Costs, burden and quality of life associated with informal caregiving for children with Lymphoma attending a tertiary hospital in Ghana

Dawson, CP; Aryeetey, GC; Agyemang, SA; Mensah, K; Addo, R; Nonvignon, J

Costs, burden and quality of life associated with informal caregiving for children with Lymphoma attending a tertiary hospital in Ghana

Dawson, CP Aryeetey, GC Agyemang, SA Mensah, K Addo, R

Nonvignon, J

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Publisher:: SAGE Publications
Publication Type:: Journal Article
Citation:: International Journal of Care Coordination, 2020, 23, (4), pp. 165-172
Issue Date:: 2020-01-01

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Field	Value	Language
dc.contributor.author	Dawson, CP
dc.contributor.author	Aryeetey, GC
dc.contributor.author	Agyemang, SA
dc.contributor.author	Mensah, K
dc.contributor.author	Addo, R https://orcid.org/0000-0002-5970-1122
dc.contributor.author	Nonvignon, J
dc.date.accessioned	2021-06-21T22:46:03Z
dc.date.available	2021-06-21T22:46:03Z
dc.date.issued	2020-01-01
dc.identifier.citation	International Journal of Care Coordination, 2020, 23, (4), pp. 165-172
dc.identifier.issn	2053-4345
dc.identifier.issn	2053-4353
dc.identifier.uri	http://hdl.handle.net/10453/149684
dc.description.abstract	Introduction: Primary family caregivers provide substantial support in the management of lymphoma, potentially affecting their quality of life and increasing household health care costs. Our aim was thus to determine the economic costs and quality of life of primary caregivers of children with lymphoma. Methods: This cross-sectional study involved primary informal caregivers of children with lymphoma attending the pediatric cancer unit at Komfo Anokye Teaching Hospital. The study adopted a cost-of-illness approach to estimate the direct costs (medical and non- medical) incurred and indirect cost (productive losses) to caregivers over the one-month period preceding the data collection. Zarit Burden Interview was used to determine caregiver burden and EUROHIS-QoL tool was used to determine the quality of life of primary caregivers. Results: The average cost of managing lymphoma in children was estimated to be US$440.32, 97% of which were direct costs. On average, caregiver burden was 26.3 on the scale of 0 to 48. About 94% of caregivers reported high burden, with more males reporting high burden. Overall, average quality of life among caregivers was 2.20 on the 1 to 5 range. Approximately 85% of respondents reported low quality of life, with females reporting lower quality of life than males. Discussion: This study shows that lymphoma is associated with substantial cost and increased burden, and affects quality of life of family caregivers. Future studies can explore the impact of social protection interventions (in the form of health insurance) to reduce the household economic burden of managing lymphoma in children.
dc.language	en
dc.publisher	SAGE Publications
dc.relation.ispartof	International Journal of Care Coordination
dc.relation.isbasedon	10.1177/2053434520981357
dc.rights	info:eu-repo/semantics/closedAccess
dc.title	Costs, burden and quality of life associated with informal caregiving for children with Lymphoma attending a tertiary hospital in Ghana
dc.type	Journal Article
utslib.citation.volume	23
utslib.for	140208 Health Economics
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Business
pubs.organisational-group	/University of Technology Sydney/Strength - CHERE - Centre for Health Economics Research and Evaluation
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2021-06-21T22:46:02Z
pubs.issue	4
pubs.publication-status	Published
pubs.volume	23
utslib.citation.issue	4

Abstract:

Introduction: Primary family caregivers provide substantial support in the management of lymphoma, potentially affecting their quality of life and increasing household health care costs. Our aim was thus to determine the economic costs and quality of life of primary caregivers of children with lymphoma. Methods: This cross-sectional study involved primary informal caregivers of children with lymphoma attending the pediatric cancer unit at Komfo Anokye Teaching Hospital. The study adopted a cost-of-illness approach to estimate the direct costs (medical and non- medical) incurred and indirect cost (productive losses) to caregivers over the one-month period preceding the data collection. Zarit Burden Interview was used to determine caregiver burden and EUROHIS-QoL tool was used to determine the quality of life of primary caregivers. Results: The average cost of managing lymphoma in children was estimated to be US$440.32, 97% of which were direct costs. On average, caregiver burden was 26.3 on the scale of 0 to 48. About 94% of caregivers reported high burden, with more males reporting high burden. Overall, average quality of life among caregivers was 2.20 on the 1 to 5 range. Approximately 85% of respondents reported low quality of life, with females reporting lower quality of life than males. Discussion: This study shows that lymphoma is associated with substantial cost and increased burden, and affects quality of life of family caregivers. Future studies can explore the impact of social protection interventions (in the form of health insurance) to reduce the household economic burden of managing lymphoma in children.

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http://hdl.handle.net/10453/149684