"Rural mothers' feelings of isolation when caring for a child chronic health condition: A phenomenological study".

Bristow, SM; Jackson, D; Power, T; Usher, K

"Rural mothers' feelings of isolation when caring for a child chronic health condition: A phenomenological study".

Bristow, SM Jackson, D

Power, T

Usher, K

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Publisher:: SAGE Publications
Publication Type:: Journal Article
Citation:: Journal of Child Health Care, 2022, 26, (2), pp. 185-198
Issue Date:: 2022-04-08

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Field	Value	Language
dc.contributor.author	Bristow, SM
dc.contributor.author	Jackson, D https://orcid.org/0000-0001-5252-5325
dc.contributor.author	Power, T https://orcid.org/0000-0002-3334-0322
dc.contributor.author	Usher, K https://orcid.org/0000-0002-9686-5003
dc.date.accessioned	2022-09-21T02:38:20Z
dc.date.available	2022-09-21T02:38:20Z
dc.date.issued	2022-04-08
dc.identifier.citation	Journal of Child Health Care, 2022, 26, (2), pp. 185-198
dc.identifier.issn	1367-4935
dc.identifier.issn	1741-2889
dc.identifier.uri	http://hdl.handle.net/10453/161932
dc.description.abstract	Evidence indicates that people in rural settings may experience difficulties in accessing health services, mainly specialist services. Caring for a child with a chronic health condition in a rural environment can present these mothers' challenges. This article reports one of four finding themes from a more extensive qualitative study on rural mothers' experiences of providing care for a child with a chronic health condition. Using hermeneutic phenomenological methods, narrative accounts were collected from 17 rural mothers of children with a chronic health condition in 2018. Analysis revealed that these mothers experienced emotional and physical isolation resulting in an overall theme reported within this article: "Alone in the Outback": isolation, capturing rural mother's feelings of isolation; comprising three subthemes: On the fringe; There is no shelter; and Choosing their own direction. Their experiences of caring highlighted a need for additional local carer support services and resources. Nurses can assist in supporting rural mothers through facilitating local social support networks enabling women to connect with others in similar caregiving situations. This study reports following the consolidated criteria for reporting qualitative research guidelines (Tong et al., 2007).
dc.format	Print-Electronic
dc.language	eng
dc.publisher	SAGE Publications
dc.relation.ispartof	Journal of Child Health Care
dc.relation.isbasedon	10.1177/13674935211007324
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1110 Nursing, 1114 Paediatrics and Reproductive Medicine, 1117 Public Health and Health Services
dc.subject.mesh	Child
dc.subject.mesh	Chronic Disease
dc.subject.mesh	Emotions
dc.subject.mesh	Female
dc.subject.mesh	Humans
dc.subject.mesh	Mothers
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Rural Population
dc.subject.mesh	Social Support
dc.subject.mesh	Humans
dc.subject.mesh	Chronic Disease
dc.subject.mesh	Emotions
dc.subject.mesh	Mothers
dc.subject.mesh	Qualitative Research
dc.subject.mesh	Social Support
dc.subject.mesh	Child
dc.subject.mesh	Rural Population
dc.subject.mesh	Female
dc.title	"Rural mothers' feelings of isolation when caring for a child chronic health condition: A phenomenological study".
dc.type	Journal Article
utslib.citation.volume	26
utslib.location.activity	England
utslib.for	1110 Nursing
utslib.for	1114 Paediatrics and Reproductive Medicine
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2022-09-21T02:38:19Z
pubs.issue	2
pubs.publication-status	Published
pubs.volume	26
utslib.citation.issue	2

Abstract:

Evidence indicates that people in rural settings may experience difficulties in accessing health services, mainly specialist services. Caring for a child with a chronic health condition in a rural environment can present these mothers' challenges. This article reports one of four finding themes from a more extensive qualitative study on rural mothers' experiences of providing care for a child with a chronic health condition. Using hermeneutic phenomenological methods, narrative accounts were collected from 17 rural mothers of children with a chronic health condition in 2018. Analysis revealed that these mothers experienced emotional and physical isolation resulting in an overall theme reported within this article: "Alone in the Outback": isolation, capturing rural mother's feelings of isolation; comprising three subthemes: On the fringe; There is no shelter; and Choosing their own direction. Their experiences of caring highlighted a need for additional local carer support services and resources. Nurses can assist in supporting rural mothers through facilitating local social support networks enabling women to connect with others in similar caregiving situations. This study reports following the consolidated criteria for reporting qualitative research guidelines (Tong et al., 2007).

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/161932