Outcome measurement of refractory breathlessness: Endpoints and important differences

Ekstrom, M; Currow, DC; Johnson, MJ

Outcome measurement of refractory breathlessness: Endpoints and important differences

Ekstrom, M Currow, DC

Johnson, MJ

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Publication Type:: Journal Article
Citation:: Current Opinion in Supportive and Palliative Care, 2015, 9 (3), pp. 238 - 243
Issue Date:: 2015-01-01

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Field	Value	Language
dc.contributor.author	Ekstrom, M	en_US
dc.contributor.author	Currow, DC https://orcid.org/0000-0003-1988-1250	en_US
dc.contributor.author	Johnson, MJ	en_US
dc.date.issued	2015-01-01	en_US
dc.identifier.citation	Current Opinion in Supportive and Palliative Care, 2015, 9 (3), pp. 238 - 243	en_US
dc.identifier.issn	1751-4258	en_US
dc.identifier.uri	http://hdl.handle.net/10453/118552
dc.description.abstract	© 2015 Wolters Kluwer Health, Inc. All rights reserved. Purpose of review Standardized measurement of self-rated breathlessness using appropriate tools is essential for research and clinical care. The purpose was to review recent advances in the measurement of breathlessness and the minimal clinically important differences (MCIDs) in intensity of chronic breathlessness. Recent findings Two tools have been validated in people with chronic obstructive pulmonary disease (COPD) to measure daily symptoms and breathlessness related to daily activities. Two multidimensional tools have been developed for different settings and aetiologies, which measure both the perceived intensity, unpleasantness, quality of breathlessness, and the person's emotional response to it. MCIDs have been reported for the intensity of chronic refractory breathlessness, the daily symptom diary, and breathlessness related to daily activities in COPD. Summary There have been substantial developments in instruments able to provide reliable and valid unidimensional and multidimensional measurement of self-reported breathlessness and in the understanding of the MCID for chronic breathlessness. Routine use of agreed outcome measures in clinical practice and research are crucial steps to improve our understanding of the science of breathlessness and its impact on patients' outcomes.	en_US
dc.relation.ispartof	Current Opinion in Supportive and Palliative Care	en_US
dc.relation.isbasedon	10.1097/SPC.0000000000000147	en_US
dc.subject.classification	Oncology & Carcinogenesis	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Pulmonary Disease, Chronic Obstructive	en_US
dc.subject.mesh	Dyspnea	en_US
dc.subject.mesh	Treatment Outcome	en_US
dc.subject.mesh	Palliative Care	en_US
dc.subject.mesh	Trauma Severity Indices	en_US
dc.subject.mesh	Quality of Life	en_US
dc.subject.mesh	Self Report	en_US
dc.title	Outcome measurement of refractory breathlessness: Endpoints and important differences	en_US
dc.type	Journal Article
utslib.citation.volume	3	en_US
utslib.citation.volume	9	en_US
utslib.for	1110 Nursing	en_US
utslib.for	1117 Public Health and Health Services	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/IMPACCT
utslib.copyright.status	open_access
pubs.issue	3	en_US
pubs.publication-status	Published	en_US
pubs.volume	9	en_US

Abstract:

© 2015 Wolters Kluwer Health, Inc. All rights reserved. Purpose of review Standardized measurement of self-rated breathlessness using appropriate tools is essential for research and clinical care. The purpose was to review recent advances in the measurement of breathlessness and the minimal clinically important differences (MCIDs) in intensity of chronic breathlessness. Recent findings Two tools have been validated in people with chronic obstructive pulmonary disease (COPD) to measure daily symptoms and breathlessness related to daily activities. Two multidimensional tools have been developed for different settings and aetiologies, which measure both the perceived intensity, unpleasantness, quality of breathlessness, and the person's emotional response to it. MCIDs have been reported for the intensity of chronic refractory breathlessness, the daily symptom diary, and breathlessness related to daily activities in COPD. Summary There have been substantial developments in instruments able to provide reliable and valid unidimensional and multidimensional measurement of self-reported breathlessness and in the understanding of the MCID for chronic breathlessness. Routine use of agreed outcome measures in clinical practice and research are crucial steps to improve our understanding of the science of breathlessness and its impact on patients' outcomes.

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http://hdl.handle.net/10453/118552