Views of the UK General Public on Important Aspects of Health Not Captured by EQ-5D

Shah, KK; Mulhern, B; Longworth, L; Janssen, MF

Views of the UK General Public on Important Aspects of Health Not Captured by EQ-5D

Shah, KK Mulhern, B

Longworth, L Janssen, MF

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Publication Type:: Journal Article
Citation:: Patient, 2017, 10 (6), pp. 701 - 709
Issue Date:: 2017-12-01

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Field	Value	Language
dc.contributor.author	Shah, KK	en_US
dc.contributor.author	Mulhern, B https://orcid.org/0000-0003-3656-8063	en_US
dc.contributor.author	Longworth, L	en_US
dc.contributor.author	Janssen, MF	en_US
dc.date.issued	2017-12-01	en_US
dc.identifier.citation	Patient, 2017, 10 (6), pp. 701 - 709	en_US
dc.identifier.issn	1178-1653	en_US
dc.identifier.uri	http://hdl.handle.net/10453/125508
dc.description.abstract	© 2017, Springer International Publishing Switzerland. Introduction: The EQ-5D is a standardised instrument designed for use as a generic measure of health outcome. It was (and is) intended to provide information about a ‘common core’ of dimensions known to be relevant across a range of conditions; however, the five dimensions may not fully capture the health-related impacts of certain conditions. This study analyses the views of the UK general public about important aspects of health considered to be missing from the instrument. Methods: Survey respondents were asked whether there are any aspects of health they consider to be important but are not captured by the EQ-5D, and, if so, what these aspects are. The responses (text comments) were analysed using content analysis with analyst triangulation. Data were collected from a broadly representative sample of the general public via a paper questionnaire administered as part of face-to-face interviews. Results: Data are available for 436 respondents, 179 of whom suggested aspects of health they considered important but not captured by the five EQ-5D dimensions. These were organised into 22 themes. Sensory deprivation and mental health were the health aspects most commonly mentioned by respondents. Conclusions: Respondents identified several important aspects of health that are not covered by the EQ-5D descriptive system. This study can provide the basis for more detailed qualitative and quantitative research—in particular to examine the views of different patient groups—to inform further review of the EQ-5D descriptive system. The results also have implications for the sensitivity of other generic measures.	en_US
dc.relation.ispartof	Patient	en_US
dc.relation.isbasedon	10.1007/s40271-017-0240-1	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Reproducibility of Results	en_US
dc.subject.mesh	Psychometrics	en_US
dc.subject.mesh	Health Status	en_US
dc.subject.mesh	Quality of Life	en_US
dc.subject.mesh	Public Opinion	en_US
dc.subject.mesh	Socioeconomic Factors	en_US
dc.subject.mesh	Adolescent	en_US
dc.subject.mesh	Adult	en_US
dc.subject.mesh	Aged	en_US
dc.subject.mesh	Middle Aged	en_US
dc.subject.mesh	Female	en_US
dc.subject.mesh	Male	en_US
dc.subject.mesh	Young Adult	en_US
dc.subject.mesh	Surveys and Questionnaires	en_US
dc.subject.mesh	United Kingdom	en_US
dc.title	Views of the UK General Public on Important Aspects of Health Not Captured by EQ-5D	en_US
dc.type	Journal Article
utslib.citation.volume	6	en_US
utslib.citation.volume	10	en_US
utslib.for	140208 Health Economics	en_US
utslib.for	11 Medical and Health Sciences	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Business
pubs.organisational-group	/University of Technology Sydney/Strength - CHERE - Centre for Health Economics Research and Evaluation
utslib.copyright.status	open_access
pubs.issue	6	en_US
pubs.publication-status	Published	en_US
pubs.volume	10	en_US

Abstract:

© 2017, Springer International Publishing Switzerland. Introduction: The EQ-5D is a standardised instrument designed for use as a generic measure of health outcome. It was (and is) intended to provide information about a ‘common core’ of dimensions known to be relevant across a range of conditions; however, the five dimensions may not fully capture the health-related impacts of certain conditions. This study analyses the views of the UK general public about important aspects of health considered to be missing from the instrument. Methods: Survey respondents were asked whether there are any aspects of health they consider to be important but are not captured by the EQ-5D, and, if so, what these aspects are. The responses (text comments) were analysed using content analysis with analyst triangulation. Data were collected from a broadly representative sample of the general public via a paper questionnaire administered as part of face-to-face interviews. Results: Data are available for 436 respondents, 179 of whom suggested aspects of health they considered important but not captured by the five EQ-5D dimensions. These were organised into 22 themes. Sensory deprivation and mental health were the health aspects most commonly mentioned by respondents. Conclusions: Respondents identified several important aspects of health that are not covered by the EQ-5D descriptive system. This study can provide the basis for more detailed qualitative and quantitative research—in particular to examine the views of different patient groups—to inform further review of the EQ-5D descriptive system. The results also have implications for the sensitivity of other generic measures.

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http://hdl.handle.net/10453/125508