Help-seeking behaviour of Chinese carers of people living with dementia

Publication Type:
Thesis
Issue Date:
2019
Full metadata record
Background: The challenge of caring for a family member with dementia is exacerbated when carers do not seek support from others. The aims of the study were to explore: the socio-cultural factors involved in Chinese carers seeking or not seeking help with the care of a family member with dementia, and the enablers and the barriers to help-seeking in the caring role. Method: This exploratory, qualitative investigation employed semi-structured interviews with 16 Chinese people caring for a family member with symptoms of dementia. Nine participants sought help, and seven had not sought help. Results: Chinese cultural ideology influenced perceptions of caring responsibilities and help-seeking decisions in both groups. Barriers included: misinformation from medical practitioners, lack of information about and confidence in support services, and reluctance to seek help. Enablers included: acceptance of dementia, acknowledgement of the need for support, and availability of Chinese dementia support services. Conclusion: Maintaining Confucian social order, including protection of family honour, veneration of elders and filial piety, influence help-seeking as well as access to culturally sensitive and safe support services. These findings have the potential to improve service utilization and opportunities for Chinese carers by informing improved outreach and educational services that accommodate Chinese cultural beliefs and practices.
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