A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs.

Nelson, KE; Wright, R; Fisher, M; Koirala, B; Roberts, B; Sloan, DH; Wu, DS; Davidson, PM

A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs.

Nelson, KE Wright, R Fisher, M Koirala, B Roberts, B Sloan, DH Wu, DS Davidson, PM

Permalink

Publisher:: Mary Ann Liebert Inc
Publication Type:: Journal Article
Citation:: Journal of palliative medicine, 2021, 24, (2), pp. 177-180
Issue Date:: 2021-02-01

Closed Access

	Filename	Description	Size
	jpm.2020.0435.pdf		200.83 kB	Adobe PDF	View/Open

Copyright Clearance Process

Recently Added
In Progress
Closed Access

This item is closed access and not available.

Full metadata record

Field	Value	Language
dc.contributor.author	Nelson, KE
dc.contributor.author	Wright, R
dc.contributor.author	Fisher, M
dc.contributor.author	Koirala, B
dc.contributor.author	Roberts, B
dc.contributor.author	Sloan, DH
dc.contributor.author	Wu, DS
dc.contributor.author	Davidson, PM
dc.date.accessioned	2021-09-03T03:47:47Z
dc.date.available	2021-09-03T03:47:47Z
dc.date.issued	2021-02-01
dc.identifier.citation	Journal of palliative medicine, 2021, 24, (2), pp. 177-180
dc.identifier.issn	1096-6218
dc.identifier.issn	1557-7740
dc.identifier.uri	http://hdl.handle.net/10453/150307
dc.description.abstract	Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Mary Ann Liebert Inc
dc.relation.ispartof	Journal of palliative medicine
dc.relation.isbasedon	10.1089/jpm.2020.0435
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences, 1110 Nursing, 1117 Public Health and Health Services
dc.subject.classification	Gerontology
dc.subject.mesh	COVID-19
dc.subject.mesh	Health Services Accessibility
dc.subject.mesh	Healthcare Disparities
dc.subject.mesh	Humans
dc.subject.mesh	Models, Theoretical
dc.subject.mesh	Palliative Care
dc.subject.mesh	Pandemics
dc.subject.mesh	Patient-Centered Care
dc.subject.mesh	SARS-CoV-2
dc.subject.mesh	Social Justice
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Models, Theoretical
dc.subject.mesh	Social Justice
dc.subject.mesh	Patient-Centered Care
dc.subject.mesh	Health Services Accessibility
dc.subject.mesh	Healthcare Disparities
dc.subject.mesh	Pandemics
dc.subject.mesh	COVID-19
dc.subject.mesh	SARS-CoV-2
dc.subject.mesh	COVID-19
dc.subject.mesh	Health Services Accessibility
dc.subject.mesh	Healthcare Disparities
dc.subject.mesh	Humans
dc.subject.mesh	Models, Theoretical
dc.subject.mesh	Palliative Care
dc.subject.mesh	Pandemics
dc.subject.mesh	Patient-Centered Care
dc.subject.mesh	SARS-CoV-2
dc.subject.mesh	Social Justice
dc.title	A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs.
dc.type	Journal Article
utslib.citation.volume	24
utslib.location.activity	United States
utslib.for	1103 Clinical Sciences
utslib.for	1110 Nursing
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2021-09-03T03:47:46Z
pubs.issue	2
pubs.publication-status	Published
pubs.volume	24
utslib.citation.issue	2

Abstract:

Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/150307