A question prompt list for patients with advanced cancer in the final year of life: Development and cross-cultural evaluation

Walczak, A; Mazer, B; Butow, PN; Tattersall, MHN; Clayton, JM; Davidson, PM; Young, J; Ladwig, S; Epstein, RM

A question prompt list for patients with advanced cancer in the final year of life: Development and cross-cultural evaluation

Walczak, A Mazer, B Butow, PN Tattersall, MHN Clayton, JM Davidson, PM

Young, J Ladwig, S Epstein, RM

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Publication Type:: Journal Article
Citation:: Palliative Medicine, 2013, 27 (8), pp. 779 - 788
Issue Date:: 2013-09-01

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Field	Value	Language
dc.contributor.author	Walczak, A	en_US
dc.contributor.author	Mazer, B	en_US
dc.contributor.author	Butow, PN	en_US
dc.contributor.author	Tattersall, MHN	en_US
dc.contributor.author	Clayton, JM	en_US
dc.contributor.author	Davidson, PM https://orcid.org/0000-0003-2050-1534	en_US
dc.contributor.author	Young, J	en_US
dc.contributor.author	Ladwig, S	en_US
dc.contributor.author	Epstein, RM	en_US
dc.date.issued	2013-09-01	en_US
dc.identifier.citation	Palliative Medicine, 2013, 27 (8), pp. 779 - 788	en_US
dc.identifier.issn	0269-2163	en_US
dc.identifier.uri	http://hdl.handle.net/10453/117580
dc.description.abstract	Background: Clinicians and patients find prognosis and end-of-life care discussions challenging. Misunderstanding one's prognosis can contribute to poor decision-making and end-of-life quality of life. A question prompt list (booklet of questions patients can ask clinicians) targeting these issues may help overcome communication barriers. None exists for end-of-life discussions outside the palliative care setting. Aim: To develop/pilot a question prompt list facilitating discussion/planning of end-of-life care for oncology patients with advanced cancer from Australia and the United States and to explore acceptability, perceived benefits/challenges of using the question prompt list, suggestions for improvements and the necessity of country-specific adaptations. Design: An expert panel developed a question prompt list targeting prognosis and end-of-life issues. Australian/US semi-structured interviews and one focus group elicited feedback about the question prompt list. Transcribed data were analysed using qualitative methods. Setting/participants: Thirty-four patients with advanced cancer (15 Australian/19 US) and 13 health professionals treating such patients (7 Australian/6 US) from two Australian and one US cancer centre participated. Results: Most endorsed the entire question prompt list, though a minority queried the utility/appropriateness of some questions. Analysis identified four global themes: (1) reinforcement of known benefits of question prompt lists, (2) appraisal of content and suggestions for further developments, (3) perceived benefits and challenges in using the question prompt list and (4) contrasts in Australian/US feedback. These contrasts necessitated distinct Australian/US final versions of the question prompt list. Conclusions: Participants endorsed the question prompt list as acceptable and useful. Feedback resulted in two distinct versions of the question prompt list, accommodating differences between Australian and US approaches to end-of-life discussions, highlighting the appropriateness of tailoring communication aides to individual populations. © The Author(s) 2012.	en_US
dc.relation.ispartof	Palliative Medicine	en_US
dc.relation.isbasedon	10.1177/0269216313483659	en_US
dc.subject.classification	Gerontology	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Neoplasms	en_US
dc.subject.mesh	Prognosis	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Focus Groups	en_US
dc.subject.mesh	Communication Barriers	en_US
dc.subject.mesh	Physician-Patient Relations	en_US
dc.subject.mesh	Qualitative Research	en_US
dc.subject.mesh	Cross-Cultural Comparison	en_US
dc.subject.mesh	Reminder Systems	en_US
dc.subject.mesh	Aged	en_US
dc.subject.mesh	Aged, 80 and over	en_US
dc.subject.mesh	Middle Aged	en_US
dc.subject.mesh	Patient Participation	en_US
dc.subject.mesh	Advance Care Planning	en_US
dc.subject.mesh	United States	en_US
dc.subject.mesh	Australia	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.title	A question prompt list for patients with advanced cancer in the final year of life: Development and cross-cultural evaluation	en_US
dc.type	Journal Article
utslib.citation.volume	8	en_US
utslib.citation.volume	27	en_US
utslib.for	1117 Public Health and Health Services	en_US
utslib.for	1199 Other Medical and Health Sciences	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Nursing
utslib.copyright.status	closed_access
pubs.issue	8	en_US
pubs.publication-status	Published	en_US
pubs.volume	27	en_US

Abstract:

Background: Clinicians and patients find prognosis and end-of-life care discussions challenging. Misunderstanding one's prognosis can contribute to poor decision-making and end-of-life quality of life. A question prompt list (booklet of questions patients can ask clinicians) targeting these issues may help overcome communication barriers. None exists for end-of-life discussions outside the palliative care setting. Aim: To develop/pilot a question prompt list facilitating discussion/planning of end-of-life care for oncology patients with advanced cancer from Australia and the United States and to explore acceptability, perceived benefits/challenges of using the question prompt list, suggestions for improvements and the necessity of country-specific adaptations. Design: An expert panel developed a question prompt list targeting prognosis and end-of-life issues. Australian/US semi-structured interviews and one focus group elicited feedback about the question prompt list. Transcribed data were analysed using qualitative methods. Setting/participants: Thirty-four patients with advanced cancer (15 Australian/19 US) and 13 health professionals treating such patients (7 Australian/6 US) from two Australian and one US cancer centre participated. Results: Most endorsed the entire question prompt list, though a minority queried the utility/appropriateness of some questions. Analysis identified four global themes: (1) reinforcement of known benefits of question prompt lists, (2) appraisal of content and suggestions for further developments, (3) perceived benefits and challenges in using the question prompt list and (4) contrasts in Australian/US feedback. These contrasts necessitated distinct Australian/US final versions of the question prompt list. Conclusions: Participants endorsed the question prompt list as acceptable and useful. Feedback resulted in two distinct versions of the question prompt list, accommodating differences between Australian and US approaches to end-of-life discussions, highlighting the appropriateness of tailoring communication aides to individual populations. © The Author(s) 2012.

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http://hdl.handle.net/10453/117580