'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.

Mimmo, L; Hodgins, M; Samir, N; Travaglia, J; Woolfenden, S; Harrison, R

'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.

Mimmo, L Hodgins, M Samir, N Travaglia, J

Woolfenden, S Harrison, R

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Publisher:: Wiley
Publication Type:: Journal Article
Citation:: Journal of Advanced Nursing, 2022, 78, (9), pp. 2933-2948
Issue Date:: 2022-09

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Field	Value	Language
dc.contributor.author	Mimmo, L
dc.contributor.author	Hodgins, M
dc.contributor.author	Samir, N
dc.contributor.author	Travaglia, J https://orcid.org/0000-0002-7537-0466
dc.contributor.author	Woolfenden, S
dc.contributor.author	Harrison, R
dc.date.accessioned	2022-09-21T03:14:14Z
dc.date.available	2022-03-23
dc.date.available	2022-09-21T03:14:14Z
dc.date.issued	2022-09
dc.identifier.citation	Journal of Advanced Nursing, 2022, 78, (9), pp. 2933-2948
dc.identifier.issn	0309-2402
dc.identifier.issn	1365-2648
dc.identifier.uri	http://hdl.handle.net/10453/161937
dc.description.abstract	AIM: To understand what constitutes a good experience of care for inpatient children and young people with intellectual disability as perceived by nursing staff. DESIGN: Interpretive qualitative study. METHODS: Focus groups with clinical nursing staff from speciality neurological/neurosurgical and adolescent medicine wards across two specialist tertiary children's hospitals in Australia were conducted between March and May 2021. Data analysis followed interpretative analysis methods to develop themes and codes which were mapped to a conceptual model of safe care. RESULTS: Six focus groups with 29 nurses of varying experience levels were conducted over 3 months. Themes and codes were mapped to the six themes of the conceptual model: use rapport, know the child, negotiate roles, shared learning, build trust and relationships, and past experiences. The analysis revealed two new themes that extended the conceptual model to include; the unique role of a paediatric nurse, and joy and job satisfaction, with a third contextual theme, impacts of COVID-19 pandemic restrictions. With the perspectives of paediatric nurses incorporated into the model we have enhanced our model of safe care specifically for inpatient paediatric nursing care of children and young people with intellectual disability. CONCLUSION: Including perceptions of paediatric nurses confirmed the position of the child with intellectual disability being at the centre of safe care, where care is delivered as a partnership between nursing staff, child or young person and their parents/family and the hospital systems and processes. IMPACT: The enhanced model offers a specialized framework for clinical staff and health managers to optimize the delivery of safe care for children and young people with intellectual disability in hospital.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	Journal of Advanced Nursing
dc.relation.isbasedon	10.1111/jan.15256
dc.rights	info:eu-repo/semantics/restrictedAccess
dc.rights	This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited. © 2022 The Authors. Journal of Advanced Nursing published by John Wiley & Sons Ltd
dc.subject	1110 Nursing
dc.subject.classification	Nursing
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	COVID-19
dc.subject.mesh	Hospitals, Pediatric
dc.subject.mesh	Humans
dc.subject.mesh	Inpatients
dc.subject.mesh	Intellectual Disability
dc.subject.mesh	Laughter
dc.subject.mesh	Nurses
dc.subject.mesh	Pandemics
dc.subject.mesh	Adolescent
dc.subject.mesh	COVID-19
dc.subject.mesh	Child
dc.subject.mesh	Hospitals, Pediatric
dc.subject.mesh	Humans
dc.subject.mesh	Inpatients
dc.subject.mesh	Intellectual Disability
dc.subject.mesh	Laughter
dc.subject.mesh	Nurses
dc.subject.mesh	Pandemics
dc.subject.mesh	Humans
dc.subject.mesh	Laughter
dc.subject.mesh	Adolescent
dc.subject.mesh	Child
dc.subject.mesh	Nurses
dc.subject.mesh	Inpatients
dc.subject.mesh	Hospitals, Pediatric
dc.subject.mesh	Pandemics
dc.subject.mesh	Intellectual Disability
dc.subject.mesh	COVID-19
dc.title	'Smiles and laughter and all those really great things': Nurses' perceptions of good experiences of care for inpatient children and young people with intellectual disability.
dc.type	Journal Article
utslib.citation.volume	78
utslib.location.activity	England
utslib.for	1110 Nursing
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
pubs.organisational-group	/University of Technology Sydney/Strength - CHSP - Health Services and Practice
utslib.copyright.status	recently_added	*
pubs.consider-herdc	false
dc.date.updated	2022-09-21T03:14:10Z
pubs.issue	9
pubs.publication-status	Published
pubs.volume	78
utslib.citation.issue	9

Abstract:

AIM: To understand what constitutes a good experience of care for inpatient children and young people with intellectual disability as perceived by nursing staff. DESIGN: Interpretive qualitative study. METHODS: Focus groups with clinical nursing staff from speciality neurological/neurosurgical and adolescent medicine wards across two specialist tertiary children's hospitals in Australia were conducted between March and May 2021. Data analysis followed interpretative analysis methods to develop themes and codes which were mapped to a conceptual model of safe care. RESULTS: Six focus groups with 29 nurses of varying experience levels were conducted over 3 months. Themes and codes were mapped to the six themes of the conceptual model: use rapport, know the child, negotiate roles, shared learning, build trust and relationships, and past experiences. The analysis revealed two new themes that extended the conceptual model to include; the unique role of a paediatric nurse, and joy and job satisfaction, with a third contextual theme, impacts of COVID-19 pandemic restrictions. With the perspectives of paediatric nurses incorporated into the model we have enhanced our model of safe care specifically for inpatient paediatric nursing care of children and young people with intellectual disability. CONCLUSION: Including perceptions of paediatric nurses confirmed the position of the child with intellectual disability being at the centre of safe care, where care is delivered as a partnership between nursing staff, child or young person and their parents/family and the hospital systems and processes. IMPACT: The enhanced model offers a specialized framework for clinical staff and health managers to optimize the delivery of safe care for children and young people with intellectual disability in hospital.

Please use this identifier to cite or link to this item:

http://hdl.handle.net/10453/161937