Priorities and expectations of patients attending a multidisciplinary interstitial lung disease clinic.

McLean, AEB; Webster, SE; Fry, M; Lau, EM; Corte, P; Torzillo, PJ; Troy, LK; Jo, HE; Geis, M; Rhodes, JE; Cleary, S; Spencer, L; Corte, TJ

Priorities and expectations of patients attending a multidisciplinary interstitial lung disease clinic.

McLean, AEB Webster, SE Fry, M

Lau, EM Corte, P Torzillo, PJ Troy, LK Jo, HE Geis, M Rhodes, JE Cleary, S Spencer, L Corte, TJ

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Publisher:: Wiley
Publication Type:: Journal Article
Citation:: Respirology, 2021, 26, (1), pp. 80-86
Issue Date:: 2021-01-01

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Field	Value	Language
dc.contributor.author	McLean, AEB
dc.contributor.author	Webster, SE
dc.contributor.author	Fry, M https://orcid.org/0000-0003-1265-7096
dc.contributor.author	Lau, EM
dc.contributor.author	Corte, P
dc.contributor.author	Torzillo, PJ
dc.contributor.author	Troy, LK
dc.contributor.author	Jo, HE
dc.contributor.author	Geis, M
dc.contributor.author	Rhodes, JE
dc.contributor.author	Cleary, S
dc.contributor.author	Spencer, L
dc.contributor.author	Corte, TJ
dc.date.accessioned	2021-12-06T22:15:07Z
dc.date.available	2020-06-29
dc.date.available	2021-12-06T22:15:07Z
dc.date.issued	2021-01-01
dc.identifier.citation	Respirology, 2021, 26, (1), pp. 80-86
dc.identifier.issn	1323-7799
dc.identifier.issn	1440-1843
dc.identifier.uri	http://hdl.handle.net/10453/152164
dc.description.abstract	Background and objective The significant and progressive morbidity associated with ILD mean that patients often struggle with the impact of this disease on their QOL and independence. To date, no studies have investigated the importance of multidisciplinary care on patient experience in ILD. We aimed to determine the expectations and priorities of patients attending a tertiary referral centre multidisciplinary ILD clinic. In particular, we sought to learn how important the multidisciplinary element of the clinic was to patients and which aspects of the clinic were most valued. Methods An 18-item patient questionnaire was developed in conjunction with expert physicians and specialist nurses involved in the ILD clinic and sent to all patients on the centre's ILD registry at the time of the study (n = 240). Patients rated the importance of different aspects of their experience of attending the clinic. Data collected were analysed using descriptive statistics. Comparisons across disease severity were made using two-sided Z-tests for independent proportions. Results A total of 100 respondents comprised the study group. Almost all respondents valued the multidisciplinary aspect of the clinic. Obtaining an accurate diagnosis and improving their disease understanding was most important to respondents. The importance of the ILD specialist nurse for both education and support increased with worsening disease severity. Conclusion Our results suggest that a multidisciplinary approach to the management of ILD with additional focus on patient education, as well as tailoring care to disease severity, is a plausible pathway to improving the patient experience with ILD.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	Respirology
dc.relation.isbasedon	10.1111/resp.13913
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	11 Medical and Health Sciences
dc.subject.classification	Respiratory System
dc.subject.mesh	Humans
dc.subject.mesh	Lung Diseases, Interstitial
dc.subject.mesh	Interdisciplinary Communication
dc.subject.mesh	Quality of Life
dc.subject.mesh	Aged
dc.subject.mesh	Female
dc.subject.mesh	Male
dc.subject.mesh	Patient Education as Topic
dc.subject.mesh	Aged
dc.subject.mesh	Female
dc.subject.mesh	Humans
dc.subject.mesh	Interdisciplinary Communication
dc.subject.mesh	Lung Diseases, Interstitial
dc.subject.mesh	Male
dc.subject.mesh	Patient Education as Topic
dc.subject.mesh	Quality of Life
dc.title	Priorities and expectations of patients attending a multidisciplinary interstitial lung disease clinic.
dc.type	Journal Article
utslib.citation.volume	26
utslib.location.activity	Australia
utslib.for	11 Medical and Health Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2021-12-06T22:15:06Z
pubs.issue	1
pubs.publication-status	Published
pubs.volume	26
utslib.citation.issue	1

Abstract:

Background and objective The significant and progressive morbidity associated with ILD mean that patients often struggle with the impact of this disease on their QOL and independence. To date, no studies have investigated the importance of multidisciplinary care on patient experience in ILD. We aimed to determine the expectations and priorities of patients attending a tertiary referral centre multidisciplinary ILD clinic. In particular, we sought to learn how important the multidisciplinary element of the clinic was to patients and which aspects of the clinic were most valued. Methods An 18-item patient questionnaire was developed in conjunction with expert physicians and specialist nurses involved in the ILD clinic and sent to all patients on the centre's ILD registry at the time of the study (n = 240). Patients rated the importance of different aspects of their experience of attending the clinic. Data collected were analysed using descriptive statistics. Comparisons across disease severity were made using two-sided Z-tests for independent proportions. Results A total of 100 respondents comprised the study group. Almost all respondents valued the multidisciplinary aspect of the clinic. Obtaining an accurate diagnosis and improving their disease understanding was most important to respondents. The importance of the ILD specialist nurse for both education and support increased with worsening disease severity. Conclusion Our results suggest that a multidisciplinary approach to the management of ILD with additional focus on patient education, as well as tailoring care to disease severity, is a plausible pathway to improving the patient experience with ILD.

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http://hdl.handle.net/10453/152164