Health care experiences among women diagnosed with gestational breast cancer

Hammarberg, K; Sullivan, E; Javid, N; Duncombe, G; Halliday, L; Boyle, F; Saunders, C; Ives, A; Dickinson, JE; Fisher, J

Health care experiences among women diagnosed with gestational breast cancer

Hammarberg, K Sullivan, E

Javid, N Duncombe, G Halliday, L Boyle, F Saunders, C Ives, A Dickinson, JE Fisher, J

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Publication Type:: Journal Article
Citation:: European Journal of Cancer Care, 2018, 27 (2)
Issue Date:: 2018-03-01

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Field	Value	Language
dc.contributor.author	Hammarberg, K	en_US
dc.contributor.author	Sullivan, E https://orcid.org/0000-0002-8718-2753	en_US
dc.contributor.author	Javid, N	en_US
dc.contributor.author	Duncombe, G	en_US
dc.contributor.author	Halliday, L	en_US
dc.contributor.author	Boyle, F	en_US
dc.contributor.author	Saunders, C	en_US
dc.contributor.author	Ives, A	en_US
dc.contributor.author	Dickinson, JE	en_US
dc.contributor.author	Fisher, J	en_US
dc.date.available	2017-02-15	en_US
dc.date.issued	2018-03-01	en_US
dc.identifier.citation	European Journal of Cancer Care, 2018, 27 (2)	en_US
dc.identifier.issn	0961-5423	en_US
dc.identifier.uri	http://hdl.handle.net/10453/113548
dc.description.abstract	© 2017 John Wiley & Sons Ltd Gestational breast cancer (GBC) presents many challenges for women and the clinicians who care for them. The aim of this study was to explore the health care experiences of women diagnosed with GBC to inform and improve clinical care of women in this predicament. Semi-structured interviews were conducted with 17 women who had been diagnosed with GBC in the previous 5 years. The overarching themes for perceived quality of care were “communication” and “comprehensive care.” “Communication” had two sub themes: “interdisciplinary communication” (the way health professionals from different disciplines communicated with each other about the management of the woman's care) and “patient communication” (how they communicated this to the woman). The “comprehensive care” theme incorporated three sub themes: “the spirit” (psychological care); “the mind” (information provision); and “the body” (management of treatment side effects). Women's own accounts of positive and negative experiences of GBC care provide unique and specific insights which improve understanding of their concerns and needs. The findings can inform advances in quality and efficacy of clinical care; offer guidance for obstetricians, oncologists and allied health professionals about the needs of women diagnosed with GBC and how care can be optimised; and inform the development of resources to assist women and their families.	en_US
dc.relation.ispartof	European Journal of Cancer Care	en_US
dc.relation.isbasedon	10.1111/ecc.12682	en_US
dc.subject.classification	Oncology & Carcinogenesis	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Breast Neoplasms	en_US
dc.subject.mesh	Communication	en_US
dc.subject.mesh	Interdisciplinary Communication	en_US
dc.subject.mesh	Professional-Patient Relations	en_US
dc.subject.mesh	Pregnancy	en_US
dc.subject.mesh	Qualitative Research	en_US
dc.subject.mesh	Adult	en_US
dc.subject.mesh	Middle Aged	en_US
dc.subject.mesh	Delivery of Health Care, Integrated	en_US
dc.subject.mesh	Quality of Health Care	en_US
dc.subject.mesh	Female	en_US
dc.title	Health care experiences among women diagnosed with gestational breast cancer	en_US
dc.type	Journal Article
utslib.citation.volume	2	en_US
utslib.citation.volume	27	en_US
utslib.for	1110 Nursing	en_US
utslib.for	1112 Oncology and Carcinogenesis	en_US
utslib.for	1117 Public Health and Health Services	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Public Health
utslib.copyright.status	closed_access
pubs.issue	2	en_US
pubs.publication-status	Published	en_US
pubs.volume	27	en_US

Abstract:

© 2017 John Wiley & Sons Ltd Gestational breast cancer (GBC) presents many challenges for women and the clinicians who care for them. The aim of this study was to explore the health care experiences of women diagnosed with GBC to inform and improve clinical care of women in this predicament. Semi-structured interviews were conducted with 17 women who had been diagnosed with GBC in the previous 5 years. The overarching themes for perceived quality of care were “communication” and “comprehensive care.” “Communication” had two sub themes: “interdisciplinary communication” (the way health professionals from different disciplines communicated with each other about the management of the woman's care) and “patient communication” (how they communicated this to the woman). The “comprehensive care” theme incorporated three sub themes: “the spirit” (psychological care); “the mind” (information provision); and “the body” (management of treatment side effects). Women's own accounts of positive and negative experiences of GBC care provide unique and specific insights which improve understanding of their concerns and needs. The findings can inform advances in quality and efficacy of clinical care; offer guidance for obstetricians, oncologists and allied health professionals about the needs of women diagnosed with GBC and how care can be optimised; and inform the development of resources to assist women and their families.

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http://hdl.handle.net/10453/113548