Experiences of giving and receiving care in traumatic brain injury: An integrative review.

Kivunja, S; River, J; Gullick, J

Experiences of giving and receiving care in traumatic brain injury: An integrative review.

Kivunja, S River, J

Gullick, J

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Publisher:: WILEY
Publication Type:: Journal Article
Citation:: J Clin Nurs, 2018, 27, (7-8), pp. 1304-1328
Issue Date:: 2018-04

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Field	Value	Language
dc.contributor.author	Kivunja, S
dc.contributor.author	River, J https://orcid.org/0000-0002-5270-4013
dc.contributor.author	Gullick, J
dc.date.accessioned	2022-09-08T02:59:40Z
dc.date.available	2018-01-21
dc.date.available	2022-09-08T02:59:40Z
dc.date.issued	2018-04
dc.identifier.citation	J Clin Nurs, 2018, 27, (7-8), pp. 1304-1328
dc.identifier.issn	0962-1067
dc.identifier.issn	1365-2702
dc.identifier.uri	http://hdl.handle.net/10453/161522
dc.description.abstract	AIMS AND OBJECTIVES: To synthesise the literature on the experiences of giving or receiving care for traumatic brain injury for people with traumatic brain injury, their family members and nurses in hospital and rehabilitation settings. BACKGROUND: Traumatic brain injury represents a major source of physical, social and economic burden. In the hospital setting, people with traumatic brain injury feel excluded from decision-making processes and perceive impatient care. Families describe inadequate information and support for psychological distress. Nurses find the care of people with traumatic brain injury challenging particularly when experiencing heavy workloads. To date, a contemporary synthesis of the literature on people with traumatic brain injury, family and nurse experiences of traumatic brain injury care has not been conducted. DESIGN: Integrative literature review. METHODS: A systematic search strategy guided by the PRISMA statement was conducted in CINAHL, PubMed, Proquest, EMBASE and Google Scholar. Whittemore and Knafl's (Journal of Advanced Nursing, 52, 2005, 546) integrative review framework guided data reduction, data display, data comparison and conclusion verification. RESULTS: Across the three participant categories (people with traumatic brain injury/family members/nurses) and sixteen subcategories, six cross-cutting themes emerged: seeking personhood, navigating challenging behaviour, valuing skills and competence, struggling with changed family responsibilities, maintaining productive partnerships and reflecting on workplace culture. CONCLUSIONS: Traumatic brain injury creates changes in physical, cognitive and emotional function that challenge known ways of being in the world for people. This alters relationship dynamics within families and requires a specific skill set among nurses. RELEVANCE TO CLINICAL PRACTICE: Recommendations include the following: (i) formal inclusion of people with traumatic brain injury and families in care planning, (ii) routine risk screening for falls and challenging behaviour to ensure that controls are based on accurate assessment, (iii) formal orientation and training for novice nurses in the management of challenging behaviour, (iv) professional case management to guide access to services and funding and (v) personal skill development to optimise family functioning.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	WILEY
dc.relation.ispartof	J Clin Nurs
dc.relation.isbasedon	10.1111/jocn.14283
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1110 Nursing, 1117 Public Health and Health Services, 1701 Psychology
dc.subject.classification	Nursing
dc.subject.mesh	Brain Injuries, Traumatic
dc.subject.mesh	Decision Making
dc.subject.mesh	Family
dc.subject.mesh	Humans
dc.subject.mesh	Nurses
dc.subject.mesh	Patient Care Planning
dc.subject.mesh	Professional-Family Relations
dc.subject.mesh	Humans
dc.subject.mesh	Family
dc.subject.mesh	Professional-Family Relations
dc.subject.mesh	Decision Making
dc.subject.mesh	Nurses
dc.subject.mesh	Patient Care Planning
dc.subject.mesh	Brain Injuries, Traumatic
dc.title	Experiences of giving and receiving care in traumatic brain injury: An integrative review.
dc.type	Journal Article
utslib.citation.volume	27
utslib.location.activity	England
utslib.for	1110 Nursing
utslib.for	1117 Public Health and Health Services
utslib.for	1701 Psychology
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
dc.date.updated	2022-09-08T02:59:38Z
pubs.issue	7-8
pubs.publication-status	Published
pubs.volume	27
utslib.citation.issue	7-8

Abstract:

AIMS AND OBJECTIVES: To synthesise the literature on the experiences of giving or receiving care for traumatic brain injury for people with traumatic brain injury, their family members and nurses in hospital and rehabilitation settings. BACKGROUND: Traumatic brain injury represents a major source of physical, social and economic burden. In the hospital setting, people with traumatic brain injury feel excluded from decision-making processes and perceive impatient care. Families describe inadequate information and support for psychological distress. Nurses find the care of people with traumatic brain injury challenging particularly when experiencing heavy workloads. To date, a contemporary synthesis of the literature on people with traumatic brain injury, family and nurse experiences of traumatic brain injury care has not been conducted. DESIGN: Integrative literature review. METHODS: A systematic search strategy guided by the PRISMA statement was conducted in CINAHL, PubMed, Proquest, EMBASE and Google Scholar. Whittemore and Knafl's (Journal of Advanced Nursing, 52, 2005, 546) integrative review framework guided data reduction, data display, data comparison and conclusion verification. RESULTS: Across the three participant categories (people with traumatic brain injury/family members/nurses) and sixteen subcategories, six cross-cutting themes emerged: seeking personhood, navigating challenging behaviour, valuing skills and competence, struggling with changed family responsibilities, maintaining productive partnerships and reflecting on workplace culture. CONCLUSIONS: Traumatic brain injury creates changes in physical, cognitive and emotional function that challenge known ways of being in the world for people. This alters relationship dynamics within families and requires a specific skill set among nurses. RELEVANCE TO CLINICAL PRACTICE: Recommendations include the following: (i) formal inclusion of people with traumatic brain injury and families in care planning, (ii) routine risk screening for falls and challenging behaviour to ensure that controls are based on accurate assessment, (iii) formal orientation and training for novice nurses in the management of challenging behaviour, (iv) professional case management to guide access to services and funding and (v) personal skill development to optimise family functioning.

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http://hdl.handle.net/10453/161522