Parents' views on preparation to care for extremely premature infants at home.

Petty, J; Whiting, L; Green, J; Fowler, C

Parents' views on preparation to care for extremely premature infants at home.

Petty, J Whiting, L Green, J Fowler, C

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Publisher:: RCN Publishing Ltd.
Publication Type:: Journal Article
Citation:: Nurs Child Young People, 2018, 30, (4), pp. 22-27
Issue Date:: 2018-07-05

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Field	Value	Language
dc.contributor.author	Petty, J
dc.contributor.author	Whiting, L
dc.contributor.author	Green, J
dc.contributor.author	Fowler, C https://orcid.org/0000-0002-7838-8434
dc.date.accessioned	2022-09-11T22:58:04Z
dc.date.available	2018-04-24
dc.date.available	2022-09-11T22:58:04Z
dc.date.issued	2018-07-05
dc.identifier.citation	Nurs Child Young People, 2018, 30, (4), pp. 22-27
dc.identifier.issn	2046-2336
dc.identifier.issn	2046-2344
dc.identifier.uri	http://hdl.handle.net/10453/161715
dc.description.abstract	AIM: To gain insight into the post-discharge experiences of parents in relation to the adequacy of preparation for caring for extremely premature infants at home. METHOD: A narrative approach was drawn on to facilitate data collection, through face-to-face semi-structured interviews with 14 parents of extremely premature infants. FINDINGS: Constant comparative analysis was used to allow the emergence of five key research themes - emotional and mental health of parents, uncertain outcomes, ongoing health needs of the baby, educational needs of health professionals, and parental support and preparation for transition home. CONCLUSION: Parental experience of being discharged home with a premature baby can be emotionally challenging and necessitates a range of support mechanisms to help them to cope with this period of transition. Health professionals can direct parents to appropriate counselling services, resources and peer support groups. Tailored education is needed for community-based health professionals, such as health visitors, to equip them to support parents practically and emotionally during the transition home and beyond. In addition, health professionals can learn much from parents about what is needed to support them.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	RCN Publishing Ltd.
dc.relation.ispartof	Nurs Child Young People
dc.relation.isbasedon	10.7748/ncyp.2018.e1084
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1110 Nursing, 1114 Paediatrics and Reproductive Medicine
dc.title	Parents' views on preparation to care for extremely premature infants at home.
dc.type	Journal Article
utslib.citation.volume	30
utslib.location.activity	England
utslib.for	1110 Nursing
utslib.for	1114 Paediatrics and Reproductive Medicine
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
utslib.copyright.status	closed_access	*
dc.date.updated	2022-09-11T22:58:02Z
pubs.issue	4
pubs.publication-status	Published online
pubs.volume	30
utslib.citation.issue	4

Abstract:

AIM: To gain insight into the post-discharge experiences of parents in relation to the adequacy of preparation for caring for extremely premature infants at home. METHOD: A narrative approach was drawn on to facilitate data collection, through face-to-face semi-structured interviews with 14 parents of extremely premature infants. FINDINGS: Constant comparative analysis was used to allow the emergence of five key research themes - emotional and mental health of parents, uncertain outcomes, ongoing health needs of the baby, educational needs of health professionals, and parental support and preparation for transition home. CONCLUSION: Parental experience of being discharged home with a premature baby can be emotionally challenging and necessitates a range of support mechanisms to help them to cope with this period of transition. Health professionals can direct parents to appropriate counselling services, resources and peer support groups. Tailored education is needed for community-based health professionals, such as health visitors, to equip them to support parents practically and emotionally during the transition home and beyond. In addition, health professionals can learn much from parents about what is needed to support them.

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http://hdl.handle.net/10453/161715