Living with Inflammatory Bowel Disease: A review of qualitative research studies

Fourie, S; Jackson, D; Aveyard, H

Living with Inflammatory Bowel Disease: A review of qualitative research studies

Fourie, S Jackson, D

Aveyard, H

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Publication Type:: Journal Article
Citation:: International Journal of Nursing Studies, 2018, 87 pp. 149 - 156
Issue Date:: 2018-11-01

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Field	Value	Language
dc.contributor.author	Fourie, S	en_US
dc.contributor.author	Jackson, D https://orcid.org/0000-0001-5252-5325	en_US
dc.contributor.author	Aveyard, H	en_US
dc.date.available	2020-05-25T19:02:59Z
dc.date.issued	2018-11-01	en_US
dc.identifier.citation	International Journal of Nursing Studies, 2018, 87 pp. 149 - 156	en_US
dc.identifier.issn	0020-7489	en_US
dc.identifier.uri	http://hdl.handle.net/10453/127851
dc.description.abstract	© 2018 Elsevier Ltd Background: Inflammatory Bowel Disease is a chronic, untreatable condition represented by two illnesses, Crohn's and Ulcerative Colitis. Despite high incidence in well-developed industrialised countries, and the significant impact of symptoms on patient's quality of life, little is known about living with Inflammatory Bowel Disease. Aim: To explore the patients’ experiences of living with Inflammatory Bowel Disease. Design: A qualitative systematic review. Data sources: CINAHL, Medline, British Nursing Index and PsycINFO were searched using the following keywords: Inflammatory Bowel Disease AND experiences. We have limited the search to studies published in English from 2000 to 2017. Review method: Thematic synthesis. Results: Data from 23 studies, identified that fatigue, incontinence and uncertainty about future, body image, and lack of information from healthcare professionals dominated the experiences of those living with Inflammatory Bowel Disease. Also, patients living with Inflammatory Bowel Disease were reluctant to disclose their illness due to lack of public awareness and stigma surrounding symptoms. From these, an overarching theme has been identified: Living in isolation and exclusion. Conclusion: Patients with Inflammatory Bowel Disease face a variety of problems, often their priorities and those of healthcare professionals differ greatly. Healthcare professionals have little evidence needed to provide adequate, holistic care to this group. With a rise in the Inflammatory Bowel Disease population in newly industrialised countries it is estimated that the condition is turning into a global disease, potentially making long term care unsustainable. More evidence is needed to understand the concerns of this group.	en_US
dc.relation.ispartof	International Journal of Nursing Studies	en_US
dc.relation.isbasedon	10.1016/j.ijnurstu.2018.07.017	en_US
dc.subject.classification	Nursing	en_US
dc.subject.mesh	Humans	en_US
dc.subject.mesh	Inflammatory Bowel Diseases	en_US
dc.subject.mesh	Qualitative Research	en_US
dc.subject.mesh	Quality of Life	en_US
dc.title	Living with Inflammatory Bowel Disease: A review of qualitative research studies	en_US
dc.type	Journal Article
utslib.citation.volume	87	en_US
utslib.for	1110 Nursing	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Faculty of Health/Nursing
utslib.copyright.status	open_access
pubs.publication-status	Published	en_US
pubs.volume	87	en_US

Abstract:

© 2018 Elsevier Ltd Background: Inflammatory Bowel Disease is a chronic, untreatable condition represented by two illnesses, Crohn's and Ulcerative Colitis. Despite high incidence in well-developed industrialised countries, and the significant impact of symptoms on patient's quality of life, little is known about living with Inflammatory Bowel Disease. Aim: To explore the patients’ experiences of living with Inflammatory Bowel Disease. Design: A qualitative systematic review. Data sources: CINAHL, Medline, British Nursing Index and PsycINFO were searched using the following keywords: Inflammatory Bowel Disease AND experiences. We have limited the search to studies published in English from 2000 to 2017. Review method: Thematic synthesis. Results: Data from 23 studies, identified that fatigue, incontinence and uncertainty about future, body image, and lack of information from healthcare professionals dominated the experiences of those living with Inflammatory Bowel Disease. Also, patients living with Inflammatory Bowel Disease were reluctant to disclose their illness due to lack of public awareness and stigma surrounding symptoms. From these, an overarching theme has been identified: Living in isolation and exclusion. Conclusion: Patients with Inflammatory Bowel Disease face a variety of problems, often their priorities and those of healthcare professionals differ greatly. Healthcare professionals have little evidence needed to provide adequate, holistic care to this group. With a rise in the Inflammatory Bowel Disease population in newly industrialised countries it is estimated that the condition is turning into a global disease, potentially making long term care unsustainable. More evidence is needed to understand the concerns of this group.

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http://hdl.handle.net/10453/127851