Quality of life in dementia care-differences in quality of life measurements performed by residents with dementia and by nursing staff

Grske, J; Fischer, T; Kuhlmey, A; Wolf-Ostermann, K

Quality of life in dementia care-differences in quality of life measurements performed by residents with dementia and by nursing staff

Grske, J Fischer, T

Kuhlmey, A Wolf-Ostermann, K

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Publication Type:: Journal Article
Citation:: Aging and Mental Health, 2012, 16 (7), pp. 819 - 827
Issue Date:: 2012-09-01

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Field	Value	Language
dc.contributor.author	Grske, J	en_US
dc.contributor.author	Fischer, T https://orcid.org/0000-0003-3779-4396	en_US
dc.contributor.author	Kuhlmey, A	en_US
dc.contributor.author	Wolf-Ostermann, K	en_US
dc.date.issued	2012-09-01	en_US
dc.identifier.citation	Aging and Mental Health, 2012, 16 (7), pp. 819 - 827	en_US
dc.identifier.issn	1360-7863	en_US
dc.identifier.uri	http://hdl.handle.net/10453/115103
dc.description.abstract	Objectives: Quality of life (QoL) is a major outcome parameter in dementia care. Self-ratings are considered the best way to evaluate QoL, but staff-ratings also provide valid results. In particular, the discrepancies between self-ratings and staff-ratings are underrepresented. The aim was to identify characteristics of people with dementia that improve the probability of completing a self rating QoL instrument on the Quality of Life-Alzheimers Disease (QoL-AD). Additionally, a level of agreement was set between self-rated and staff-rated QoL-AD and possible influencing factors. Method: A cross-sectional study was conducted in 2010 in Berlin. Using the instrument QoL-AD, the self-and staff-rated QoL of people with dementia was assessed. Results: 104 residents (73.1% female, mean age: 79.0 years, mean cognitive function (MMSE): 11.5) were included in this research project. 49 (47.1%) residents were able to complete the QoL-AD questionnaire. A predictor to complete the QoL-AD was the MMSE-part language. Residents rated their QoL as significantly higher than the nursing staff did. If the primary nurse rated the QoL, a significantly better agreement was identified. Conclusion: The study generated new findings concerning a better understanding of QoL measurements. The results suggest the usefulness of performing self-ratings whenever possible. If proxy-ratings have to be used, these should be performed by primary nurses only in order to get reliable results. © 2012 Taylor and Francis Group, LLC.	en_US
dc.relation.ispartof	Aging and Mental Health	en_US
dc.relation.isbasedon	10.1080/13607863.2012.667782	en_US
dc.subject.classification	Geriatrics	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Dementia	en_US
dc.subject.mesh	Questionnaires	en_US
dc.subject.mesh	Cross-Sectional Studies	en_US
dc.subject.mesh	Reproducibility of Results	en_US
dc.subject.mesh	Quality of Life	en_US
dc.subject.mesh	Aged	en_US
dc.subject.mesh	Aged, 80 and over	en_US
dc.subject.mesh	Proxy	en_US
dc.subject.mesh	Nursing Staff	en_US
dc.subject.mesh	Nursing Homes	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.subject.mesh	Self Report	en_US
dc.subject.mesh	Surveys and Questionnaires	en_US
dc.title	Quality of life in dementia care-differences in quality of life measurements performed by residents with dementia and by nursing staff	en_US
dc.type	Journal Article
utslib.citation.volume	7	en_US
utslib.citation.volume	16	en_US
utslib.for	11 Medical and Health Sciences	en_US
utslib.for	16 Studies in Human Society	en_US
utslib.for	17 Psychology and Cognitive Sciences	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access
pubs.issue	7	en_US
pubs.publication-status	Published	en_US
pubs.volume	16	en_US

Abstract:

Objectives: Quality of life (QoL) is a major outcome parameter in dementia care. Self-ratings are considered the best way to evaluate QoL, but staff-ratings also provide valid results. In particular, the discrepancies between self-ratings and staff-ratings are underrepresented. The aim was to identify characteristics of people with dementia that improve the probability of completing a self rating QoL instrument on the Quality of Life-Alzheimers Disease (QoL-AD). Additionally, a level of agreement was set between self-rated and staff-rated QoL-AD and possible influencing factors. Method: A cross-sectional study was conducted in 2010 in Berlin. Using the instrument QoL-AD, the self-and staff-rated QoL of people with dementia was assessed. Results: 104 residents (73.1% female, mean age: 79.0 years, mean cognitive function (MMSE): 11.5) were included in this research project. 49 (47.1%) residents were able to complete the QoL-AD questionnaire. A predictor to complete the QoL-AD was the MMSE-part language. Residents rated their QoL as significantly higher than the nursing staff did. If the primary nurse rated the QoL, a significantly better agreement was identified. Conclusion: The study generated new findings concerning a better understanding of QoL measurements. The results suggest the usefulness of performing self-ratings whenever possible. If proxy-ratings have to be used, these should be performed by primary nurses only in order to get reliable results. © 2012 Taylor and Francis Group, LLC.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/115103