Pass the parcel: Service provider views on bridging gaps for youth with dual diagnosis of intellectual disability and mental health disorders in regional areas

Son, J; Debono, D; Leitner, R; Lenroot, R; Johnson, J

Pass the parcel: Service provider views on bridging gaps for youth with dual diagnosis of intellectual disability and mental health disorders in regional areas

Son, J Debono, D

Leitner, R Lenroot, R Johnson, J

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Publication Type:: Journal Article
Citation:: Journal of Paediatrics and Child Health, 2019, 55 (6), pp. 666 - 672
Issue Date:: 2019-06-01

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Field	Value	Language
dc.contributor.author	Son, J	en_US
dc.contributor.author	Debono, D https://orcid.org/0000-0003-2095-156X	en_US
dc.contributor.author	Leitner, R	en_US
dc.contributor.author	Lenroot, R	en_US
dc.contributor.author	Johnson, J	en_US
dc.date.available	2018-09-16	en_US
dc.date.issued	2019-06-01	en_US
dc.identifier.citation	Journal of Paediatrics and Child Health, 2019, 55 (6), pp. 666 - 672	en_US
dc.identifier.issn	1034-4810	en_US
dc.identifier.uri	http://hdl.handle.net/10453/128078
dc.description.abstract	© 2018 Paediatrics and Child Health Division (The Royal Australasian College of Physicians) Aim: Youth with both intellectual disability (ID) and mental health (MH) disorders (dual diagnosis) have complex physical and MH needs that can make providing integrated care for this complex group challenging. We conducted a mixed methods needs assessment to identify gaps and challenges in care delivery, identify bridges for these and identify what works well in existing services. Methods: Our research team recruited service providers (n = 126) caring for youth aged 14–24 years with a dual diagnosis in the Illawarra Shoalhaven region of New South Wales, Australia, to participate in focus group interviews. Data were transcribed and analysed thematically. Results: We identified six themes related to caring for youth with dual diagnosis in regional areas: access to services and information about services, communication between service providers and with clients and carers, the divide between MH and ID, early intervention and health promotion, capacity building of service providers and capacity building of clients and carers. Across these themes, service providers highlighted the transition from child to adult services as a particularly challenging time for clients, families and carers. Conclusions: Our data suggest several approaches to break down silos and to facilitate collaboration between current services for youth with a dual diagnosis, including increasing specialised ID/MH services and building the capacity of current disability and MH service providers. Our results provide important information to provide quality and integrated care for youth with complex health needs.	en_US
dc.relation.ispartof	Journal of Paediatrics and Child Health	en_US
dc.relation.isbasedon	10.1111/jpc.14266	en_US
dc.subject.classification	Pediatrics	en_US
dc.title	Pass the parcel: Service provider views on bridging gaps for youth with dual diagnosis of intellectual disability and mental health disorders in regional areas	en_US
dc.type	Journal Article
utslib.citation.volume	6	en_US
utslib.citation.volume	55	en_US
utslib.for	1117 Public Health and Health Services	en_US
utslib.for	1103 Clinical Sciences	en_US
utslib.for	1114 Paediatrics and Reproductive Medicine	en_US
pubs.embargo.period	Not known	en_US
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access
pubs.issue	6	en_US
pubs.publication-status	Published	en_US
pubs.volume	55	en_US

Abstract:

© 2018 Paediatrics and Child Health Division (The Royal Australasian College of Physicians) Aim: Youth with both intellectual disability (ID) and mental health (MH) disorders (dual diagnosis) have complex physical and MH needs that can make providing integrated care for this complex group challenging. We conducted a mixed methods needs assessment to identify gaps and challenges in care delivery, identify bridges for these and identify what works well in existing services. Methods: Our research team recruited service providers (n = 126) caring for youth aged 14–24 years with a dual diagnosis in the Illawarra Shoalhaven region of New South Wales, Australia, to participate in focus group interviews. Data were transcribed and analysed thematically. Results: We identified six themes related to caring for youth with dual diagnosis in regional areas: access to services and information about services, communication between service providers and with clients and carers, the divide between MH and ID, early intervention and health promotion, capacity building of service providers and capacity building of clients and carers. Across these themes, service providers highlighted the transition from child to adult services as a particularly challenging time for clients, families and carers. Conclusions: Our data suggest several approaches to break down silos and to facilitate collaboration between current services for youth with a dual diagnosis, including increasing specialised ID/MH services and building the capacity of current disability and MH service providers. Our results provide important information to provide quality and integrated care for youth with complex health needs.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/128078