N09 Sexuality as lived incompleteness: exploring intimacy and sexuality experiences of people living with inflammatory bowel disease

Fourie, S; Norton, C; Jackson, D; Czuber-Dochan, W

N09 Sexuality as lived incompleteness: exploring intimacy and sexuality experiences of people living with inflammatory bowel disease

Fourie, S Norton, C Jackson, D

Czuber-Dochan, W

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Publisher:: Oxford University Press (OUP)
Publication Type:: Journal Article
Citation:: Journal of Crohn's and Colitis, 2021, 15, (Supplement_1), pp. s612-s613
Issue Date:: 2021-05-27

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Field	Value	Language
dc.contributor.author	Fourie, S
dc.contributor.author	Norton, C
dc.contributor.author	Jackson, D https://orcid.org/0000-0001-5252-5325
dc.contributor.author	Czuber-Dochan, W
dc.date.accessioned	2022-03-25T03:54:45Z
dc.date.available	2022-03-25T03:54:45Z
dc.date.issued	2021-05-27
dc.identifier.citation	Journal of Crohn's and Colitis, 2021, 15, (Supplement_1), pp. s612-s613
dc.identifier.issn	1197-4982
dc.identifier.issn	1876-4479
dc.identifier.uri	http://hdl.handle.net/10453/155548
dc.description.abstract	<jats:title>Abstract</jats:title> <jats:sec> <jats:title>Background</jats:title> <jats:p>Sexual function in those living with Inflammatory Bowel Disease (IBD) is known to be affected by their condition, with impact on their psychosocial well-being. Little is known about the causality of low sexual functions scores and their contribution to low quality of life reports. The aim of this study was to explore how intimacy and sexuality is experienced in the context of IBD.</jats:p> </jats:sec> <jats:sec> <jats:title>Methods</jats:title> <jats:p>This was a phenomenological study guided by van Manen’s methodology. Data were collected from 43 participants from interviews and narrative accounts submitted via Google Forms. Reflection on four existential domains (body, relationships, space and time) and thematic analysis were used to interpret the data.</jats:p> </jats:sec> <jats:sec> <jats:title>Results</jats:title> <jats:p>Four themes were generated from data analysis: Otherness of the sick body, Interrupted connectedness, Missing out on life fullness and Fragmented openness. These led to the overarching theme Sexuality as lived incompleteness, which reflected the essence of the experiences described by participants. Their experiences were deeply embedded in everyday life, and the IBD posed an obstacle to intimacy and sexuality, negatively affecting their life, relationships, family planning and their social position, imposing limitations and isolation.</jats:p> </jats:sec> <jats:sec> <jats:title>Conclusion</jats:title> <jats:p>IBD has a significant impact on sexual well-being with negative effects on overall quality of life, which may be unknown to healthcare professionals, therefore remain unaddressed. A better understanding of the potential issues could help healthcare professionals identify and address concerns and worries related to sexual well-being, and approach them in a reflective, holistic manner in situations arising in practice.</jats:p> </jats:sec>
dc.language	en
dc.publisher	Oxford University Press (OUP)
dc.relation.ispartof	Journal of Crohn's and Colitis
dc.relation.isbasedon	10.1093/ecco-jcc/jjab074.823
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences
dc.subject.classification	Gastroenterology & Hepatology
dc.title	N09 Sexuality as lived incompleteness: exploring intimacy and sexuality experiences of people living with inflammatory bowel disease
dc.type	Journal Article
utslib.citation.volume	15
utslib.for	1103 Clinical Sciences
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
dc.date.updated	2022-03-25T03:54:44Z
pubs.issue	Supplement_1
pubs.publication-status	Published
pubs.volume	15
utslib.citation.issue	Supplement_1

Abstract:

Abstract Background Sexual function in those living with Inflammatory Bowel Disease (IBD) is known to be affected by their condition, with impact on their psychosocial well-being. Little is known about the causality of low sexual functions scores and their contribution to low quality of life reports. The aim of this study was to explore how intimacy and sexuality is experienced in the context of IBD. Methods This was a phenomenological study guided by van Manen’s methodology. Data were collected from 43 participants from interviews and narrative accounts submitted via Google Forms. Reflection on four existential domains (body, relationships, space and time) and thematic analysis were used to interpret the data. Results Four themes were generated from data analysis: Otherness of the sick body, Interrupted connectedness, Missing out on life fullness and Fragmented openness. These led to the overarching theme Sexuality as lived incompleteness, which reflected the essence of the experiences described by participants. Their experiences were deeply embedded in everyday life, and the IBD posed an obstacle to intimacy and sexuality, negatively affecting their life, relationships, family planning and their social position, imposing limitations and isolation. Conclusion IBD has a significant impact on sexual well-being with negative effects on overall quality of life, which may be unknown to healthcare professionals, therefore remain unaddressed. A better understanding of the potential issues could help healthcare professionals identify and address concerns and worries related to sexual well-being, and approach them in a reflective, holistic manner in situations arising in practice.

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http://hdl.handle.net/10453/155548