
2019-05-01 | Secondary findings from clinical genomic sequencing: prevalence, patient perspectives, family history assessment, and health-care costs from a multisite study | Hart, MR; Biesecker, BB; Blout, CL; Christensen, KD; Amendola, LM; Bergstrom, KL; Biswas, S; Bowling, KM; Brothers, KB; Conlin, LK; Cooper, GM; Dulik, MC; East, KM; Everett, JN; Finnila, CR; Ghazani, AA; Gilmore, MJ; Goddard, KAB; Jarvik, GP; Johnston, JJ; Kauffman, TL; Kelley, WV; Krier, JB; Lewis, KL; McGuire, AL; McMullen, C; Ou, J; Plon, SE; Rehm, HL; Richards, CS; Romasko, EJ; Miren Sagardia, A; Spinner, NB; Thompson, ML; Turbitt, E; Vassy, JL; Wilfond, BS; Veenstra, DL; Berg, JS; Green, RC; Biesecker, LG; Hindorff, LA |
2024 | The Parent PrU: A measure to assess personal utility of pediatric genomic results. | Turbitt, E; Kohler, JN; Brothers, KB; Outram, SM; Rini, C; Sahin-Hodoglugil, N; Leo, MC; Biesecker, BB |
2022-12-11 | The PrU: Development and validation of a measure to assess personal utility of genomic results. | Turbitt, E; Kohler, JN; Angelo, F; Miller, IM; Lewis, KL; Goddard, KAB; Wilfond, BS; Biesecker, BB; Leo, MC |
2018-03-01 | Web platform vs in-person genetic counselor for return of carrier results from exome sequencing a randomized clinical trial | Biesecker, BB; Lewis, KL; Umstead, KL; Johnston, JJ; Turbitt, E; Fishler, KP; Patton, JH; Miller, IM; Heidlebaugh, AR; Biesecker, LG |