Promoting the consumer voice in palliative care: Exploring the possibility of using consumer impact statements

Mcconigley, R; Shelby-James, T; Currow, DC

Promoting the consumer voice in palliative care: Exploring the possibility of using consumer impact statements

Mcconigley, R Shelby-James, T Currow, DC

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Publication Type:: Journal Article
Citation:: Health Expectations, 2015, 18 (5), pp. 653 - 660
Issue Date:: 2015-01-01

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Field	Value	Language
dc.contributor.author	Mcconigley, R	en_US
dc.contributor.author	Shelby-James, T	en_US
dc.contributor.author	Currow, DC https://orcid.org/0000-0003-1988-1250	en_US
dc.date.available	2013-07-17	en_US
dc.date.issued	2015-01-01	en_US
dc.identifier.citation	Health Expectations, 2015, 18 (5), pp. 653 - 660	en_US
dc.identifier.issn	1369-6513	en_US
dc.identifier.uri	http://hdl.handle.net/10453/118528
dc.description.abstract	© 2015 John Wiley & Sons Ltd. Background: It can be difficult to engage consumers in health decision making. This is particularly so in the area of palliative care, where consumers are very unwell and are unlikely to become involved in long-term programmes that promote consumer input. This paper explores the possibility of using 'Consumer Impact Statements' to facilitate the inclusion of the viewpoint of people at the end of life in the process of policy and decision making, particularly in the area of subsidy of pharmaceuticals used in palliative care. Search Strategy: A broad search was conducted to find information about the use of impact statements in any health field. The health literature and grey literature were searched to explore the use of Consumer Impact Statements to date. Results: No papers were found describing the use of Consumer Impact Statements in the palliative care setting. Health impact assessment is used in the areas of environmental health and community health. Impact statements are less commonly used in other areas of health, especially policy development, and no formal description of a Consumer Impact Statement was found. Discussion: There is considerable scope for developing the use of Consumer Impact Statements to promote the consumer viewpoint in health decision making, because it will allow people who are otherwise unlikely to contribute to the public debate to have their views heard by decision makers. Conclusion: The use of Consumer Impact Statements is particularly suited to palliative care, given that consumers are often otherwise unable to contribute to the public debate.	en_US
dc.relation.ispartof	Health Expectations	en_US
dc.relation.isbasedon	10.1111/hex.12118	en_US
dc.subject.classification	Public Health	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Terminal Care	en_US
dc.subject.mesh	Patient Advocacy	en_US
dc.subject.mesh	Consumer Participation	en_US
dc.subject.mesh	Health Services Research	en_US
dc.subject.mesh	Community Participation	en_US
dc.title	Promoting the consumer voice in palliative care: Exploring the possibility of using consumer impact statements	en_US
dc.type	Journal Article
utslib.citation.volume	5	en_US
utslib.citation.volume	18	en_US
utslib.for	1110 Nursing	en_US
utslib.for	1117 Public Health and Health Services	en_US
utslib.for	1701 Psychology	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	closed_access
pubs.issue	5	en_US
pubs.publication-status	Published	en_US
pubs.volume	18	en_US

Abstract:

© 2015 John Wiley & Sons Ltd. Background: It can be difficult to engage consumers in health decision making. This is particularly so in the area of palliative care, where consumers are very unwell and are unlikely to become involved in long-term programmes that promote consumer input. This paper explores the possibility of using 'Consumer Impact Statements' to facilitate the inclusion of the viewpoint of people at the end of life in the process of policy and decision making, particularly in the area of subsidy of pharmaceuticals used in palliative care. Search Strategy: A broad search was conducted to find information about the use of impact statements in any health field. The health literature and grey literature were searched to explore the use of Consumer Impact Statements to date. Results: No papers were found describing the use of Consumer Impact Statements in the palliative care setting. Health impact assessment is used in the areas of environmental health and community health. Impact statements are less commonly used in other areas of health, especially policy development, and no formal description of a Consumer Impact Statement was found. Discussion: There is considerable scope for developing the use of Consumer Impact Statements to promote the consumer viewpoint in health decision making, because it will allow people who are otherwise unlikely to contribute to the public debate to have their views heard by decision makers. Conclusion: The use of Consumer Impact Statements is particularly suited to palliative care, given that consumers are often otherwise unable to contribute to the public debate.

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http://hdl.handle.net/10453/118528