Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear).

Smith, AB; Bamgboje-Ayodele, A; Butow, P; Klein, B; Turner, J; Sharpe, L; Fardell, J; Beatty, L; Pearce, A; Thewes, B; Beith, J; iConquerFear Community Advisory Group,; Girgis, A

Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear).

Smith, AB Bamgboje-Ayodele, A Butow, P Klein, B Turner, J Sharpe, L Fardell, J Beatty, L Pearce, A Thewes, B Beith, J iConquerFear Community Advisory Group, Girgis, A

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Publisher:: WILEY
Publication Type:: Journal Article
Citation:: Psycho-oncology, 2020, 29, (1), pp. 98-106
Issue Date:: 2020-01

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Field	Value	Language
dc.contributor.author	Smith, AB
dc.contributor.author	Bamgboje-Ayodele, A
dc.contributor.author	Butow, P
dc.contributor.author	Klein, B
dc.contributor.author	Turner, J
dc.contributor.author	Sharpe, L
dc.contributor.author	Fardell, J
dc.contributor.author	Beatty, L
dc.contributor.author	Pearce, A
dc.contributor.author	Thewes, B
dc.contributor.author	Beith, J
dc.contributor.author	iConquerFear Community Advisory Group,
dc.contributor.author	Girgis, A
dc.date.accessioned	2021-05-22T22:08:08Z
dc.date.available	2019-09-01
dc.date.available	2021-05-22T22:08:08Z
dc.date.issued	2020-01
dc.identifier.citation	Psycho-oncology, 2020, 29, (1), pp. 98-106
dc.identifier.issn	1057-9249
dc.identifier.issn	1099-1611
dc.identifier.uri	http://hdl.handle.net/10453/149069
dc.description.abstract	OBJECTIVE:To develop and evaluate the usability of iConquerFear, an online self-management adaptation of an efficacious face-to-face therapist-delivered treatment for fear of cancer recurrence (FCR). METHODS:iConquerFear development was theory based and person based. Development was guided by Ritterband et al's behaviour change model for internet interventions. iConquerFear end users (cancer survivors) provided iterative feedback in accordance with Yardley et al's person-based approach to maximise engagement and usability. Online focus groups and cognitive interviews were conducted to evaluate the usability of iConquerFear. Discussions were recorded, transcribed verbatim, and thematically analysed. RESULTS:Five online FCR modules were developed. Twenty-three cancer survivors (47% of those eligible) participated; 11/23 (58%) were breast cancer survivors, and average age was 53 years (SD = 10.8). Thematic saturation was reached after six focus groups (n = 16) and seven individual think-aloud interviews. Thematic analysis produced five overarching themes: easy navigation essential; satisfaction and engagement with content; flexible access is key; normalising and empowering; and a useful first step. CONCLUSIONS:Online self-management interventions like iConquerFear have the potential to address the unmet supportive care needs reported by burgeoning numbers of cancer survivors. However, that potential may not be realised unless interventions are rigorously developed and user tested, as benefits are constrained by limited engagement. Themes from the usability testing of iConquerFear highlight the importance of developing flexible, tailored, interactive, and contextual online self-management interventions for people with cancer.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	WILEY
dc.relation.ispartof	Psycho-oncology
dc.relation.isbasedon	10.1002/pon.5218
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences, 1112 Oncology and Carcinogenesis, 1701 Psychology
dc.subject.classification	Oncology & Carcinogenesis
dc.subject.mesh	Humans
dc.subject.mesh	Breast Neoplasms
dc.subject.mesh	Neoplasm Recurrence, Local
dc.subject.mesh	Phobic Disorders
dc.subject.mesh	Middle Aged
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Cancer Survivors
dc.subject.mesh	Self-Management
dc.subject.mesh	Internet-Based Intervention
dc.subject.mesh	Outcome and Process Assessment, Health Care
dc.subject.mesh	Breast Neoplasms
dc.subject.mesh	Cancer Survivors
dc.subject.mesh	Female
dc.subject.mesh	Humans
dc.subject.mesh	Internet-Based Intervention
dc.subject.mesh	Male
dc.subject.mesh	Middle Aged
dc.subject.mesh	Neoplasm Recurrence, Local
dc.subject.mesh	Outcome and Process Assessment, Health Care
dc.subject.mesh	Phobic Disorders
dc.subject.mesh	Self-Management
dc.title	Development and usability evaluation of an online self-management intervention for fear of cancer recurrence (iConquerFear).
dc.type	Journal Article
utslib.citation.volume	29
utslib.location.activity	England
utslib.for	1103 Clinical Sciences
utslib.for	1112 Oncology and Carcinogenesis
utslib.for	1701 Psychology
utslib.for	1103 Clinical Sciences
utslib.for	1112 Oncology and Carcinogenesis
utslib.for	1701 Psychology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Business
utslib.copyright.status	closed_access	*
dc.date.updated	2021-05-22T22:08:07Z
pubs.issue	1
pubs.publication-status	Published
pubs.volume	29
utslib.citation.issue	1

Abstract:

OBJECTIVE:To develop and evaluate the usability of iConquerFear, an online self-management adaptation of an efficacious face-to-face therapist-delivered treatment for fear of cancer recurrence (FCR). METHODS:iConquerFear development was theory based and person based. Development was guided by Ritterband et al's behaviour change model for internet interventions. iConquerFear end users (cancer survivors) provided iterative feedback in accordance with Yardley et al's person-based approach to maximise engagement and usability. Online focus groups and cognitive interviews were conducted to evaluate the usability of iConquerFear. Discussions were recorded, transcribed verbatim, and thematically analysed. RESULTS:Five online FCR modules were developed. Twenty-three cancer survivors (47% of those eligible) participated; 11/23 (58%) were breast cancer survivors, and average age was 53 years (SD = 10.8). Thematic saturation was reached after six focus groups (n = 16) and seven individual think-aloud interviews. Thematic analysis produced five overarching themes: easy navigation essential; satisfaction and engagement with content; flexible access is key; normalising and empowering; and a useful first step. CONCLUSIONS:Online self-management interventions like iConquerFear have the potential to address the unmet supportive care needs reported by burgeoning numbers of cancer survivors. However, that potential may not be realised unless interventions are rigorously developed and user tested, as benefits are constrained by limited engagement. Themes from the usability testing of iConquerFear highlight the importance of developing flexible, tailored, interactive, and contextual online self-management interventions for people with cancer.

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http://hdl.handle.net/10453/149069