Do patients and carers find separate palliative care clinic consultations acceptable? A pilot study

Swetenham, K; Tieman, J; Currow, D

Do patients and carers find separate palliative care clinic consultations acceptable? A pilot study

Swetenham, K Tieman, J Currow, D

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Publication Type:: Journal Article
Citation:: International Journal of Palliative Nursing, 2014, 20 (6), pp. 301 - 305
Issue Date:: 2014-01-01

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Field	Value	Language
dc.contributor.author	Swetenham, K	en_US
dc.contributor.author	Tieman, J	en_US
dc.contributor.author	Currow, D https://orcid.org/0000-0003-1988-1250	en_US
dc.date.issued	2014-01-01	en_US
dc.identifier.citation	International Journal of Palliative Nursing, 2014, 20 (6), pp. 301 - 305	en_US
dc.identifier.issn	1357-6321	en_US
dc.identifier.uri	http://hdl.handle.net/10453/115565
dc.description.abstract	© 2014 MA Healthcare Ltd. Background: As differing patient and carer information needs have been reported, and in light of changing health-system priorities and issues identified in a self-assessment study, a specialist palliative care service established an interdisciplinary psychosocial assessment clinic to separately assess patient and carer needs. Aim: To determine the acceptability of the separate assessment to patients and carers. Method: Patients with a high functional score and who were deemed well enough to manage an appointment were invited to attend the clinic. Consent to follow-up was obtained. Patient and carer satisfaction surveys were developed based on existing tools. Questionnaires were posted out with a pre-paid reply envelope to patients and carers. Data from completed surveys was entered into a data management system and frequency analysis completed. A secondary analysis of the comments was undertaken. Findings: The clinic was attended by 41 patients and 37 carers between September 2011 and the end of February 2012. There was a 46% response rate, with 24 questionnaires returned from both the patient and their carer, 6 from patients only, and 6 from carers only (2 of whom were bereaved). The opportunity for privacy to discuss their own fears and concerns related to the illness was appreciated by 94% of the patients and 83% of the carers. Conclusion: This initial pilot data shows patient and carer satisfaction with this clinic model. Further qualitative data would provide more information on the patient and carer experiences of the clinic.	en_US
dc.relation.ispartof	International Journal of Palliative Nursing	en_US
dc.relation.isbasedon	10.12968/ijpn.2014.20.6.301	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Pilot Projects	en_US
dc.subject.mesh	Feedback	en_US
dc.subject.mesh	Caregivers	en_US
dc.subject.mesh	Patients	en_US
dc.subject.mesh	South Australia	en_US
dc.title	Do patients and carers find separate palliative care clinic consultations acceptable? A pilot study	en_US
dc.type	Journal Article
utslib.citation.volume	6	en_US
utslib.citation.volume	20	en_US
utslib.for	1110 Nursing	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	closed_access
pubs.issue	6	en_US
pubs.publication-status	Published	en_US
pubs.volume	20	en_US

Abstract:

© 2014 MA Healthcare Ltd. Background: As differing patient and carer information needs have been reported, and in light of changing health-system priorities and issues identified in a self-assessment study, a specialist palliative care service established an interdisciplinary psychosocial assessment clinic to separately assess patient and carer needs. Aim: To determine the acceptability of the separate assessment to patients and carers. Method: Patients with a high functional score and who were deemed well enough to manage an appointment were invited to attend the clinic. Consent to follow-up was obtained. Patient and carer satisfaction surveys were developed based on existing tools. Questionnaires were posted out with a pre-paid reply envelope to patients and carers. Data from completed surveys was entered into a data management system and frequency analysis completed. A secondary analysis of the comments was undertaken. Findings: The clinic was attended by 41 patients and 37 carers between September 2011 and the end of February 2012. There was a 46% response rate, with 24 questionnaires returned from both the patient and their carer, 6 from patients only, and 6 from carers only (2 of whom were bereaved). The opportunity for privacy to discuss their own fears and concerns related to the illness was appreciated by 94% of the patients and 83% of the carers. Conclusion: This initial pilot data shows patient and carer satisfaction with this clinic model. Further qualitative data would provide more information on the patient and carer experiences of the clinic.

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http://hdl.handle.net/10453/115565