Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions.

Ekberg, S; Bowers, A; Bradford, N; Ekberg, K; Rolfe, M; Elvidge, N; Cook, R; Roberts, S-J; Howard, C; Agar, M; Deleuil, R; Fleming, S; Hynson, J; Jolly, A; Heywood, M; Waring, S; Rice, T; Vickery, A

Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions.

Ekberg, S Bowers, A Bradford, N Ekberg, K Rolfe, M Elvidge, N Cook, R Roberts, S-J Howard, C Agar, M

Deleuil, R Fleming, S Hynson, J Jolly, A Heywood, M Waring, S Rice, T Vickery, A

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Publisher:: Wiley
Publication Type:: Journal Article
Citation:: Journal of Paediatrics and Child Health, 2022, 58, (2), pp. 232-237
Issue Date:: 2022-02

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Field	Value	Language
dc.contributor.author	Ekberg, S
dc.contributor.author	Bowers, A
dc.contributor.author	Bradford, N
dc.contributor.author	Ekberg, K
dc.contributor.author	Rolfe, M
dc.contributor.author	Elvidge, N
dc.contributor.author	Cook, R
dc.contributor.author	Roberts, S-J
dc.contributor.author	Howard, C
dc.contributor.author	Agar, M https://orcid.org/0000-0002-6756-6119
dc.contributor.author	Deleuil, R
dc.contributor.author	Fleming, S
dc.contributor.author	Hynson, J
dc.contributor.author	Jolly, A
dc.contributor.author	Heywood, M
dc.contributor.author	Waring, S
dc.contributor.author	Rice, T
dc.contributor.author	Vickery, A
dc.date.accessioned	2022-09-29T06:18:47Z
dc.date.available	2021-11-24
dc.date.available	2022-09-29T06:18:47Z
dc.date.issued	2022-02
dc.identifier.citation	Journal of Paediatrics and Child Health, 2022, 58, (2), pp. 232-237
dc.identifier.issn	1034-4810
dc.identifier.issn	1440-1754
dc.identifier.uri	http://hdl.handle.net/10453/162176
dc.description.abstract	AIM: Following the establishment of paediatric palliative care services over recent decades, this study sought to identify information to inform future policy and practice. METHODS: A rapid review using thematic synthesis was conducted to synthesise existing information about improving paediatric palliative care. Information was extracted in relation to key areas for investment and change: quality, access, advance care planning, skills, research, collaboration and community awareness. RESULTS: A total of 2228 literature sources were screened, with 369 included. Synthesised information identified clear ways to improve quality of care, access to care, advance care planning, and research and data collection. The synthesis identified knowledge gaps in understanding how to improve skills in paediatric palliative care, collaboration across Australian jurisdictions and community awareness. CONCLUSIONS: The findings of this review bring together information from a vast range of sources to provide action-oriented information to target investment and change in paediatric palliative care over the coming decades.
dc.format	Print-Electronic
dc.language	eng
dc.publisher	Wiley
dc.relation.ispartof	Journal of Paediatrics and Child Health
dc.relation.isbasedon	10.1111/jpc.15851
dc.rights	info:eu-repo/semantics/closedAccess
dc.subject	1103 Clinical Sciences, 1114 Paediatrics and Reproductive Medicine, 1117 Public Health and Health Services
dc.subject.classification	Pediatrics
dc.subject.mesh	Advance Care Planning
dc.subject.mesh	Australia
dc.subject.mesh	Child
dc.subject.mesh	Delivery of Health Care
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Advance Care Planning
dc.subject.mesh	Australia
dc.subject.mesh	Child
dc.subject.mesh	Delivery of Health Care
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Humans
dc.subject.mesh	Palliative Care
dc.subject.mesh	Child
dc.subject.mesh	Advance Care Planning
dc.subject.mesh	Delivery of Health Care
dc.subject.mesh	Australia
dc.title	Enhancing paediatric palliative care: A rapid review to inform continued development of care for children with life-limiting conditions.
dc.type	Journal Article
utslib.citation.volume	58
utslib.location.activity	Australia
utslib.for	1103 Clinical Sciences
utslib.for	1114 Paediatrics and Reproductive Medicine
utslib.for	1117 Public Health and Health Services
pubs.organisational-group	/University of Technology Sydney
pubs.organisational-group	/University of Technology Sydney/Faculty of Health
utslib.copyright.status	closed_access	*
pubs.consider-herdc	false
dc.date.updated	2022-09-29T06:18:46Z
pubs.issue	2
pubs.publication-status	Published
pubs.volume	58
utslib.citation.issue	2

Abstract:

AIM: Following the establishment of paediatric palliative care services over recent decades, this study sought to identify information to inform future policy and practice. METHODS: A rapid review using thematic synthesis was conducted to synthesise existing information about improving paediatric palliative care. Information was extracted in relation to key areas for investment and change: quality, access, advance care planning, skills, research, collaboration and community awareness. RESULTS: A total of 2228 literature sources were screened, with 369 included. Synthesised information identified clear ways to improve quality of care, access to care, advance care planning, and research and data collection. The synthesis identified knowledge gaps in understanding how to improve skills in paediatric palliative care, collaboration across Australian jurisdictions and community awareness. CONCLUSIONS: The findings of this review bring together information from a vast range of sources to provide action-oriented information to target investment and change in paediatric palliative care over the coming decades.

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http://hdl.handle.net/10453/162176